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Hello...

I am going nuts because for the past month or so I have had light crackling sound in my right ear off and on. It sounds a little like soap bubbles popping. I am not noticing any other symptoms like vertigo, etc. Does anyone know what this could be?

thanks!
Carey
Dear cburres,

I've had a condition a couple of times where it sounded like a wax paper was being crinkled inside one of my ears. I believe it to a harmless condition and is (my guess) the remains of fluid that has dried in the ears leaving a residue which creates the crinkling or popping sound.

Hope this helped.
I HAVE THAT IN MY LEFT EAR AND IT IS SUPER ANNOYING WHEN I LISTEN TO MUSIC OR WATCH MOVIES WITH MY HEADPHONES HOW THE HELL DO I GET RID OF IT!?:confused:
this crackling or sound could be myoclonus of a middle ear muscle....look it up.
*myoclonus*:

Noun
A sudden twitching of muscles or parts of muscles, without any rhythm or pattern, occurring in various brain disorders.

I know what thats like I somtimes feel my eardrum twitch very rairly though I get more of a cracking sound and I can feel it.
Lib,

I have been following this thread and your story as well as others for some time now. I was hoping you might be able to give some advise if your still out there. I, like many others have been suffering with many ear symptoms for a long time with very little help from any doctors. I have been misdiagnosed and treated for many things that I don't have. It's been extremely frustrating and I need some concrete answers. I know you and others have received a lot of help from sismanis and poe. I have contacted them but have not made an appointment due to their location (I am in IL). So far I have been diagnosed with a sinus infection, occipital neuritis, tmj, depression and allerfies. I've had a brain MRI and a CT scan of the sinuses which all came back normal. Each of these treatments were months long. I did see a specialist (ENT) in Iowa who diagnosed me with palatal myoclonus and I received botox injections into the palate. This relieved the clicking in my left ear only. The other symptoms still remain. Here goes: ear pain and pressure, headaches (right side mainly, temple worse), ears popping/crackling on their own and when yawning and swallowing, autohpony that comes and goes and can usually be corrected when leaning forward, stiffness in neck, shoulders and jaw, fatigue, lightheadedness, throbbing nostrils scalp sensitivity, clicking noises when speaking , and ears crackle with loud sounds. I know, it seems ridiculous to have so many symptoms. You seem like your very well versed in this area. Do you think either of the doctors could help me. I'm desperate. Your input would be greatly appreciated. Thank you for sharing your experience with all of us, it helps tremendously.

Jen:)
[QUOTE=jennifer24;3195987]Lib,

I have been following this thread and your story as well as others for some time now. I was hoping you might be able to give some advise if your still out there. I, like many others have been suffering with many ear symptoms for a long time with very little help from any doctors. I have been misdiagnosed and treated for many things that I don't have. It's been extremely frustrating and I need some concrete answers. I know you and others have received a lot of help from sismanis and poe. I have contacted them but have not made an appointment due to their location (I am in IL). So far I have been diagnosed with a sinus infection, occipital neuritis, tmj, depression and allerfies. I've had a brain MRI and a CT scan of the sinuses which all came back normal. Each of these treatments were months long. I did see a specialist (ENT) in Iowa who diagnosed me with palatal myoclonus and I received botox injections into the palate. This relieved the clicking in my left ear only. The other symptoms still remain. Here goes: ear pain and pressure, headaches (right side mainly, temple worse), ears popping/crackling on their own and when yawning and swallowing, autohpony that comes and goes and can usually be corrected when leaning forward, stiffness in neck, shoulders and jaw, fatigue, lightheadedness, throbbing nostrils scalp sensitivity, clicking noises when speaking , and ears crackle with loud sounds. I know, it seems ridiculous to have so many symptoms. You seem like your very well versed in this area. Do you think either of the doctors could help me. I'm desperate. Your input would be greatly appreciated. Thank you for sharing your experience with all of us, it helps tremendously.

Jen:)[/QUOTE]

hi jen,
i can relate to a ton if not almost all symptoms. one thing you need to figure out is do you have true autophony? do you hear your voice loud like a megaphone? i do think dr poe and sismanis can get to the bottom, a huge clue here is that the botox helped, it would not help in a case of p e t and botox can actually cause pet if the muscle is frozen too much. the fact that you react to outside sounds is another clue, i did too, dr poe said that is not a p e t symptom. i would put money on myoclonus. tell me jen how did this all start for you? i would like to compare notes.
Thanks!
libby
I also been suffering from an ear problem in my left ear for about 2.5 years. My symptoms mostly include a popping when I burp or yawn and a constant clicking at night when I swallow. The symptoms seem to be described in Palatal Myoclonus. I was diagnosed with PET and then that changed to ETD. I have seen several ENTS including Dennis Poe in Boston. Unfortunately when I saw Dr Poe, the symptoms were not bad, so my visit was not effective. I did have a tube placed last November, and that did not help. My hearing seems to be fine, and the ENTS so not seem to notice anything. I have been on steroids and nsal decongestants and acid reflux meds--nothign seems to help

