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Hearing Disorders Message Board


Hearing Disorders Board Index


Hello all, just joined this health board as i think i've just about read everything on the internet and are no further on. Can somebody please let me know if my symptoms are normal please.
I was virtually deaf in one ear and very little hearing in the other ear, have worn hearing aids for 25 years. Recently (all happened so quickly, within 6 weeks) got diagnosed with Otosclerosis in both ears. 6 weeks after seeing doctor, i had the op. I had a stapedectomy/stapedotomy on 04/01/2016. Noticed a faint improvement in hearing when lying on the ward after the op, could faintly hear trolleys being moved about. But nothing drastic...... I've had dizziness, (not room spinning dizzyness) which now only remains if i read, do jigsaws, scan shop shelves from side to side etc, weird! I've been through the heart pulsating, creaking, the rain dripping onto a metal plate sound etc.
I've had no real explanation of what to expect, i didn't really ask the surgeon any questions as i wasn't sure what would happen after and was unaware i'd have so many unanswered questions come up.
I assumed, and read some on the internet, and was told by a friend who'd had it done, that once the packing was removed, i'd be able to hear. Had packing removed 6 days ago, i'd built myself up SO much, that i stood and sobbed when i still couldn't hear! Surgeon looked a bit puzzled, but he said he wasn't worried at this point and to see him again in 6 weeks and that it'd be fluid behind my ear. He said i need to have some popping before i'll hear.
So, here i am now, with no change in my hearing for the last 6 days. I'm sure when i swallow, i sound as if fluid is in there? I also get like a thunder noise mainly in the morning when i wake up and my throat moves. But what's worrying me most after reading up on the internet again, is when i put headphones on, i can hear the music, (have to have it on loud to hear it), but the loud thumps/beats in the music make my ear crackle like a loose wire on a radio. I read last night that this is because the op hasn't worked and the prostesis needs tightening/shortening/revising. But then on the other hand i've read that this may be normal??
If i go to do a burp movement when i have music in the headphones, i get a milli second of a loud noise, but then it goes again as my throat can't seem to hold the noise open if you get what i mean. I have soooo many questions but don't want to bore you with them, maybe later. So, should i be hearing by now, is the crackling loose wire sound normal, and if you have any other advice that might stop me worrying please. I'm just sitting waiting day by day thinking today might be the day that i hear......but it never comes :-( Thank you.
[QUOTE=Sandra J;5401515]Hello all, just joined this health board as i think i've just about read everything on the internet and are no further on. Can somebody please let me know if my symptoms are normal please.
I was virtually deaf in one ear and very little hearing in the other ear, have worn hearing aids for 25 years. Recently (all happened so quickly, within 6 weeks) got diagnosed with Otosclerosis in both ears. 6 weeks after seeing doctor, i had the op. I had a stapedectomy/stapedotomy on 04/01/2016. Noticed a faint improvement in hearing when lying on the ward after the op, could faintly hear trolleys being moved about. But nothing drastic...... I've had dizziness, (not room spinning dizzyness) which now only remains if i read, do jigsaws, scan shop shelves from side to side etc, weird! I've been through the heart pulsating, creaking, the rain dripping onto a metal plate sound etc.
I've had no real explanation of what to expect, i didn't really ask the surgeon any questions as i wasn't sure what would happen after and was unaware i'd have so many unanswered questions come up.
I assumed, and read some on the internet, and was told by a friend who'd had it done, that once the packing was removed, i'd be able to hear. Had packing removed 6 days ago, i'd built myself up SO much, that i stood and sobbed when i still couldn't hear! Surgeon looked a bit puzzled, but he said he wasn't worried at this point and to see him again in 6 weeks and that it'd be fluid behind my ear. He said i need to have some popping before i'll hear.
So, here i am now, with no change in my hearing for the last 6 days. I'm sure when i swallow, i sound as if fluid is in there? I also get like a thunder noise mainly in the morning when i wake up and my throat moves. But what's worrying me most after reading up on the internet again, is when i put headphones on, i can hear the music, (have to have it on loud to hear it), but the loud thumps/beats in the music make my ear crackle like a loose wire on a radio. I read last night that this is because the op hasn't worked and the prostesis needs tightening/shortening/revising. But then on the other hand i've read that this may be normal??
If i go to do a burp movement when i have music in the headphones, i get a milli second of a loud noise, but then it goes again as my throat can't seem to hold the noise open if you get what i mean. I have soooo many questions but don't want to bore you with them, maybe later. So, should i be hearing by now, is the crackling loose wire sound normal, and if you have any other advice that might stop me worrying please. I'm just sitting waiting day by day thinking today might be the day that i hear......but it never comes :-( Thank you.[/QUOTE]

Hi Sandra,
My first visit back in many years and I read your oh so familiar tale.
5 years ago for me, Yep my surgeon gave me no indication of what to expect either. I suppose how could he, he hasn't the condition or given himself the op....

Cheer up it's good news, promise. I know, maybe not for me though you're thinking that's what I thought too.
I had my right ear done, if you search my old posts you'll see my diary over the days, weeks and months. Sounds like you skipped the vertigo, well done. It's truly awful days of spinning and wobbling, like being drunk without the benefits....I had no eureka and no real improvement just crackles pops whooshing.... for what seemed like ages much longer than other people.
Slowly it'll improve and I mean slowly. You can't watch the hands of the clock waiting for something, I did unfortunately and got very very bored. After 2-3 months that's when I really felt all round better. 6 months as advised you're there all healed and as good as you're going to get. So I hear a lot better not perfectly but definitely a lot better. Think my tinnitus got a little worse in that ear as a result... Oddly conversation in noisy environments like pubs was awkward for quite a while years even but again that's not a problem either now. Found it hard to differentiate against the other conversations around me.
Truly early days and you've struck gold, people who've been there seen it done it, worried themselves crazy and finally got the tour jacket... you'll be pleased you did it.





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