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Cystic Fibrosis Board Index
Pages: 1 2 Showing 1 - 20 of 45 for to do before sweat test. (0.050 seconds)

... First of all, think nothing of the advice you've gotten from others who know so little about CF. CF research has come a loooong way now. Second, about the sweat test. ... (7 replies)
Sweat Test at 122
Oct 22, 2001
... Our 19 month old son had his first sweat test today...result was 122. ... (1 replies)
... Thanks for the response! I am actually sitting in a clinic hoping to not have strep throat, more for Owen's sake than my own, but I am sure you know how that goes! ... (18 replies)

... Ugh, I've heard similar stories before from people and how frustrating it is to get a diagnosis. People whose children were misdiagnosed with asthma for years. ... (9 replies)
... Ambry, Quest and Mayo all I believe test for over 1400 mutations, with deletions. I know of several people who in trying to rule out CF had nasal differential tests. ... (18 replies)
Could it be cf?
Feb 28, 2012
... Uhmmm ! I can say one thing about your concern's. If all has seemed to fail then it would be best to take the "sweat test" which measures the amount of salt in the sweat. You can also do what some have done before the sweat test and lick the childs forhead. ... (2 replies)
... Go with your gut feelings, so what if your wrong, at least you can start to get some answers. If you don't fight for your child no one will. ... (4 replies)
... Hi, It sure sounds like you have been through alot and no real progress. I don't think it is outragous for you to ask your doctors about CF. He will most likely ask why you are asking, if there is any history of CF on either side of the family. ... (20 replies)
... My son is 3 and has had 4 sweat test and the pulminologist called with his last reults and said our son has cf he suspects its a mild case? ... (6 replies)
... n of bricks. It really scared the crap out of me when the doctor called. It's like he said "hey all the other tests are leaning towards Cystic Fibrosis, so we'll do the sweat test just to varify it". I feel angry right now I don't know why. I thought maybe getting on here and typing out would make me feel better. ... (25 replies)
... because they don't really sweat enough to do a good test. We were told this by the CF clinic at Duke University back in 90 when our youngest was born. ... (18 replies)
... sked the dr about it yesterday she said being sweatless is not a symptom of cf so I of course asked if that would have an impact on whether he would even be able to taste salty and she didnt seem to think so. ... (14 replies)
Stool testing
Apr 26, 2005
... She's not doing well on the pulmicort and I'm going to call her doctor tomorrow. ... (3 replies)
... I live in British Columbia and we do not have an accredited cf center although we do have a children's hospital 5 hours away. My pediatrician just did the sweat test on both of my kids. I asked him to do the genetic test and he said he will consider it. I said I didn't care if I had to pay for it. ... (32 replies)
... I agree. Please have the sweat test soon. ... (7 replies)
... I too have a 14 year old! My 7 year old daughter's doctor wants to order a pancreatic elastase test before we do genetic testing for CF. She has confirmed diagnosis of fat malabsorption, but I guess he wants to narrow down the cause of this to the pancreas. ... (18 replies)
... Hello, I am a father with cf childern and I know what it means to fear the unkown. ... (2 replies)
... If worse comes to worse, she could get a bronchoscopy with biopsies done to rule out primary ciliary dykinesia. But before this, they might decide to do a lung CT scan to see if they find any bronchiectasis. ... (2 replies)
... somehow that seems to be acceptable in the medical community, but not to a Mother concerned with her childs health. I had to beg my ped. for a sweat test after my 5 month old with pnuemonia started losing weight. I diagnosed him myself by reading on the internet the symptoms of CF. ... (7 replies)
... Wow, your daughter has been through some difficult times. When was the last time she had a sweat test done? ... (13 replies)

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