Any advice?
Lib,

I emailed Sismanis in Richmond and he emailed back sating he would be gald to scheduel an appointment. Do you think I shoudl try to see someone at Duke first. It is frustarting to go to the ENTS and it seems to be the same routine--hearing test, a look in the ear etc. Is the guy in Richmond good?
[QUOTE=lib;3202547]hi jen,
i can relate to a ton if not almost all symptoms. one thing you need to figure out is do you have true autophony? do you hear your voice loud like a megaphone? i do think dr poe and sismanis can get to the bottom, a huge clue here is that the botox helped, it would not help in a case of p e t and botox can actually cause pet if the muscle is frozen too much. the fact that you react to outside sounds is another clue, i did too, dr poe said that is not a p e t symptom. i would put money on myoclonus. tell me jen how did this all start for you? i would like to compare notes.
Thanks!
libby[/QUOTE]

Hi Libby,

So glad to hear that you're still out there:angel: In regards to my autophony, yes I hear my voice and breath in my head and it sounds as if it's amplified. It makes it very difficult to speak and have a conversation but does not interfere with my hearing at all. It has not remained open (my e.t.) for any longer than a few minutes since last Fall. Last fall my e.t. would stay open for hours and lying down wouldn't even help. Now, when it happens, and it happens a lot in the a.m. and when I'm trying to speak loudly, it will subside though if I bend over (head lower than heart) or lay down. I only experience the autophony in my left ear and have never had it in my right. It has gotten worse in my left since the botox though. The botox did help my right ear as far as the clicking and crackling are concerned. There is still pressure though. As far as what caused all of this, I only wish I knew! It happened about 4 months after moving from CA to IL 19 months ago. At first I thought it could be allergies or something due to the new climate. The autophony was my first symptom other than some pain in my lower traps. I of course asked the doctor about it and he told me there was nothing wrong with my ears. Symptoms progressively got worse and over the last 19 months I've seen 3 family docs, 3 ent's, 1 facial pain specilaist, 1 neurologist and a physical therapist. I've been put on drugs for sinus infections, allergies, migraines, drugs to help me sleep, drugs to relax my muscles, a mouthpiece for tmj and drugs also for depression. I think some of this may have caused the myoclonus. The clicking did'nt begin until late last summer after trying to ween myself off of some of these drugs. I was taking at one point 7 different meds a day and I think one of the worst, for me anyway, was effexor. It was very difficult to stop and had a lot of side effects. I also for a very short time took Zanax. The doctors tell me weight loss couldv'e caused this and I did lose about 17 lbs. on the effexor. I completely lost my appetite. The ent that diagnosed the palatal myoclonus wants to put me on clonazapam to get rid of the remaining clicking in my left ear but I am very apprehensive. It seems like every time I try something new something else goes wrong. I have'nt filled the prescription and don't know if I will. I'm sure you've heard the same as me, that stress, weight loss and psy meds can cause this but who really knows? Do you think it is possible to have pet in one ear and other conditions in the other? Do you have any idea what caused yours? I'm so glad you found help and are doing better. I can't wait until I am. By the way did you experience any fatigue? I am so tired all the time. Anyway, looking forward to hearing from you and thanks for listening.

Jen
[QUOTE=sirarchibald;3207070]Lib,

I emailed Sismanis in Richmond and he emailed back sating he would be gald to scheduel an appointment. Do you think I shoudl try to see someone at Duke first. It is frustarting to go to the ENTS and it seems to be the same routine--hearing test, a look in the ear etc. Is the guy in Richmond good?[/QUOTE]

yes hes is top notch!!!! i would see him! he is awesome!
[QUOTE=jennifer24;3211672]Hi Libby,

