Re: Son diagnosed with CF gene

The results we received simply indicated that the gene was present, but no indication of a double or single gene. Additionally the sweat-chloride test is unavailable here. In fact very little is available here.

The problem is that I think we are getting worked up for nothing. We are both concerned, but I really do not see anything definitive, which makes me wonder. . We’re going to be about two months without getting to a knowledgeable doctor, and I do not want to put ourselves through hell without reason.

His symptoms, if he has CF, are mild enough to escape several specialists, and I don’t know if this is possible. Could he have such a mild case of CF that no one has noticed anything at all until now?