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... for that. He is still not "labeled" CF although no one has really any other ideas. Our new big problem has to do with some vitamin D issues. He takes the aqua ADEK vitamins and extra vitamin D on top of that which is about 2800 IU. ... (5 replies)
... Hi, Our daughters have copies of DeltaF508 and G542X. They were both born with meconium ileus and our 13 month old required surgery at 5 days old to correct. Meconium ileus is common amoung infants born with the CF gene G542X. Our other daughter is 3 years old. They are both pancreatic insufficient and take Creon 5 enzymes, ventolin & saline 2X/day, pulmozyme 1X/day,... (10 replies)
Daily treatments
Jul 13, 2003
... Both girls take Creon 5 enzymes and ADEK vitamins. ... (8 replies)

... This has been a big problem for us....I have two daughters with CF,half sisters.Skylar is pancreatic sufficient and Ashleigh is not.Ashleigh is also type 1 diabetic and has food allergies.She takes Ultrase enzymes and ADEK vitamins,is fed via NG tube at night and drinks scandishakes(she actually likes the taste of that stuff!)We're debating over a g-tube at the moment. ... (11 replies)
... Hi Seana, First of all, ADEK's is the fat soluble vitamins-adek, thus, its name. And it helps people absorb their fat better.I know they help Jeffrey because it's the only thing that gave him normal bloodwork because he's been anemic for most of his life. Was Courtney ever anemic? I'm so glad she's doing well on the enzymes and has even gained weight. You must be... (14 replies)
... slow down" in production check with your clinic and see what to do for an alternative. Mind you it will cost more out of pocket in most cases by purchasing OTC vitamins vs. prescription vitamins. Mine are taking one a day's for women anyway on top of the ADEK. ... (5 replies)
... He's never been on steroids. He takes digestive enzymes. Vitamins that are higher in ADEK. He's on a couple oral antibiotics. Zithromax, not for infection, but it's used with CFers to treat inflammation issues. ... (9 replies)
... My son has CF and is 22 years old and is serving time in DOC.He has been there now for over 2 years.I have tried to make sure his medical needs are done but I can't get anyone to help me!Just last week he was without his Pancrease pills for 8 days! He lost 6 pounds!! Now they have ran out of his Pulmozyme it has been 7 days now! He has been in DOC for 2 years without a... (3 replies)
... Hi, Thanks very much for the tip.! Agnes (6 replies)
... We live in Canada and ADEK has not been approved here but we get special permission from our hospital. ... (6 replies)
"looks too good"
May 12, 2003
... Hi Susan, How was your mother's day? I hope you had a good one. I had a nice lazy day. Rachel and I stayed in bed watching TV until about 1:30 or so. Anna, slept til about noon. We don't do that very often. My husband and I went on the CF walk this weekend. It was rainy but had an enjoyable time. The girls stayed home, they didn't really need to be out in that weather. No... (15 replies)


Associated Tags: cystic fibrosis, pancreatic insuffecientcy, rickets, vitamin d deficiency

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