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Cystic Fibrosis Board Index
Pages: 1 Showing 1 - 20 of 24 for does my child have cystic fibrosis. (0.021 seconds)

... years old and had started a nebulized medication called pulmozyme, which thins out mucus. When he was a baby and we'd have to use saline and the bulb syringe the mucus up his nose was like thick rubber. Bleah! ... (5 replies)
... covered just about every unknown illness so your family history would not see the name CF in any other generation than your parents.. I carry the recessive gene, my brother was the oldest living CF patient when he passed away at the age of 19 in 1966. ... (5 replies)
... i may be able to help you. hope you contact me. patty, evanston, wy (5 replies)

... Hi there, goodluck in your quest for answers. Just to add the same as ratatoask, absolutely no family history of cf or lung etc issues in either family - so a complete shock at the time. our daughter was diagnosed at 14 months mainly because of recurrent chest/colds etc. she had a fairly constant wet and runny nose for months at a time. she was also constantly hungry - would... (5 replies)
... Oh and absolutely NO family history on either side. Both of us looked wayyyy back in geneology records and couldn't find anything relating cf -- early childhood deaths, lung issues.... (5 replies)
... two sweat tests 35, no family history, no respiratory infections, lots of sinus troubles, adnoids came out still plugged up. At times has snot so thick it is string like and you can actually pull it? Nervous Mom. (5 replies)
... Keep trying...make waves if you have to. ... (3 replies)
... One of my good friends has been diagnosed with Cystic Fibrosis since he was born. ... (2 replies)
... My niece turned thirty this past month. Three days ago she came to see me and said she had recently been diagnosed with cystic fibrosis, based on test results that were shared by her doctor's nurse over the phone. ... (3 replies)
... ies before from people and how frustrating it is to get a diagnosis. People whose children were misdiagnosed with asthma for years. One was a young mother with cystic fibrosis, who wanted to make sure her son was fine. ... (9 replies)
... CF is usually diagnosed through a sweat test when a child exhibits difficulty in gaining weight or recurrent lung infections. My guess is that your friend's child was diagnosed this way, as most children that young are easy to diagnose. ... (7 replies)
... will cause the intestines to bleed. She sent off the stools and it came back posititve for the Rotoavirus. However, the ER doctor said that with the history I have told her about my daughter that she feels confident that my daughter needs to be tested for Cystic Fibrosis. ... (7 replies)
... My brother has CF and is now 23 years young. I am not a carrier of the CF gene but my two sister are. ... (2 replies)
... est physiotherapy, enzymes, etc. Why risk lung damage, etc by waiting another 3 months for a sweat test, which could very well come back as being inconclusive. My son CF, was born with a bowel obstruction and had two blood tests, which indicated he had homozygous delta 508. ... (7 replies)
... ants to believe that there is something wrong with their child. You mentioned that your son showed the D508 gene but as you know by now both you and your partner have to have passed on the gene for your son to have CF. ... (8 replies)
Cystic Fibrosis
Mar 14, 2013
... Hi, I would not worry. I'm 27 with CF and my liver enzymes have been elevated my whole life. I was extremely healthy as a child and never had any issues with CF until I turned about 15 or 16. The key to staying healthy is exercise. ... (2 replies)
... seeking some answers. He has been sick since birth with chronic cough, mucus, difficulty passing stool, acid reflux, milk allergy and recurrent infections. We have been to many diff. doc's and hospitals with many different answers. He does NOT have failure to thrive, though. He weighs 17 pds. ... (1 replies)
Toddler with cf
Jun 28, 2008
... I wanted to give some insight, through my experiences and my research. I also want to make note that I am not a doctor. I am sharing with you my opinions and some of my evidence and findings regarding my research and experience. ... (10 replies)
... Okay, here is a mom's version of the definition of a polymorphism. I'm know the doctors would definately have a more scientific definition. I'm not sure I can tell you exactly what it is but in the case of M470V polymorphism I can tell you what it means to our daughter. ... (10 replies)
Need information
Aug 10, 2002
... My daughter is 10 years old and has cystic fibrosis. ... (2 replies)

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