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Cystic Fibrosis Message Board

Cystic Fibrosis Board Index

Re: Confused
Jul 19, 2005
The doctors said that the prenatal genetic test looks at 25 different mutations that was recommended by the American Pediatric's. The problem is that we are currently living in Belgium. The military hospital here does not offer anything here. As a result they have send off in the belgium community. I do not know if they are an accredited CF facility. However, they are doing more genetic testing and also going to do a pulmonary function test. We do not go back to the doctor until August 22. Should I worry since the sweat test was in the possible range and the first genetic test was negative? Can she still have CF and not be detected in the basic CF genetic test? Deep down my gut says she has it since she has most of the symptoms. However I have trouble trusting the doctors since they have been screwing up a lot. Please help.

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