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You didn't mention how old your son was. Mycoplasma pneumoniae is a common bacteria for any schoolaged children - that's probably kids around 7 or up. Did they do sensitivities on the bacteria? It sounds like it could be a resistant bug. Especially if he's been on the same antibiotic each time he's sick. You want to avoid antibiotics unless he has a fever because of the risk of C. diff colitis, which is horrible. You didn't mention what he gets ill with either. Bronchitis? Pneumonia?

Also, you mentioned he has been diagnosed with asthma. Many times, asthmatics will culture M. pneumoniae, but will not become ill from it. Has he had his peak flows done lately? A lot of times when asthma is not fully under control, it will be similar to bronchitis, and when all that thick mucus isn't coughed up, it will cause an infection. Are you taking him to a pediatrician or a pulmonologist? If you haven't already, see a pediatric pulmonologist.

What nebulizer medication is he taking? Is it just plain albuterol? Again, I'm not sure how old your son is, but you could ask your doctor about DuoNeb, which is albuterol with a little bit of Atrovent, which will help dry out the secretions. You could also talk to your doctor about possibly doing a little bit of chest physical therapy to help loosen the mucus.

If I'm not mistaken, one copy of the 5t allele means that he is a carrier of the CF gene, but does not have CF. The blood test for CF is the gold standard: if it comes back negative, it is definitely not CF.

Since his symptoms are similar to CF, a pulmonologist may want to do a bronchoscopy with biopsy to check for primary ciliary dyskinesia (PCD). PCD is very similar to CF, however, PCD is also rare. PCD is when the cilia, or the tiny hairs, in the airways do not clear mucus effectively, leading to a build up of mucus, and thus, infection. It also affects the sinuses and can lead to chronic sinusitis. In the bronchoscopy, the doctor will also take a look around and make sure everything looks alright. They may also do a bronchial wash with a culture, which will get the sputum deep in the lungs.

I have so many ideas. It's because I'm going through the same thing myself with infections. I'm asthmatic too, but I culture Haemophilus influenzae and Streptococcus pneumoniae.

Speaking of asthmatics, does your son have acid reflux? Asthmatics commonly have acid reflux, especially allergic asthmatics for some reason. With acid reflux disease that causes pulmonary problems, the stomach acid comes up at night, and then the person will aspirate the stomach acid. Perhaps you could ask your doctor about a proton pump inhibitor such as Nexium? It wouldn't hurt - one can be on acid reflux meds and not have acid reflux disease.

Edit: I saw another one of your posts about this. IgG subclass deficiency, eh? I think this is the culprit. IgG subclass deficiency causes recurrent infections and some failure to thrive. The failure to thrive may be why it was thought that your son may have CF. The IgG subclass deficiency is also closely related to chronic corticosteroid use for obstructive lung disease, ie. asthma. Does your son frequently have sinus infections as well? Has he gotten the pneumococcal vaccine? This vaccine is especially important for individuals with IgG subclass deficiency, although, some may not benefit from the vaccine because the immune system may fail to initiate a response to it. I'm guessing that because the IgG subclass deficiency is so closely related to the IgA deficiency, there is no treatment besides with antibiotics. You'll have to ask your doctor about it though, I'm no specialist! :)

Take care!
Thanks for replying! My son is 6 years old. He seems to never get a cold only pneumonia. It starts in October goes until May then he sometimes gets it in the summer. He has IgG subclass deficiency so they put him on long term antibiotic therapy, hoping he wont have to have a mediport put in and have IVIG treatments once every 3 weeks. He is ahving his levels checked for his IgG soon and we will find out what the next plan is.

He has had a sinus CT. The results said: Panasinus opacification. findings suggest acute sinusitis superimposed on chronic sinusitis. He is on Flonase and it seems to help a bit. He also does take advair, albuterol nebs, singulair, and other meds for other conditions.

Well I guess it is good to know about that 5t allele. I am relieved but I wish they would figure it all out. With all his meds he doesnt sleep so needless to say I dont either LOL. i dont mind. He hasnt started with peak flows yet. They were planning on doing PFT's last visit but he was sick again. Luckily he did get his flu shot, my daughter is battling that now and he would have surely got that with his weak immune system.
He just finished 20 days of Zithromax I think it was. Before that was 20 days of Augmentin. Right now nothing. He was just on prednisone and antibiotic but has since finished. He did have his pneumonia shot in September and his flu shot in December. He needs another flu shot later this month if we can find it again. It stinks because he cant have the flumist due to his immune deficiency and it is a live virus. They are all out of the shot form so my daughter didnt get to get hers. She couldnt get the flumist because he cant be around anyone who has had it. Right now his meds are(if i remember them all) adderall xr, periactin,singulair,advair,albuterol,flonase,melatonin, I think I remembered them all. He sees a pedi pulmonologist, neurologist, and gastrologist along with his pedi. He did see a geneticist once to find out about Ehler-Danlos syndrome but they said he may have it mildly so they are calling it benign familial hypermobility. He has quite a medical history starting at birth. For example spikes fevers to 106 and drops his sats to 85. Hasnt happened in a bit Thank God! Thanks again
It's good that the doctors are switching antibiotics around. Gotta be careful with that prednisone though. It further lowers immune function. But I guess the doctor probably told you that already.

During flu season, everyone went and got the flu shot even though FluMist was widely publicized. I think the flu shot should be reserved for those who can't get the spray.

That's a lot of meds for a 6 year old. Poor kid - he's been through a lot. What is the melatonin for? Does he have trouble sleeping?

Fever spikes of 106 - wow. :eek: Has he ever had a febrile seizure?

That low of a sat level is to be expected with such a high fever. People with lung disease, including asthma, must have fevers treated promptly since oxygen requirements increase by 7% for every one degree in fahrenheight (sp?) the fever rises. But my guess is that a fever that high doesn't come down too fast.
[QUOTE=swimfast989]It's good that the doctors are switching antibiotics around. Gotta be careful with that prednisone though. It further lowers immune function. But I guess the doctor probably told you that already.

During flu season, everyone went and got the flu shot even though FluMist was widely publicized. I think the flu shot should be reserved for those who can't get the spray.

That's a lot of meds for a 6 year old. Poor kid - he's been through a lot. What is the melatonin for? Does he have trouble sleeping?

Fever spikes of 106 - wow. :eek: Has he ever had a febrile seizure?

That low of a sat level is to be expected with such a high fever. People with lung disease, including asthma, must have fevers treated promptly since oxygen requirements increase by 7% for every one degree in fahrenheight (sp?) the fever rises. But my guess is that a fever that high doesn't come down too fast.[/QUOTE]

Yes he does have a lot of trouble sleeping. He used to fall asleep about 4am and get up by 6 am for school. He has been alot better with his sleeping habits thankfully. He also did have a febrile seizure, of course I happened to be at work and my hubby was home with him and of course my hubby flipped. I am the calmer one in these situations. I worked in intensive care for 5 years and learned that one:) Also, when he has fevers we have to treat him with tylenol and motrin alternating them. I just want to thank you so much for your help!





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