It appears you have not yet Signed Up with our community. To Sign Up for free, please click here....



Cystic Fibrosis Message Board


Cystic Fibrosis Board Index


Hello,
I'm 31 and trying to figure out why I've had a cough for over a year. It's driving me crazy and any ideas would be very much appreciated!
It's now been misdiagnosed about 8 times by 5 different doctors, and now they're just flat-out telling me they have no idea. They keep ruling things out (list available if anyone thinks it would be helpful), but they can't tell me why I'm coughing.
I got to the CF board after doing some research on my own. I tried searching Yahoo on some of what I'd said to my PCP on my last visit. I very distinctly remember saying "The only symptoms I've had as long as I've had the cough, are things I've had my whole life: I eat constantly but can't gain weight [I'm 5'5", 113 lbs], and my nose has been running my entire life. And I still think this cough might be connected to the pneumonia I had in '98." Well, knowing what I read about CF within the past few days, I'm surprised a light didn't go off in his head at that point. But he just said he didn't think these things were connected.
So, like I said, I did some research on my own and my searches pulled up a lot of CF sites, so I thought maybe that was it. And also, I noticed that it would explain my severe pretzel addition (which I hadn't mentioned to my doctor because I thought it was psychological), because doesn't CF cause excess loss of salt in the sweat? So maybe it was a physical craving for salt?
But here's the thing, I called my doctor and asked about CF, he said he thought it was "highly unlikely, but anything's possible," and did a referral for a blood DNA test, which I had. But his office just called and said it came out NEGATIVE. So now I'm totally frustrated, because I really thought that was it. Assuming his office didn't mess up & give me the wrong result, what now?
Is there any chance the blood test was wrong? Or does anyone know of a disorder that's similar to CF but maybe milder, and where the blood test comes out negative?
Really sorry this post is so ridiculously long. I really have to get rid of this cough, at this point I would be happy to hear any correct diagnosis no matter what it is, or any kind of pointer in the right direction. Thanks very much.





All times are GMT -7. The time now is 06:56 AM.





© 2022 MH Sub I, LLC dba Internet Brands. All rights reserved.
Do not copy or redistribute in any form!