So glad to hear that you're still out there:angel: In regards to my autophony, yes I hear my voice and breath in my head and it sounds as if it's amplified. It makes it very difficult to speak and have a conversation but does not interfere with my hearing at all. It has not remained open (my e.t.) for any longer than a few minutes since last Fall. Last fall my e.t. would stay open for hours and lying down wouldn't even help. Now, when it happens, and it happens a lot in the a.m. and when I'm trying to speak loudly, it will subside though if I bend over (head lower than heart) or lay down. I only experience the autophony in my left ear and have never had it in my right. It has gotten worse in my left since the botox though. The botox did help my right ear as far as the clicking and crackling are concerned. There is still pressure though. As far as what caused all of this, I only wish I knew! It happened about 4 months after moving from CA to IL 19 months ago. At first I thought it could be allergies or something due to the new climate. The autophony was my first symptom other than some pain in my lower traps. I of course asked the doctor about it and he told me there was nothing wrong with my ears. Symptoms progressively got worse and over the last 19 months I've seen 3 family docs, 3 ent's, 1 facial pain specilaist, 1 neurologist and a physical therapist. I've been put on drugs for sinus infections, allergies, migraines, drugs to help me sleep, drugs to relax my muscles, a mouthpiece for tmj and drugs also for depression. I think some of this may have caused the myoclonus. The clicking did'nt begin until late last summer after trying to ween myself off of some of these drugs. I was taking at one point 7 different meds a day and I think one of the worst, for me anyway, was effexor. It was very difficult to stop and had a lot of side effects. I also for a very short time took Zanax. The doctors tell me weight loss couldv'e caused this and I did lose about 17 lbs. on the effexor. I completely lost my appetite. The ent that diagnosed the palatal myoclonus wants to put me on clonazapam to get rid of the remaining clicking in my left ear but I am very apprehensive. It seems like every time I try something new something else goes wrong. I have'nt filled the prescription and don't know if I will. I'm sure you've heard the same as me, that stress, weight loss and psy meds can cause this but who really knows? Do you think it is possible to have pet in one ear and other conditions in the other? Do you have any idea what caused yours? I'm so glad you found help and are doing better. I can't wait until I am. By the way did you experience any fatigue? I am so tired all the time. Anyway, looking forward to hearing from you and thanks for listening.

Jen[/QUOTE]

hi jen,
i am not a dr, but in my opinion i do not think it is likely to develop 2 very rare conditions at the same time, i think one condition causes the symptoms.
did they see your palate move jen? dr poe told me that myoclonus can cause p e t like symptoms, and that makes sense. they think mine was caused by a virus thar attacked the cranial nerves. i was very tired from the depression, and i can imagine you are as a side effect from the drugs. i do know someone who takes clonzepam and it helps them, i am on nothing though.
my symptoms were there when i laid down. does anything help? alcohol helps me as it relaxes the muscles...
lib
[QUOTE=lib;3212350]hi jen,
i am not a dr, but in my opinion i do not think it is likely to develop 2 very rare conditions at the same time, i think one condition causes the symptoms.
did they see your palate move jen? dr poe told me that myoclonus can cause p e t like symptoms, and that makes sense. they think mine was caused by a virus thar attacked the cranial nerves. i was very tired from the depression, and i can imagine you are as a side effect from the drugs. i do know someone who takes clonzepam and it helps them, i am on nothing though.
my symptoms were there when i laid down. does anything help? alcohol helps me as it relaxes the muscles...
lib[/QUOTE]

Hello again Lib,

Yes, the ent can see my palate move. I went back for a follow up appt. on Thursday and the right side is completely paralyzed from the botox but he can still see the left side moving a bit which makes sense since I am still getting the clicking on that side. I am a little confused in regards to the pet though because I hadn't experienced much of the pet symptoms for many months but after getting the botox the autophony is back. Thankfully, if I lay down the sypmtoms do go away. I am not on any drugs anymore and haven't been since January. Dr. Poe is supposed to be mailing some info to me in regards to a more permanent treatment for the palatal myoclonus. Are you familiar with this treatment? As you know the botox impairs your ability to speak and can interfere with your daily life as well. Did seeing Dr. Poe give you your life back? Sorry if this seems too personal, it's just hard to know what direction to go in at this point. Thanks again!!

Jen
[QUOTE=jennifer24;3212796]Hello again Lib,

Yes, the ent can see my palate move. I went back for a follow up appt. on Thursday and the right side is completely paralyzed from the botox but he can still see the left side moving a bit which makes sense since I am still getting the clicking on that side. I am a little confused in regards to the pet though because I hadn't experienced much of the pet symptoms for many months but after getting the botox the autophony is back. Thankfully, if I lay down the sypmtoms do go away. I am not on any drugs anymore and haven't been since January. Dr. Poe is supposed to be mailing some info to me in regards to a more permanent treatment for the palatal myoclonus. Are you familiar with this treatment? As you know the botox impairs your ability to speak and can interfere with your daily life as well. Did seeing Dr. Poe give you your life back? Sorry if this seems too personal, it's just hard to know what direction to go in at this point. Thanks again!!

