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Hi all,
I am trying to buy ADEKS (pediatric drops) for my friend's baby daughter with CF in Europe. Apparently, these drops are really good for kids with CF. I am having real issues finding ADEKS. Any ideas where I could buy them?
Thanks very much, appreciate any info.
Agnes
I read my ADEK bottle and mine in through Axcan Scandipharm-- they have a website- [url]www.axcan.com[/url]. I don't know if you need a prescription and sometimes its in short supply-- but I hope you're able to get it for your friend.
Hi,
We live in Canada and ADEK has not been approved here but we get special permission from our hospital. They sent a letter to our pharmacist and they forward a copy of the letter to AXCAN (KY) requesting the vitamins. Tell your friend to try this because I believe it is the only way to obtain them if they are not sold in your area.
I posted earlier about this topic 'cuz there's apparently a shortage of ADEKS due to people who've had gastic bypass surgery. Axcam's site lists them as being backordered -- at least the drops. They still have the tablets, which I suppose you can crush. I've been able to obtain them thru the CF FOundation's Pharmacy site -- with a prescription. Also, Solvay makes a vitamin drop specifically for CF Kids, which is also sold only through the CF Foundation's website. Oh, and the weird thing about the ADEKS I get from the CF Pharmacy -- they've obviously obtained a source in Canada, 'cuz the bottles are marked with a Mapleleaf.

Otherwise, when we couldn't get ADEKS we were using poly-vi-sol vitamin drops without iron and adding a drop of Vitamin E & A to ONE of my baby's bottle each day. Just poke a hole in one of the capsules. This was as per my son's doctor's suggestion. So I'd check with your doctor before doing this. Too much Vitamin A can be toxic for people
[QUOTE=Ratatosk]I posted earlier about this topic 'cuz there's apparently a shortage of ADEKS due to people who've had gastic bypass surgery. Axcam's site lists them as being backordered -- at least the drops. They still have the tablets, which I suppose you can crush. I've been able to obtain them thru the CF FOundation's Pharmacy site -- with a prescription. Also, Solvay makes a vitamin drop specifically for CF Kids, which is also sold only through the CF Foundation's website. Oh, and the weird thing about the ADEKS I get from the CF Pharmacy -- they've obviously obtained a source in Canada, 'cuz the bottles are marked with a Mapleleaf.

Otherwise, when we couldn't get ADEKS we were using poly-vi-sol vitamin drops without iron and adding a drop of Vitamin E & A to ONE of my baby's bottle each day. Just poke a hole in one of the capsules. This was as per my son's doctor's suggestion. So I'd check with your doctor before doing this. Too much Vitamin A can be toxic for people[/QUOTE]
Hi,
thanks very much for the tips, I will talk to my friend and see what can be done about it. Appreciate the info!
Agnes
[QUOTE=sherry092]I read my ADEK bottle and mine in through Axcan Scandipharm-- they have a website- [url]www.axcan.com[/url]. I don't know if you need a prescription and sometimes its in short supply-- but I hope you're able to get it for your friend.[/QUOTE]

Hi,
Thanks very much for your reply. I'll try to explore this path.
Appreciate the info!
Agnes
[QUOTE=Ashmom]Hi,
We live in Canada and ADEK has not been approved here but we get special permission from our hospital. They sent a letter to our pharmacist and they forward a copy of the letter to AXCAN (KY) requesting the vitamins. Tell your friend to try this because I believe it is the only way to obtain them if they are not sold in your area.[/QUOTE]
Hi,
Thanks very much for the tip.!
Agnes





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