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Digestive Disorders Message Board

Digestive Disorders Board Index

I'm going to start all the way at the beginning... I am a 29 year old female who never had any health problems up until January of 2010. At that time I went to the ER with excruciating upper left abdominal pain. They did an ultrasound and said my gallbladder was full of stones. They did a chole within a week. I thought everything was great and was back to myself within a few days post-surgery. About 3 weeks after surgery I started having horrendous pain that had me laying on my bathroom floor in the fetal position crying and screaming for my husband to take me to the hospital. They ran every test on me, did CT and X-ray, and found nothing. Sent me home saying I was probably constipated. This happened a few more times over the next couple of months and it was the same thing each time. I was finally referred to a GI specialist and they sent me to another state for an ERCP where I was diagnosed with sphincter of Oddi dysfunction. I had a stent placed and sent home. About a month later I got pancreatitis and had to have the stent removed.
I thought things were going good and I wasn't having any issues for about a year. Then I started having attacks of pain regularly again. I was back to going to the ER regularly and having to take pain pills all of the time just to manage the attacks. The pain would come out of no where and just knock me off my feet. It always stated the same way, like a sharp burning right in the mid-epigastric area that bore straight through to my back. Sometime it would radiate to my left or right side. This would be accompanied by extreme nausea and sometime diarrhea. In June of 2013 I went back to the specialist the the University of Colorado for another ERCP and this time he did a sphincterotomy. This time I ended up with pancreatitis and a week in the hospital. Again, I felt good afterwards. No more flare ups and I thought things were good. About a month ago I got another attack that landed me in the ER. I got doped up, blood drawn, CT scan, etc. and sent home. 2 weeks later... same thing. Now my GI dr. wants to send me back to Colorado for another Sphincterotomy but I don't know if I want to risk pancreatitis again.
I am scheduled for a CT with contrast this week and an MRI next week because my Doctor is worried about me possibly having chronic pancreatitis now along with the sphincter of oddi dysfunction. The attacks are coming more and more frequently, about every 3-4 hours if I eat, less if I don't eat or drink anything. They last between 30-40minutes. I have levsin, bentyl, norco, and zofran. Nothing seems to really control the pain and I actually think the pain pills cause the attacks to be worse.
Does anyone have any similar experiences? Can anyone give me any hope or advice? Any ideas of what to do for relief of pain? I am a young mother of 3 healthy boys, a soon to graduate nursing student, and this feels like it's taking over my entire life. I need help.

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