Jen[/QUOTE]

hi jen,
i am interested in the info dr poe is sending you, must be newer since i saw him. he figured out my issues and my dr here took over, i have the myoclonus in the middle ear as well as e tube. please share the info when you get it.
jen when they botox the palate it can cause p e t, it may freeze the muscle to much, that is why i opted not to do botox. this may or may not be the case for you. do you have any idea what caused your palatal myo? how long have you had it? will you be seeing dr poe? hes awesome!!!! palatal and middle ear myoclonus can go hand in hand so be checked for that as well.
at least seeing the spasms confirms myoclonus, now it needs to be investigated in the ears. can you describe your autophony prior to botox?
lib
[QUOTE=lib;3213365]hi jen,
i am interested in the info dr poe is sending you, must be newer since i saw him. he figured out my issues and my dr here took over, i have the myoclonus in the middle ear as well as e tube. please share the info when you get it.
jen when they botox the palate it can cause p e t, it may freeze the muscle to much, that is why i opted not to do botox. this may or may not be the case for you. do you have any idea what caused your palatal myo? how long have you had it? will you be seeing dr poe? hes awesome!!!! palatal and middle ear myoclonus can go hand in hand so be checked for that as well.
at least seeing the spasms confirms myoclonus, now it needs to be investigated in the ears. can you describe your autophony prior to botox?
lib[/QUOTE]

Lib,

As soon as I receive the info from Dr. Poe about the newer procedure for palatal myoclonus I will let you know. I have had this for about a year now although the autohpony started earlier, about 19 months ago. I really don't know what caused it-wish I did. The autophony prior to the injections is the same as it was 19 months ago. I just had a period where it went away prior to the injections. It definately cripples you in conversation! It sounds as if your voice and breath are amplified and you can't determine how loud or soft you are speaking or how clearly. Are you still having any symptoms?

Jen
[QUOTE=jennifer24;3214860]Lib,

As soon as I receive the info from Dr. Poe about the newer procedure for palatal myoclonus I will let you know. I have had this for about a year now although the autohpony started earlier, about 19 months ago. I really don't know what caused it-wish I did. The autophony prior to the injections is the same as it was 19 months ago. I just had a period where it went away prior to the injections. It definately cripples you in conversation! It sounds as if your voice and breath are amplified and you can't determine how loud or soft you are speaking or how clearly. Are you still having any symptoms?

Jen[/QUOTE]

Hi jen,
I do have some symptoms but my worst symptoms came from the middle ear, i had the tendons cut and that helped a ton. my other symptoms are from the etube, it spasms and i get snapping, popping and crackling in the ear, with talking and swallowing when its acting up, so its not constant. i also have a snapping sound from my palate sometimes, do you get that? what other symptoms do you get other than autophony and cracking? are you able to see the palate move?
lib
[QUOTE=lib;3215120]Hi jen,
I do have some symptoms but my worst symptoms came from the middle ear, i had the tendons cut and that helped a ton. my other symptoms are from the etube, it spasms and i get snapping, popping and crackling in the ear, with talking and swallowing when its acting up, so its not constant. i also have a snapping sound from my palate sometimes, do you get that? what other symptoms do you get other than autophony and cracking? are you able to see the palate move?
lib[/QUOTE]

Yes, I get a snapping sound from my palate. It feels like a quick pull in my ears (now only the left since botox) and sounds like a snap. It's only brought on when talking or blowing out air as if blowing out candles on a birthday cake. It is not constant, I have to talk to trigger it (thank God:). I don't get the clicking noise (snap) when saying M's or N's though. I'ts definately the palate. I cannot see the palate move myself because I can't talk while looking in the mirror with my mouth open but I did see it on the monitor twice while being scoped. My other symptoms are ear pressure and headaches, stiffness in neck, shoulders and jaw, fatigue and lightheadedness. The ENT that diagnosed the pm said he also thought I have allergic rhinitis and gave me a nasal spray for it. I immediately declined because those steroid sprays can make the autophony worse but he said it wasn't steroid based so I gave it a shot and it actually helped the headaches and jaw stiffness. I looked it up on line though and some people have had some pretty scary side effects from it so that makes me nervous. They said it caused depression, mood swings, sleeplessness, dizziness and weight gain. The first 4 I can definately do without, been there and still there with the lightheadedness. My husband said I should continue the spray since its helping and stop it only if I get those symptoms. I'ts hard for him to understand all we've gone through though even though he tries.

