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Hearing Disorders Message Board


Hearing Disorders Board Index


Ok, this is gonna be really long, so just bear with me if you can. I have been having problems for at least 3 yrs now and my doc has finally come to the conclusion that I might have otosclerosis. I started having problems with my ears always feeling like they need to be popped, (like I'm on the top of a mountain), probably about 2 or 3 yrs ago. I went to the ear doc and he said that I had retracted eardums and put me on nasal spray. It didn't feel like it helped much, but when i went back the doc he said the eardrums were back to normal. Well, that feeling of needing to be popped never went away and actually got worse over the next 6-9 months. It got to where I was always opening my jaw really wide to get a little relief. (When i open my jaw really wide, I hear and feel this crackling popping noise, and it feels like it opens my ears a little. But only for a second. So I end up doing this over and over...) And It felt like my ears were hurting inside my head. The whole area around my ears and my jaw joint would hurt and ache. Went back to the ear doc and this time during the exam he put his hands on my jaw joint next to my ears (TMJ) and told me to open wide. He said that I had TMJ disorder and that's what was causing my ear problems. He referred me to a TMJ Specialist two hours away. Saw him, he said that I grind my teeth at night and gave me a nightgaurd and things started getting a little better as far as the pain was concerned. But my ears still felt all screwed up, like they need to be popped. The TMJ doc said sorry, can't help you there. So I dealt with it for a year, to see if the gaurd would starting helping more with the ears, but it didn't. Finally went back to the ear doc again a few months ago and he did hearing tests and said that I have some hearing loss that might be from Otosclerosis, but that I also have signs of eustation tube dysfunction. He put a cut in my right eardrum, to see if I needed tubes and the ear felt better as soon as he cut it (release of pressure as soon as the blade hit it). So he put in tubes and my ears really didn't feel much better 2 weeks later. They still felt like they needed to be popped. So he put a patch over one of the tubes, to see if I wanted them out and it felt horrible! I didn't realize how much the tubes had helped until he did that! So I defenetely have some eustation tube dysfunction and want the tubes to stay in. He also did another hearing test with the tubes in and my ears and I still have hearing loss. And my ears still feel like they need to be popped all the time. So now he is sending me to an ear doc at Stanford University, who specializes in Stapoid Surgery. I am scheduled for surgery July 13th. My ear doc isn't for sure that I have otosclerosis, but he said this doc should be able to figure it out. Sorry this is soo long, but does anyone with otosclerosis have any of these symptoms? I am getting so frustrated with this!





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