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[QUOTE=Mattysmomma;4110627]and for the second time he produced absolutely no sweat at all .... im wondering if this is common[/QUOTE]

Is he an infant? It's difficult to get teeny tiny babies to sweat. When DS was 3 weeks old he had his test, but it came back as normal (32). We suspect they just didn't get an adequate sample because now that he's older he really sweats out a LOT of salt. IMO Genetic blood testing is the most accurate determination of CF and not just testing for most common mutations but amplified such as ambry or qwest which test for over 1500.
[QUOTE=Ratatosk;4111233]Is he an infant? It's difficult to get teeny tiny babies to sweat. When DS was 3 weeks old he had his test, but it came back as normal (32). We suspect they just didn't get an adequate sample because now that he's older he really sweats out a LOT of salt. IMO Genetic blood testing is the most accurate determination of CF and not just testing for most common mutations but amplified such as ambry or qwest which test for over 1500.[/QUOTE]

He is actually going to be two in two weeks... in hindsight he just never got sweaty no matter how much bulky clothing he has on. In fact at night he kicks off his blankets and gets upset in the deepest sleep when he is covered. He has been tested for celiac anemia ( which he has and is responding to the supplements albiet very slowly) thyroid issues and then a rule out for cf . The first test about 2 weeks ago he did not sweat at all and they tried the test on each arm so yesterday he was retested and after again no sweating. The next step is genetic testing if its warranted however he doesnt exhibit respiratory issues save for one lung infection at a year of age after nearly 3 months of coughing. Slow growth diagnosed with ftt at around 15 months of age darn vile smelling stools that i have now noticed look like they have been painted with glaze ... not pretty at all lol .... the blood testing for celiac showed no antibodies but he seems to be leaning that way more than anything . I just need peace of mind that it isnt cf and if he just doesnt sweat at all then im worried about that too ... its honestly driving me insane slowly





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