Talk to ya soon

Jen
hi jen,
so you can hear the snap come from the palate, can any one else ever hear it. mine is the same, i have to talk or swallow to trigger it, but its not constant. i have periods where i dont really have symptoms and dayd where it is more active. they can not see mine move, but hear it snap. my ear will pop really loud sometimes when i talk or swallow. they think a virus damaged some nerves causing this problem. will you have botox again? i had terrible ear pressure but its eased up over time, plus i cut the tendons in the middle ear.
talk to you soon
jen,
ps....i have shoulder and jaw issues, tmj they say, and neck issues.....could be a link??? never know....what nasal spray did he give you?
lib
[QUOTE=lib;3217063]hi jen,
so you can hear the snap come from the palate, can any one else ever hear it. mine is the same, i have to talk or swallow to trigger it, but its not constant. i have periods where i dont really have symptoms and dayd where it is more active. they can not see mine move, but hear it snap. my ear will pop really loud sometimes when i talk or swallow. they think a virus damaged some nerves causing this problem. will you have botox again? i had terrible ear pressure but its eased up over time, plus i cut the tendons in the middle ear.
talk to you soon[/QUOTE]


Hi Lib,

we both have similar names and similar problems.
I have been keeping tabs on all your posts and I have read your posts on other websites also. I never got in touch before because I did'nt want to bother you.

I really need your advice, in 2 weeks time I am booked in to have my stapedial and tensor tympani tendons sectioned. I am really nervous because this is the first time, one of your posts reports negative feedback, you mention you still have some symptoms, so the big question is as asked by Nik, in what way has cutting those tendons helped a ton???
what were your symptoms before the surgery?

I think I get your symptoms now, but have to say I am a little confused.

libby
[QUOTE=lib;3217067]jen,
ps....i have shoulder and jaw issues, tmj they say, and neck issues.....could be a link??? never know....what nasal spray did he give you?
lib[/QUOTE]

Hi Lib,

Well, to anwer your questions, yes, everyone can hear the snap even the doctors. Thats how he said he was confident that it was palatal and not middle ear myoclonus (other than seeing it on the monitor). If there is a lot of background noise the clicking doesn't bother me as much but when it's quiet, like when I'm reading a bedtime story to my 5 yr. old, it's very distracting. I'm not sure about having botox again, it has really altered my speech. The right side of my palate is completely paralyzed and the left pretty close. When I talk now it almost sounds as if I'm talking as a deaf person would. Don't know if you know what that sounds like but thats the best description I can think of. It's almost as socially isolating as the autophony. We'll have to wait and see what happens when the botox wears off. If the clicking is still gone I will probably consider it at a lower dose. I would also like to hear what dr. poe's newest permanent treatment is but I still have not received his info. I'm sure they're busy at the office. About TMJ-before I was diagnosed with pm, I was diagnosed with tmj. One of my symptoms was jaw pain and another headaches so I guess they assumed tmj. I was fitted with a mouthpiece and treated for 4 months with it. Honestly, I didn't really see a big change in any of my symptoms and it really messed up my bite. My teeth don't match up like they used to. But that doesn't mean it wouldn't help you. The nasal spray the ent prescribed is called astelin. 2 sprays in each nostril 1 time a day. I have noticed an improvement in my jaw tightness and my headaches. Again though, I'm nervous about the side effects. So far, just a little dizziness, fatigue(So I take it in the pm) and a strange eye twitch????

I hope one day we are both symptom free.

Jennifer
[QUOTE=libby79;3218292]Hi Lib,

we both have similar names and similar problems.
I have been keeping tabs on all your posts and I have read your posts on other websites also. I never got in touch before because I did'nt want to bother you.

I really need your advice, in 2 weeks time I am booked in to have my stapedial and tensor tympani tendons sectioned. I am really nervous because this is the first time, one of your posts reports negative feedback, you mention you still have some symptoms, so the big question is as asked by Nik, in what way has cutting those tendons helped a ton???
what were your symptoms before the surgery?

I think I get your symptoms now, but have to say I am a little confused.

libby[/QUOTE]

hi libby,
i am a libby too!!! i did not see where nik asked this question. dont take my report as negative feedback, you see i have middle ear and e tube myoclonus.
the surgery does not help with e tube or palatal......in my posts i was very clear about the constant torture the middle ear tendons cause, and cutting them relieved those symptoms, my ears reacting to outside sounds, my own voice, a simple cough or closing a door.......i could barley function. my symptoms are all over my posts....there are so many i have thankfully forgotten some....fel free to pull them up.....and you will also read how much and how grateful i was to have the surgery.
good luck
libby
[QUOTE=jennifer24;3219566]Hi Lib,

