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Well, I've been back to the doc to try and get my ear(s) fixed. *sigh of eternal distress* I now feel completely hopeless and despondent.

I wrote a post yesterday about how for several months my ears (particularly the right) had been blocked on and off (like in the morning after sleeping with the ears pushed into the pillow, etc), and so finally I went and got them syringed. I was expecting to finally be able to hear properly again, as had happened the other 5 or so times I'd had them syringed.

But oh no. NO NO NO. The opposite. The left ear I think is ok but I can't even tell anymore. The right ear...is just abysmal. All blocked and weird. I've never experienced anything like this before in my life and it's depressing me so much. I feel I can't interact properly in the world, like I'm apart from everything around me, like I can't see because I can't hear properly...I can't judge where or how far away sounds are, I can't enjoy any TV shows cause I feel I can't hear them properly and so I tend to lose focus and get distracted and upset. My own voice sounds ODD in my own head and particularly when I hum, it sound SO weird.

At first it felt like there was just a HEAP of water in there from the syringing, but no, it was all dry. This concerned me, but I thought it'd be alright.

Anyway, so I went to the doctor again and he said there's nothing wrong in the ear canal, all 100% clear and any blockage has to be from behind the ear drum, so in the eusthachian tube. *sigh* I'd heard of this before, and sort of always associated it with having a cold and that feeling of your ears not being quite right. But that feeling is NOT the same is THIS feeling, not at ALL.

This is like there's water in my BRAIN! Whenever I move my head side to side, and particularly up and down, there's this loud sort of crackling noise in my ear sort of like plastic wrap or paper towel/cloth being scrunched up. Sort of hard to describe. It also feels like something is actually moving when I do this.

When I walk, with every single step, there's a deep thudding sort of echo noise which is very annoying and uncomfortable.

Last night I woke up feeling nauseous and uncomfortable in my head. It's hard to describe, but I felt I had to get away from my own body and that I was all squeamish. Horrible.

So...the doc said I have to use decongestants and try steam type things, nasal spray...but will this actually work?? I have my doubts. Firstly, I've had colds before and never got this. Secondy, I have not had a cold in MONTHS so why would this happen now? Thirdly, why would it happen so suddenly, immediately after the ear syringing? AND I do not FEEL congested anywhere, in my nose or sinuses or whatever. So how could this be right???

I DO have sniffles and have to blow my nose every morning when I get up...would this contribute? Sometimes I sneeze a lot. Would this do anything? I think it could, however I STILL don't understand why the ear syringing has done this...it must have been that. It's too sudden to be anything else.

I thought there was water behind my ear drum (which apparently is healthy, which is good I guess), but he said no, this could only happen if there was a hole, which there is not (apparently).

Does anyone have anything to say about this!? I do NOT want surgery that may not even work anyway.

Is there anything possible it may be?? I can't even sing. I LOVE singing and feel I can't do it anymore now cause I can't tell how loud my own voice, or the music is. *sigh of sorrow* I also have to really try to sing in tune now too, to make sure I can hear myself and the music. It's like I've lost the fine/subtle hearing I used to have.

Oh, one more thing - I had been experienced brief episodes of vertigo for about a year before this, but never associated it with anything like this. I'd just suddenly feel like I was falling if I moved my head even a little to the side or whatever and like I couldn't walk in a straight line, and sort of feel like I couldn't feel where I was in relation to my surrondings. Then I'd be fine again.

Another thing - I've had slight tinnitus for about a year too...I thought this was just my own fault, as I tend to listen to my iPod REALLY loud.

ONE last thing (sorry! I just am really distressed by this. It's all I can think about!) is that when I'm on the phone and have headphones in, things sound almost normal. Why would this be!? It's only when I take them off, the headphones or get off the phone, that things go back to sounding weird again. :confused:

Ok well, that's it. *sigh* PLEASE someone, help if you can. Anything will be appreciated.
[QUOTE=stevie_23]Well, I've been back to the doc to try and get my ear(s) fixed. *sigh of eternal distress* I now feel completely hopeless and despondent.

I wrote a post yesterday about how for several months my ears (particularly the right) had been blocked on and off (like in the morning after sleeping with the ears pushed into the pillow, etc), and so finally I went and got them syringed. I was expecting to finally be able to hear properly again, as had happened the other 5 or so times I'd had them syringed.

But oh no. NO NO NO. The opposite. The left ear I think is ok but I can't even tell anymore. The right ear...is just abysmal. All blocked and weird. I've never experienced anything like this before in my life and it's depressing me so much. I feel I can't interact properly in the world, like I'm apart from everything around me, like I can't see because I can't hear properly...I can't judge where or how far away sounds are, I can't enjoy any TV shows cause I feel I can't hear them properly and so I tend to lose focus and get distracted and upset. My own voice sounds ODD in my own head and particularly when I hum, it sound SO weird.

At first it felt like there was just a HEAP of water in there from the syringing, but no, it was all dry. This concerned me, but I thought it'd be alright.

Anyway, so I went to the doctor again and he said there's nothing wrong in the ear canal, all 100% clear and any blockage has to be from behind the ear drum, so in the eusthachian tube. *sigh* I'd heard of this before, and sort of always associated it with having a cold and that feeling of your ears not being quite right. But that feeling is NOT the same is THIS feeling, not at ALL.

