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Cystic Fibrosis Message Board


Cystic Fibrosis Board Index


Checked the list of CF clinics and Kosair Children's is listed as an accreditted CF facility. Also, I took this information from a CF Foundation brochure we were given at the hospital:

--Children and adults with CF have an increased amount of sodium and chloride (salt) in their sweat. In general, sweat chloride concentrations less than 40 mmol/L are normal (does not have CF); values between 40 to 60 mmol/L are borderline, and sweat chloride concentrations greater than 60 mmol/L are consistent with the diagnosis of CF. For individuals who have CF, the sweat chloride test will be positive from birth. Once a test result is positive, it is always positive. Sweat test values do not change from positive to negative or negative to positive as a person grows older. Sweat test values also do not vary when individuals have colds or other temporary illnesses.

BTW, I'd be crabby too if my tummy was alway upset 'cuz I wasn't digesting food properly and had greasy, foul smelling poo. DS' sweat test was 35; however, he was born with a bowel obstruction caused by meconium illeus. He has greasy loose stools if he doesn't get enough enzymes, he's got a poochy belly. His blood tests showed two copies of the cf mutation delta f508.





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