Well, to anwer your questions, yes, everyone can hear the snap even the doctors. Thats how he said he was confident that it was palatal and not middle ear myoclonus (other than seeing it on the monitor). If there is a lot of background noise the clicking doesn't bother me as much but when it's quiet, like when I'm reading a bedtime story to my 5 yr. old, it's very distracting. I'm not sure about having botox again, it has really altered my speech. The right side of my palate is completely paralyzed and the left pretty close. When I talk now it almost sounds as if I'm talking as a deaf person would. Don't know if you know what that sounds like but thats the best description I can think of. It's almost as socially isolating as the autophony. We'll have to wait and see what happens when the botox wears off. If the clicking is still gone I will probably consider it at a lower dose. I would also like to hear what dr. poe's newest permanent treatment is but I still have not received his info. I'm sure they're busy at the office. About TMJ-before I was diagnosed with pm, I was diagnosed with tmj. One of my symptoms was jaw pain and another headaches so I guess they assumed tmj. I was fitted with a mouthpiece and treated for 4 months with it. Honestly, I didn't really see a big change in any of my symptoms and it really messed up my bite. My teeth don't match up like they used to. But that doesn't mean it wouldn't help you. The nasal spray the ent prescribed is called astelin. 2 sprays in each nostril 1 time a day. I have noticed an improvement in my jaw tightness and my headaches. Again though, I'm nervous about the side effects. So far, just a little dizziness, fatigue(So I take it in the pm) and a strange eye twitch????

I hope one day we are both symptom free.

Jennifer[/QUOTE]

hi jennifer,
yes i was treated for tmj, noticed nothing and my bite is now off too. i get eyelid twitchmes and other strange spasms as well. the a\funny thing is, they can hear my palate snaip, i definately have it in there, but i also have it in the middle ear, i had to cut the tendons because my ears reacted to my voice and outside sounds. i was refering to the spasms for a while as autophoney because i did not know what else it could be. it was dr poe that figured that part out. i am very curious as to the ideas he has on this, in 04 when i had surgery with him for a possible patulous tube, the only option then was botox.....i am so grateful he is looking into other treatments.....hes an incredible dr and i believe he will find treatments and cures for several problems in his carrer.....i hope we are both fixed on day soon.
libby
[QUOTE=NMP79;3215615]Lib,

You say you were operated on for PET, but it turns out you don't have PET, if you were originally diagnosed with PET, you must have autophony along with the clicking.
The big question is, how exactly has cutting those tendons helped a ton?

Has the autophony gone?
The clicking is not so bad as before?

You mention you still have some symptoms, but not as bad as before your op?

I would be interested to know what you have to say.

Nik[/QUOTE]

nik,
if you read my posts my whole story is there, i will try to give the short story......i had so many horrific symptoms....and one i described and called autophony, i would get a rough echo type of sound after i would talk, it at the time seemed like it was my voice, now my drs and i relize it was the muscle in the middle ear spasming, when it would do this my voice also seemed louder it had an echoing vibration to it, a reverb....so yes we though it was pet....i had the surgery, to my surprise.....and dr poes it did not help, the very next morning i was in his office and he could still see my eardrum move, with deep breathing and talking, turns out i was using muscles in my face and that was triggering the spasms as well.....he knew then mine was muscular.....from there i had the tendons cut....that took care of almost all of the symptoms, except for a few that were coming from other muscles that have myoclonus, the tensor veli palatini....that is a muscle in the etube that attaches to the palate, it would still snap and such when i talked or swallowed......
sorry i did not see your post and libby pointed out you had addressed me.....
again, my story is long and confusing but it is all here on the board.....
i will also say to all interested.....i am not the only person who was thought to have p e t and turns out it was myoclonus.....i know a few others. these conditions are hard to diagnose, and even dr poe told me myoclonus can cause patulous like symptoms.
i hope i have answered clear enough.
[QUOTE=lib;3220303]hi jennifer,
yes i was treated for tmj, noticed nothing and my bite is now off too. i get eyelid twitchmes and other strange spasms as well. the a\funny thing is, they can hear my palate snaip, i definately have it in there, but i also have it in the middle ear, i had to cut the tendons because my ears reacted to my voice and outside sounds. i was refering to the spasms for a while as autophoney because i did not know what else it could be. it was dr poe that figured that part out. i am very curious as to the ideas he has on this, in 04 when i had surgery with him for a possible patulous tube, the only option then was botox.....i am so grateful he is looking into other treatments.....hes an incredible dr and i believe he will find treatments and cures for several problems in his carrer.....i hope we are both fixed on day soon.
libby[/QUOTE]

Hello Libby,

O.K., so I received the info from Dr. Poe and I have to say I'm more confused now than ever! In my first email to him I told him I had pm and he said botox was a good starting point to identify the problem and get a correct diagnosis. In my second email to him I must have mentioned that the clicks were triggered by speech (although I thought I mentioned that they were brought on by talking before) and now he says botox was not the way to go. He expained the myoclonus causes spontaneous clicking not clicking just related to speaking. He says that the click is more likely related to palatal or et movemens with speech and that surgery or speech therapy would help. Maybe I should bite the bullet and just make an appt with him. I wonder if insurance will cover the traveling costs?

Well, have a nice weekend!

