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Cystic Fibrosis Board Index
Pages: 1 2 3 4 5 6 7 Showing 1 - 20 of 134 for kids for cf. (0.024 seconds)


Testing for cf
Jul 20, 2006
... more calories than kids the same age. They need the extra calories because CF affects the digestive system and they don't absorb all of the fat and nutriets in their food. Hope that explains it a little bit. Any more questions, ask away! ... (13 replies)
Testing for cf
Jul 22, 2006
... he biggest challenge I face is having to reprogram my ideas about healthy food. We try to eat healthy, and I have a spouse who watches his fat and salt, and two kids that need lots of fat and salt! ... (13 replies)
Cf clinic Q's
Jul 26, 2005
... We recently moved to a new state and are going to a new CF clinic. At our old clinic our son saw Pulmo, GI, Resp, dietician, nurse, and social work. ... (10 replies)

... on any given day on a whim, how do we know it wouldn't INCREASE by half on any given day on a whim, and then suddenly we go from surely NOT CF to high enough values to confirm CF? ... (18 replies)
Borderline cf
May 16, 2002
... My 9 year old son has had 2 sweat test in 2 weeks both came back borderline for cf. His Dr. has set up DNA testing to start on monday, only 4 days from now but seems like a life time away. The Dr. ... (5 replies)
Testing for cf
Jul 17, 2006
... one with CF and the other two are carriers. None of them ever had the sweat test done. The one with CF presented with symptoms in utero and for the other two we declined the sweat test because we wanted to know carrier status as well. ... (13 replies)
... I was just wondering if any of the parents of kids with CF end up overweight? ... (11 replies)
Testing for cf
Jul 17, 2006
... I know they did a fecal fat test, but i dont know that they did it for 72 hours. did either of you have the sweat test done? ... (13 replies)
Could it be CF?
Dec 13, 2010
... eople wcf have pancreatic insufficiency which can cause malabsorption of fats. So a normal fecal fat test is possible. Being that there are over 1500 mutations for cf symptoms can vary. ... (8 replies)
... Vinniecorabi and bianca, You might want to look into glutathione, crucumin, and olive leaf extract. These things have helped my kids. Kathleen (5 replies)
... School. That's a whole new challenge there. Grade school isn't bad because the teachers have more control of the other kids in class and you usually don't have to worry about the kids smoking cigarettes while waiting for the bus in the morning. In high school, it's not as easy. ... (32 replies)
... somehow that seems to be acceptable in the medical community, but not to a Mother concerned with her childs health. I had to beg my ped. for a sweat test after my 5 month old with pnuemonia started losing weight. I diagnosed him myself by reading on the internet the symptoms of CF. ... (7 replies)
... world. We feel so lucky that we can be the type of parents that stay on top of the disease on behalf of our children. We see a lot of parents that stay in denial for years and they wait to long to be serious about it. God gave us these children so we can fight for them and all the other children and adults with CF. ... (32 replies)
... Not really. There have been great advances in the way CF has been treated in the past 20 years. Drugs like Pulmozyme and Tobi have made it so people with CF can be expected to live well into their 30s and even longer. ... (3 replies)
... stop for 3 days not eating no sleeping. My 4th child a perfect baby girl is 11 weeks old. Well she was hospitalized at 7 week for gastoitus also again ant 10 weeks for the same thing. Between those vistits whe was in for RSV at 9 week. ... (7 replies)
Still depressed
Jun 17, 2003
... e local level. The money raised goes to help fund research in finding a cure. You can either check out your local phonebook, call information or even look up the CF Foundation website for a local contact. Volunteers are a vital. Any person can help in some way. ... (1 replies)
... I wouldnt say medical malpratice either. Although, CF has become a very popular disease now a days, unless its requested to be tested for, its not a mandatory thing. I do agree with being proactive though. ... (7 replies)
... Because CF has so many different degrees it is possible have more problems with g.i. than with lungs. ... (3 replies)
... Wow, I feel for you Anthony. Do you have kids of your own as well? ... (5 replies)
... that's probably kids around 7 or up. Did they do sensitivities on the bacteria? ... (10 replies)


Associated Tags: cystic fibrosis, malpractice, misdiagnosis, teen

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