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Eye & Vision Message Board

Eye & Vision Board Index

Hi KayKay!
You mentioned that you have bad skin. Is it possible that you have something called Blepharitis Rosacea? I do not have that (knock wood) but a friend of mine does. Blepharitis is an inflammation of the eyelids and glands. Rosacea is characterized by red cheeks (and possibly dry facial skin, I am not sure.) It's just a thought. It might be worth looking into.

Or you could just have allergic or bacterial blepharitis. That could cause the bumps on your eyelids and/or flaking of the skin around the eyelids.

I have tried all of the over the counter allergy drops. None of them have helped me. Nobody knows what is wrong with me. All they know is that I have the worst case of dry/allergy eyes that anybody has ever seen. Nobody knows what drops to prescribe for me, because everything that my dr gives me either does not work, or causes an allergic reaction. The only thing that helps me with the terrible allergies and dryness is FML. It is a steroid drop. But that is not good, because the use of steroids can raise the pressure in your eyes and make you go blind. I had to stop using it because the pressure went up too high.

Why hasn't anybody prescribed an allergy drop for you other than over the counter ones? I understand why you might feel hopeless, because dry eyes are a terrible thing to deal with. But you have got so many options still available to you (allergy drops, different tear drops, doxycycline, steroid drops, punctal occlusion, etc...). I have tried everything and still not found very much relief. If you want the names of some of the better allergy drops, I can tell you. I won't list them all now because I can't remember all of them off the top of my head.

I am confused... Have you seen an ophthalmologist or an optometrist? It is very important to see an ophthalmologist. Do not go to an optometrist.

I totally understand about the mucus impairing your vision. It does the same thing to me. Plus, I get a ton of discharge from my eyes during the day It splatters all over my glasses. It's hard to see when there is a string of mucus laying on top of your eyeball. Plus, the tears are what reflects light off of the cornea, so when your eyes are dry, the light is not reflected properly and that causes a vision problem. Find a way to make the dryness better, and I bet you that will correct your vision.

You really need to find a good dr who knows what he is doing and who will listen to you.
I have been very ophthalmologist is more wonderful than I could ever have imagined. He has become more of a friend than a dr. I cannot tell you how many times I have gone to his office totally distraught over my eye problems, and he has sat and talked to me. He cares so much about his patients. He has gone so far as to call colleagues from all over the country about me. He has even arranged an appointment for me with the top corneal and dry eye specialist in the country. (I'll be seeing him on January 2). If I need to get in touch with him after hours, I don't bother calling the office, I call him on his cell phone or email him. I have had so many eye emergencies over the past year, that he says he wants me to call him whenever I need him. That really put all of my fears to rest, because now I know that even if I have a problem in the middle of the night, I can get in touch with him. (But I don't abuse the privelege). He opened up his office last year at 11pm on new years day to look at my eye, because I called him crying in pain. I have had so many eye problems that he is on my speed dial. All I can say is that I don't wish a corneal U-L-C-E-R on my worst enemy. I had one last year (new years) and it was the most painful experience of my life. It was so painful that I have become superstitious about even typing the word! (hence, the hyphens!)My right eye was swollen shut for weeks, and I had to use very painful anti-biotic drops around the clock, every half hour. It took almost 2 months of being on the most powerful anti-biotic drops available (obtained from NY Eye & Ear Infirmary) to heal. Be very very careful not to rub your eyes the wrong way, and make sure you keep them nice and lubricated. If you have dry eyes, you are at risk for corneal abbrasions, etc... Do not rub them, and always make sure you keep them lubricated.

Anyway, my dr says he has never seen a case like mine. I have gotten him totally puzzled and perplexed. I've has several second opinions, and they don't know what to do with me either. My dr has even gone so far as to call colleagues around the country about me, and he has also arranged an appointment for me with the world's top corneal specialist. (I'll be seeing him on January 2).

You know, it is so hard when you know that there is something wrong with you, but nobody knows how to treat it. I have tried every eye drop known to man, and NOTHING works for me. I am at the end of my rope when it comes to treatments to try. Sometimes I feel alone too. But you know, I feel better when my doctor says to me "WE are going through a tough time", isntead of just "YOU are going through a tough time". Remember, you are NOT alone! There are lots of us out there with the same problems! I think this message board is the greatest thing in the world, because it has really saved me. I used to get very upset over this, but now I have someplace to come and vent and ask for advice. And I love being able to offer my own advice when possible. :)

I have to ask, have you been tested for something called Sjogren's Syndrome? One of the main symptoms of it is dry eyes.

So anyway, don't despair. Somewhere out there is a cure for both of us. I'll be seeing the top corneal specialist in the world this coming thursday (WOOO HOOOO!!!!!) I will let you know if he comes up with a treatment for me.

Until then, good luck and have a happy, HEALTHY new year!

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P.S. The one thing that has helped me tremendously is sleeping with a warm mist humidifier in my bedroom. This keeps the room air nice and moist during the night. It must be a germ-free warm mist humidifier, such as the ones made by "Slant/Fin". The ones that they make have ultra-violet lights that prevent mold and dust from being released into the air. Cold mist humidifiers can cause mold, which can cause allergies and illness. I strongly recommend that you get a humidifier. I used to wake up in the middle of the night with eye pain from dryness, but no more since I have started using the humidifier. I have tried other brands, but Slant/Fin is the top of the line.

[This message has been edited by purple2067 (edited 12-30-2002).]

[This message has been edited by purple2067 (edited 12-30-2002).]

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