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Cystic Fibrosis Message Board


Cystic Fibrosis Board Index


You indicated he was on enzymes.. Could it be that he's not getting enough of them and is still continuing to malabsorb? Are his stools normal or are they frequent, loose, greasy or bulky? DS has more digestive issues and he was on adeks drops -- 1 ml twice a day, as well as extra A & E, vitamin K. But D wasn't an issue according to his vitamin levels.

IMO push for genetic testing to at least rule out CF, so they can focus on whatever issues he may have. Are you seeing a specialist or going to a CF Clinic.





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