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Cystic Fibrosis Board Index
Pages: 1 2 Showing 1 - 20 of 35 for my child does not sweat. (0.017 seconds)

... Addressing your question...could the sweat test be wrong. I can say this, if the infant or child does not sweat very much during testing, its possible there could be borderline results or even negative. ... (2 replies)
... I pray your child does not have CF. The symptoms you described could be many different things, but for your piece of mind, CF needs to be ruled out. ... (4 replies)
... I posted a few days ago about my 11 month old son having problems with constipation and rectal prolapse. We visited the doctor yesterday who has ordered a sweat test. Aside from the prolapse, my son does not show any of the other typical symptoms. ... (4 replies)

... You really wouldn't know for sure unless your child had genetic testing -- NOT just testing for the most common mutations. So I would push for either ambry amplified or quest as there are over 1500 CF mutations. Does your child have any digestive issues -- constipation and/or loose frequent stools. Reflux... DS' symptoms are mainly digestive and some sinus issues. DS'... (5 replies)
... chest physiotherapy, enzymes, etc. Why risk lung damage, etc by waiting another 3 months for a sweat test, which could very well come back as being inconclusive. ... (7 replies)
... We took her for a follow up sweat test today and also had blood drawn for the genetic test.... ... (1 replies)
... I know the pain you're going through right now, my 4yr old son was diagnosed a 5 months old. ... (8 replies)
... If per chance he does has CF. You will get through that too. Finding out this early is a good thing, as you can start treating it from the word go and not find out down the track when the damage is done. ... (8 replies)
... cf was not given a name until 1949, until that it was lumped in with "consumtion" which covered just about every unknown illness so your family history would not see the name CF in any other generation than your parents.. ... (5 replies)
... Hi there, goodluck in your quest for answers. Just to add the same as ratatoask, absolutely no family history of cf or lung etc issues in either family - so a complete shock at the time. our daughter was diagnosed at 14 months mainly because of recurrent chest/colds etc. she had a fairly constant wet and runny nose for months at a time. she was also constantly hungry - would... (5 replies)
... Hi, It has been along time since my girls were diagnosed. I will be honest, I have no idea what their numbers were, it's been 13 years since my 16yr old was sweat tested and my 13 yr. old was borderline all three times they tested her from birth to age 2. ... (14 replies)
... her husband WAS a carrier and her son DOES have cystic fibrosis. ... (9 replies)
... stines to bleed. She sent off the stools and it came back posititve for the Rotoavirus. However, the ER doctor said that with the history I have told her about my daughter that she feels confident that my daughter needs to be tested for Cystic Fibrosis. ... (7 replies)
... somehow that seems to be acceptable in the medical community, but not to a Mother concerned with her childs health. I had to beg my ped. for a sweat test after my 5 month old with pnuemonia started losing weight. I diagnosed him myself by reading on the internet the symptoms of CF. ... (7 replies)
... There are people diagnosed later on in life. The "gold standard" for testing for CF used to be the sweat test and a lot of times in the past, if you passed that test, it was determined that you didn't have CF. ... (2 replies)
... Hi, Carriers, as far as I know, do not have CF symptoms. This I know though, You either have CF or you don't. There is no "full blown CF". It is however possible to have CF and not ever know it. ... (4 replies)
... You need to find out immediately what the results mean. Testing positive for the CF gene could mean he's a carrier, or that he does in fact have CF. Please ask whether they found 2 copies or 1. You'll need to contact the doctor and ask specific questions. ... (11 replies)
... My family and i recently found out my 8yr old has CF. we came back neg. on his sweat test three times so we have been on a roller coster of emotions threw out his life. We know now! now we move on.. ... (1 replies)
... I am so glad to see that I am not alone in this journey of understanding what is going on with my child. ... (83 replies)
... he was lucky and his mother to even make it to the next grade in school and her to keep her job because he was sick so much. now he coughs up blood occasionally, not a smoker, he in on Advair and uses a full albuterol canister 2 weeks sometimes once a week.... ... (3 replies)

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