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Cystic Fibrosis Board Index
Pages: 1 Showing 1 - 20 of 21 for 2 borderline sweat tests. (0.018 seconds)

... My son had 2 borderline sweat tests, 38/43. His genetic test came back negative. The doctor is treating him as CF anyway because of his recurrent pneumonias, sinus infections and colds. He is always sick. More often it seems then not. He doesn't look sick though. Always happy and never wants to miss school. He's 4, and was diagnosed this month. Have you got back the genetic... (4 replies)
... You really wouldn't know for sure unless your child had genetic testing -- NOT just testing for the most common mutations. So I would push for either ambry amplified or quest as there are over 1500 CF mutations. Does your child have any digestive issues -- constipation and/or loose frequent stools. Reflux... DS' symptoms are mainly digestive and some sinus issues. DS'... (5 replies)
... right it's devastating to think of cf. We finally took my son to a cf clinic with a new doctor who's great. We are still trying to get a diagnosis because he had 2 borderline sweat tests and a negative genetic test. ... (14 replies)

Further testing
Mar 7, 2003
... e cf center, he tried to discourage me saying my son didn't have any more symptoms. There is nothing more truthful than I hope my son is okay and he's right. But 2 borderline sweat tests, one genetic test that's negative, can't rule it out especially because he has symptoms that don't get better. ... (6 replies)
Susan and Chacha
Sep 17, 2003
... Hi AnneMarie I'm sorry for all your frustration! To answer your question though, Jeffrey is a little over age 3. He is the only child we have and he is adopted. We knew his birthmother but not the father.To my knowledge, there is no record of cf in their family. However, they come from people of eastern/northern European descent. My son still hasn't been formerly... (2 replies)
... ust be thrilled! Jeffrey is on Creon5 while we wait to get his stool elastase test and genetics test back. We are still waiting to get a diagnosis because of his 2 borderline sweat tests. ... (14 replies)
... would eat voraciously get a huge belly immediately after eating and then be hungry again 2 hours later. nothing seemed to satisfy her appetite. ... (5 replies)
... My son is also a mystery. I understand completely how frustrated you are. My son will be 3 in two weeks and he's had gi symptoms since he was 1. He had 2 borderline sweat tests also and a normal chest xray. The other test for fat, enzymes was also normal. But my son still has symptoms. ... (18 replies)
"looks too good"
Apr 7, 2003
... We are taking my son to his first cf clinic next week at a new hospital. Although he's had 2 borderline sweat tests, a negative genetic test, we've never been to a cf clinic, only a gi doctor,nutritionist, and allergist despite all his symptoms. ... (15 replies)
Further testing
Feb 25, 2003
... My son has had 2 borderline sweat tests and his genetic test that tested for more than 100 mutations was negative. ... (6 replies)
... My daughter had a sweat test of 46 and is going to a CF center for a follow up. ... (1 replies)
... My son who is 11 was just diagnosed A simple sinus infection started the process that determined a nasal polyp- 2 sweat tests with scores of 49 and 53 respectively was borderline so we had the genetic testing done It was confirmed Friday he has a mild version of CF, what ever that means... (9 replies)
... diarrhea, foul bm's,upper respiratory problem, etc. My son has been anemic for almost his whole life. Jeffrey's sweat tests at age 2.6 were both borderline. We were passed between a gi doctor and an allergist. ... (0 replies)
... Hi Rhyanen. I hear your frustration and hopefully this will help- sweat test levels: 0-39=NORMAL 40-60=BORDERLINE Above 60=CF I know you said your son had 37 but was it from a reliable testing center? because that would clearly make a difference? My son, Jeffrey who was 3 in May has had 2 borderline tests at... (14 replies)
... i had projectile vomiting. I have also had the lumber punch test when i was around 2 as they thought i may have meningitis, however this was negative. Through my whole life i have suffered with really smelly, long stools. ... (4 replies)
... The reason I ask is because we are in the same predicament. My son had 2 sweat tests both of which were borderline. His genetics test was negative. However, his genetic test only tested for 100 mutations,but there are over 600 cf mutations found. ... (10 replies)
... Your message was such an encouragement to me. Thank you!!! We have been through 2 and a half years of puzzling problems from GI bleeding to 3 colonoscopies to lg. ... (11 replies)
... at causes the body to break down over time. Thus, your daughter, is in good shape as far as cf patients go. I'm curious what were her symptoms and did she have a sweat test or what to diagnose her? ... (14 replies)
... Hi, It has been along time since my girls were diagnosed. I will be honest, I have no idea what their numbers were, it's been 13 years since my 16yr old was sweat tested and my 13 yr. old was borderline all three times they tested her from birth to age 2. ... (14 replies)
... year old son, just tested one point over the borderline for CF. ... (6 replies)

Associated Tags: borderline, bowel impaction, cystic fibrosis, intusuception

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