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... anky at times. They also did not totally controll his seizures. WHile that is very frustrating, it is even worse on this side of the fence KNOWING he is seizing, while sleeping and I have no medication to help stem the tide of these! ... (24 replies)
... My 10 year old son was diagnosed at the age of 7 with benign rolandic eipilepsy that usually occurs during the phase between the sleep state and the awakened state (my son's occur almost always between 4:30 and 7:00 am). This form of epilepsy is usually outgrown during adolescence (seems changes in neurobiochemistry during this transformation have something to do with it). ... (24 replies)
... Our child is now having difficulty speaking clearly,even when he is not seizing!!!! By the way, our child only has seizures when he is asleep, no other time. ... (24 replies)

Topomax
Nov 30, 2006
... And who's brain are we speaking of here!!! ... (13 replies)
... sholds and would always have seizures with fever. She has grand mal and myoclonic seizures, and is now currently suspected of having temporal lobe epilepsy also. Speaking from experience, I can definitely relate when you use the expression "basket case" but honestly, try not to get totally discouraged... ... (12 replies)
... Dear Nick- I had 2 petite mals in 1999 and also did not want the drugs and went seizure free until 2008 and I had seizures after 2 heart surgeries and a brain bleed, also corrected by surgery. I then began to have grand mals without meds. I had symptoms of the brain bleed brfore these surgeries. Severe migraines, double vision, etc. I believe the brain damege ocurred in... (8 replies)
... Oh dear, that is so close to my story--you are probably right--I was told by the DMV that the doctors are worried about losing their own licenses, so no matter how it is, the fact is you are totally alone with this info. Do not believe the T.v about telling you doctor about side effects--they get you started then this.... (8 replies)
... (8 replies)
... My first seizure happened in January of 2009. I had gone out drinking the night before but it was not binge drinking, just casual drinking while a live band was playing at a bar. I didn't stay out real late and there were no other unusual circumstances present. ... (8 replies)
... was originally prescribed a dose of 100mg twice daily. However, I felt as if I had a lot of short term memory loss and even trouble finding the right words when speaking to others. Because of that I self medicated and started taking 1 less tablet daily, cutting my does to 100mg just before bed. ... (2 replies)
... Yeah... I knew somebody was going to yell at me about not taking the meds.... I try to remember. My problem is that I take them when I go to bed and when I get up in the morning. But some days I'm so ridiculously exhausted by the time I get home (some days it's around 9-10) that I end up falling asleep on the couch and staying there. Which means that I never make it to my... (9 replies)




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