Jen
[QUOTE=jennifer24;3220348]Hello Libby,

O.K., so I received the info from Dr. Poe and I have to say I'm more confused now than ever! In my first email to him I told him I had pm and he said botox was a good starting point to identify the problem and get a correct diagnosis. In my second email to him I must have mentioned that the clicks were triggered by speech (although I thought I mentioned that they were brought on by talking before) and now he says botox was not the way to go. He expained the myoclonus causes spontaneous clicking not clicking just related to speaking. He says that the click is more likely related to palatal or et movemens with speech and that surgery or speech therapy would help. Maybe I should bite the bullet and just make an appt with him. I wonder if insurance will cover the traveling costs?

Well, have a nice weekend!

Jen[/QUOTE]

hi jen,
yes i think you should see him, it will help with a lot of questions. my insurance covered my visit but not travel costs.....my myoclonus is related to movement....im not text book. see him!
this like p e t and other issues is not easy to pinpoint and treat.
let me know!
lib
[QUOTE=lib;3220624]hi jen,
yes i think you should see him, it will help with a lot of questions. my insurance covered my visit but not travel costs.....my myoclonus is related to movement....im not text book. see him!
this like p e t and other issues is not easy to pinpoint and treat.
let me know!
lib[/QUOTE]

Hi Lib,

Hey, I was wondering if you ever tried sound therapy. Heard it might help some of our symptoms. By the way I really do think its time I made an appt with poe even if the airfare has to come out of my own pocket. Talk to ya later.

Jen
[QUOTE=jennifer24;3223096]Hi Lib,

Hey, I was wondering if you ever tried sound therapy. Heard it might help some of our symptoms. By the way I really do think its time I made an appt with poe even if the airfare has to come out of my own pocket. Talk to ya later.

Jen[/QUOTE]

hi jen,
i have not tried sound therapy. if you see poe i would be interested to hear what he thinks of sound therapy for myoclonus.
it cant hurt thats for sure!
ttyl,
lib
[QUOTE=lib;3220285]hi libby,
i am a libby too!!! i did not see where nik asked this question. dont take my report as negative feedback, you see i have middle ear and e tube myoclonus.
the surgery does not help with e tube or palatal......in my posts i was very clear about the constant torture the middle ear tendons cause, and cutting them relieved those symptoms, my ears reacting to outside sounds, my own voice, a simple cough or closing a door.......i could barley function. my symptoms are all over my posts....there are so many i have thankfully forgotten some....fel free to pull them up.....and you will also read how much and how grateful i was to have the surgery.
good luck
libby[/QUOTE]



Lib,

Thanks for the note.
Next week I am having my right ear tensor tympani muscle cut, and then 8 weeks later, my ENT will either cut the stapedial tendon in the right ear also, or if I have relief of symptoms, I will have the same op in my left ear.

I just got a little worried when you said you still had symptoms.

What is autophony? I was going to type it into a search engine but I always forget to.

Anyways, my sypmtoms are - clicking when swallowing and when I lay down and when eating and I have something else but there is no name for it, when I eat, it is very loud. Odd thing what I have, but hopefully after my op I will have relief.

I am glad to learn youor op, helped you.

Libby
[QUOTE=libby79;3223955]Lib,

Thanks for the note.
Next week I am having my right ear tensor tympani muscle cut, and then 8 weeks later, my ENT will either cut the stapedial tendon in the right ear also, or if I have relief of symptoms, I will have the same op in my left ear.

I just got a little worried when you said you still had symptoms.

What is autophony? I was going to type it into a search engine but I always forget to.

Anyways, my sypmtoms are - clicking when swallowing and when I lay down and when eating and I have something else but there is no name for it, when I eat, it is very loud. Odd thing what I have, but hopefully after my op I will have relief.

I am glad to learn youor op, helped you.

Libby[/QUOTE]

Hi libby,
autophoney is hearing your voice and breathing in your ear loud like a megaphone. my voice was louder but not like a megaphone. do not be discouraged if the stapedial needs to be clipped to, i had both in my right ear and onlt the tt in the left just to see even though my doc was confident it was both, and the stapedial still spasms......but with 3 out of 4 eliminated i have just lived with it as its soooo much better, i can cut it any time so i guess that is also why i tolerate it, if it acts up.....i threaten to ax it.....kind of a mind over matter thing.
good luck and let us know how you do
[QUOTE=lib;3223843]hi jen,
i have not tried sound therapy. if you see poe i would be interested to hear what he thinks of sound therapy for myoclonus.
it cant hurt thats for sure!
ttyl,
lib[/QUOTE]

Hi Lib,

I will let you know. I started the appointment process today. Won't see him until January though. Do you know anybody who has tried patulend?