This is like there's water in my BRAIN! Whenever I move my head side to side, and particularly up and down, there's this loud sort of crackling noise in my ear sort of like plastic wrap or paper towel/cloth being scrunched up. Sort of hard to describe. It also feels like something is actually moving when I do this.

When I walk, with every single step, there's a deep thudding sort of echo noise which is very annoying and uncomfortable.

Last night I woke up feeling nauseous and uncomfortable in my head. It's hard to describe, but I felt I had to get away from my own body and that I was all squeamish. Horrible.

So...the doc said I have to use decongestants and try steam type things, nasal spray...but will this actually work?? I have my doubts. Firstly, I've had colds before and never got this. Secondy, I have not had a cold in MONTHS so why would this happen now? Thirdly, why would it happen so suddenly, immediately after the ear syringing? AND I do not FEEL congested anywhere, in my nose or sinuses or whatever. So how could this be right???

I DO have sniffles and have to blow my nose every morning when I get up...would this contribute? Sometimes I sneeze a lot. Would this do anything? I think it could, however I STILL don't understand why the ear syringing has done this...it must have been that. It's too sudden to be anything else.

I thought there was water behind my ear drum (which apparently is healthy, which is good I guess), but he said no, this could only happen if there was a hole, which there is not (apparently).

Does anyone have anything to say about this!? I do NOT want surgery that may not even work anyway.

Is there anything possible it may be?? I can't even sing. I LOVE singing and feel I can't do it anymore now cause I can't tell how loud my own voice, or the music is. *sigh of sorrow* I also have to really try to sing in tune now too, to make sure I can hear myself and the music. It's like I've lost the fine/subtle hearing I used to have.

Oh, one more thing - I had been experienced brief episodes of vertigo for about a year before this, but never associated it with anything like this. I'd just suddenly feel like I was falling if I moved my head even a little to the side or whatever and like I couldn't walk in a straight line, and sort of feel like I couldn't feel where I was in relation to my surrondings. Then I'd be fine again.

Another thing - I've had slight tinnitus for about a year too...I thought this was just my own fault, as I tend to listen to my iPod REALLY loud.

ONE last thing (sorry! I just am really distressed by this. It's all I can think about!) is that when I'm on the phone and have headphones in, things sound almost normal. Why would this be!? It's only when I take them off, the headphones or get off the phone, that things go back to sounding weird again. :confused:

Ok well, that's it. *sigh* PLEASE someone, help if you can. Anything will be appreciated.[/QUOTE]

hello,
your symptoms could be related to a few different conditions. they are not easy to diagnose....but i will help you anyway i can.
your symptoms sound a lot like how mine started.
the symptoms that you describe, thudding, movement, crackling....can you describe this a bit more?
when you say your voice sounds off, is it loud like a megaphone in your head?
or just a vibrational type of sensation?
if i can tell you any advice its this, no more ents you need a neurotoligist....where do you live?
take some time and look up tensor tympani syndrome, middle ear myoclonus and stapedial myoclonus.
the actual feeling of something moving and causing the sounds you are describing above....could very well be, it was for me. the middle ear muscles have gone haywire. the tension in these tendons can create vertigo or dizziness, the also cause a water sensation and fullness....i had it horrible.
hope this helps!
lib
Thanks for your help with this.

It's a bit hard to describe the symptoms/sounds in my ear...it just sounds, whenever I move my head even a bit from side to side and especially back and forward/up and down, like a sort of crunching/scrunching like a soft paper towel or cloth being crinkled/scrunched up and then relaxing itself...or sort of like soap suds when they start to go down, you know that sound?

This sound is different to the thudding deep sound I get when I walk and also move my head (like slight nodding). The above sound is quite light and not at all deep, whereas the thudding is more like a heavy echo, though I find this less noticeable today. Not sure if this is an improvement or if I'm just getting used to it.

The voice thing is also slightly less extreme today. It just sort of sounds very muffled in my own head whenever I talk but at the same time sort of louder. And yet this is only really noticeable to me when I hum or say "mm" or "hmm" (hum sounding words) and also when talking in lower tones (in terms of both volume and also pitch). If I speak louder and in a higher voice, it's less strange in my head. It sounds more external like it should, and less like my voice is confined inside my head.

I live in Australia, on the Gold Coast. Not sure about where any ENTs or whatever are here, I've not gone to one yet.

What I just dont understand mostly about all this is that it was SO sudden. I mean, I was fine (bit of wax causing hearing loss, which I'd had before several times in my life, though not for the past 4 years) and then got the syringe done, and then BAM, this begins and doesn't go away. *sigh* This is what confuses me. I don't see how anything anyone has suggested could start so suddenly.

If it IS a blocked eustachian tube, well...in that case I basically can look forward to feeling this way forever, as how I see it is that I have not had a cold for ages and there is no reason why this would happen (and so suddenly) right NOW. I've not been on a plane since December, and even when I do fly my ears are fine. Barely any discomfort or popping and what there is, I can fix with simple swallowing. So why would this suddenly start now? It just makes me think, well, if ever I do get a cold or fly, Im doomed and it'll be even worse!

I am just so confused.





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