... and her pulse oximeter reading was 92 which the nurse verified is "on the low side". ... (4 replies)

... My son had one sweat test in the 30's and one in the teens. ... (18 replies)

... Thanks for answering my questions about the fecal elastase and GI bleeding. What would we moms do without each other to bounce things off of? ... (18 replies)

... Hi and thanks for the replies. Well here's the news so far. I saw a family Dr. and he ordered a sweat test and is referring me to a pulmonologist. I haven't had the sweat test done yet but he said sometimes it's not always definitive. I have the genetic blood tests to back it up, though. ... (2 replies)

... Gotcha, thanks for the info. I don't think they are going to do any tests now because the ID doc. said even if they found I had it there wouldn't be anything to do differently. ... (3 replies)

... am and of course I can't sleep right now. Welcome to all the new members I see that have come in my long overdue absence. ... (0 replies)

... so CF is not our issue. He continues to bleed from his lungs and we have not gotten a definitive diagnosis yet. We wish all of you in the CF community the best. ... (4 replies)

... The results we received simply indicated that the gene was present, but no indication of a double or single gene. ... (11 replies)

... they are done with for consults and things like that, but by far specialized care practitioners like nutritionists and RTs see the kids on a much more regular basis. ... (4 replies)