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Hearing Disorders Message Board

Hearing Disorders Board Index

:dizzy: I had posted this under a different title, thought maybe if I change the title more people will actually look at this post...Ok, this is gonna be really long, so just bear with me if you can. I have been having problems for at least 3 yrs now and my doc has finally come to the conclusion that I might have otosclerosis. I started having problems with my ears always feeling like they need to be popped, (like I'm on the top of a mountain), probably about 2 or 3 yrs ago. I went to the ear doc and he said that I had retracted eardums and put me on nasal spray. It didn't feel like it helped much, but when i went back the doc he said the eardrums were back to normal. Well, that feeling of needing to be popped never went away and actually got worse over the next 6-9 months. It has gotten to where I am always opening my jaw really wide to get a little relief. (When i open my jaw really wide, I hear and feel this crackling popping noise, and it feels like it opens my ears a little. But only for a second. So I end up doing this over and over...) And It felt like my ears were hurting inside my head. The whole area around my ears and my jaw joint would hurt and ache. Went back to the ear doc and this time during the exam he put his hands on my jaw joint next to my ears (TMJ) and told me to open wide. He said that I had TMJ disorder and that's what was causing my ear problems. He referred me to a TMJ Specialist two hours away. Saw him, he said that I grind my teeth at night and gave me a nightgaurd and things started getting a little better as far as the pain was concerned. But my ears still felt all screwed up, like they need to be popped. The TMJ doc said sorry, can't help you there. So I dealt with it for a year, to see if the gaurd would starting helping more with the ears, but it didn't. Finally went back to the ear doc again a few months ago and he did hearing tests and said that I have some hearing loss that might be from Otosclerosis, but that I also have signs of eustation tube dysfunction. He put a cut in my right eardrum, to see if I needed tubes and the ear felt better as soon as he cut it (release of pressure as soon as the blade hit it). So he put in tubes and my ears really didn't feel much better 2 weeks later. They still felt like they needed to be popped. So he put a patch over one of the tubes, to see if I wanted them out and it felt horrible! I didn't realize how much the tubes had helped until he did that! So I defenetely have some eustation tube dysfunction and want the tubes to stay in. He also did another hearing test with the tubes in and my ears and I still have hearing loss. And my ears still feel like they need to be popped all the time. So now he is sending me to an ear doc at Stanford University, who specializes in Stapoid Surgery. I am scheduled for surgery July 13th. My ear doc isn't for sure that I have otosclerosis, but he said this doc should be able to figure it out. Sorry this is soo long, but does anyone with otosclerosis have any of these symptoms? I am getting so frustrated with this!
CCC: I looked up patulous eustachian tubes (the first article in the list was by my doc, Dr.Hoffman) and I do have a lot of those symptoms, but like you it doesn't help to put my head down. Nothing seems to help my ears feel normal except opening my jaw wide, over and over and over...Sometimes when I just swallow it makes my ears have that popping/relief of pressure feeling. I had problems with autophony in my right ear right after I had the tubes put in, but it seems to be getting better(or maybe I'm just getting used to it...) I have been through two pregnancies, I have also had a large weight loss (I used to be 200 lbs, now I'm 130), so maybe this is really it. I guess I need to call Dr.Hoffman and see if he thinks this could be it. Oh yah, I also have a lot of pain from this...the pain is in my head, the area around my ears/tmj and on my bad days pretty much the whole bottom half of my head hurts, causing horrible headaches. (It's really hard to explain..)
I live in California, so seeing Dr.Poe is out of the question. I am scheduled for stapes surgery for otosclerosis in Sept with a doc at Stanford, but Dr.Hoffman says that he's not positive I have otosclerosis. (The ear feeling like it always needs to be popped isn't a symptom of that.) The doc at Stanford won't even know for sure until he actually gets into my ear. Does PET cause actual hearing loss? That's why Dr.Hoffman thinks I have otosclerosis, because of my hearing loss. Maybe I have both?....Thank you everyone for all your comments! This has been driving me nuts for soo long now that's it's really starting to depress me! Any help is greatly appreciated!

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