Jen
Hi all,

I read through these posts last night, and I definitely have a similar problem to several people on here. I went to an ENT doctor in May, and he could see my palate moving...the biggest problem is the noise I have in my ears. The left ear is much worse than the right. However, for the most part, it only happens when I breathe a certain way or say certain sounds. It is not constant. So for the most part, I can control it...BUT when I'm talking and make certain sounds, or breathe heavily for example...the clicking in my ear will just happen and it drives me crazy!!!

I also have a lot of fullness in the left ear, along with frequent headaches in the left temple. However, the headaches started before the ear/palate problems. What happened was that I had oral surgery, and the headaches started soon after that...then the oral surgeon recommended a nightguard. Well, after about 6 months of wearing the nightguard, my bite started feeling "off", and soon after that the ear/palate problems started!!! And the headaches persisted....

The ENT said we could try Botox injections, but I'm a bit frightened of that, and i'm not sure if that's the path I should take. I'm not sure how much experience this doctor has in treating these types of problems. I recently had oral surgery again, and am still healing...so I'm not jumping to do anything right away for the ear/palate problems. However, I would like to eventually have some kind of treatment for this. I've read about a few doctors on here, and am thinking about seeing one of them. I'm willing to travel.

Any insight would be greatly appreciated!

thanks,
Meg
I am having problems and was thinking of getting a night guard. Maybe not!
Good luck with your problem.
[QUOTE=jennifer24;3226110]Hi Lib,

I will let you know. I started the appointment process today. Won't see him until January though. Do you know anybody who has tried patulend?

Jen[/QUOTE]

not for myoclonus, but for p.e.t, it might be worth a try.
let me know if you do.
lib
Myrtle,

I don't think these problems are common...and I didn't mean to imply that the nightguard was 100% responsible for my problems. I was also going through a VERY stressful time in my life, and suffering from severe anxiety. However, I was told that the nightguard was poorly made/designed, and not well-balanced. I do think it contributed to my problems, and actually worsened my TMJ problems. In fact, I didn't really have any jaw pain before I wore the guard, just headaches...

So, if you do get a nightguard or splint of any kind, just make sure it's well-made and covers ALL of your teeth on either the upper or lower arch.

I don't know what kind of problem you have...I know that eustachian tube problems are common with TMJ patients, but my problem is different...as I said, you can actually see my palate jumping up and down in the back of my throat, and that is what causes the crackling noises in my ear. I suspect I have eustachian tube problems in addition to that (my understanding is that soft palate somehow connects to the eustachian tubes, which explains how it causes the noise in the ears).

Good luck!

Meg
What is "p e t"??? I assume it has something to do with the eustachian tubes??
[QUOTE=MaggieMay78;3226472]Hi all,

I read through these posts last night, and I definitely have a similar problem to several people on here. I went to an ENT doctor in May, and he could see my palate moving...the biggest problem is the noise I have in my ears. The left ear is much worse than the right. However, for the most part, it only happens when I breathe a certain way or say certain sounds. It is not constant. So for the most part, I can control it...BUT when I'm talking and make certain sounds, or breathe heavily for example...the clicking in my ear will just happen and it drives me crazy!!!

I also have a lot of fullness in the left ear, along with frequent headaches in the left temple. However, the headaches started before the ear/palate problems. What happened was that I had oral surgery, and the headaches started soon after that...then the oral surgeon recommended a nightguard. Well, after about 6 months of wearing the nightguard, my bite started feeling "off", and soon after that the ear/palate problems started!!! And the headaches persisted....

The ENT said we could try Botox injections, but I'm a bit frightened of that, and i'm not sure if that's the path I should take. I'm not sure how much experience this doctor has in treating these types of problems. I recently had oral surgery again, and am still healing...so I'm not jumping to do anything right away for the ear/palate problems. However, I would like to eventually have some kind of treatment for this. I've read about a few doctors on here, and am thinking about seeing one of them. I'm willing to travel.

Any insight would be greatly appreciated!

thanks,
Meg[/QUOTE]

meg, if they see the palate moving then palatal myoclonus is causing a lot of your symptoms, some of the ear symptoms could be from the middle ear tendons as well, or the e tube......i would try a local neurOTOligist, then travel if need be.
lib
Lib,

You said something about Botox injections causing PET if the muscle is frozen too much?? I've been doing a lot of reading online (on PubMed, medical literature), and haven't seen anything about that. But then again, I haven't really been able to find anything about any side effects from the Botox injections. How do you know about that? Did a doctor tell you that? Just curious, becaue I'm trying to learn all I can, this is such a confusing disorder...

thanks,

Meg
One more question...I also read somewhere that Botox typically isn't covered by health insurance, even if it's for medical reasons like palatal myoclonus??! Yikes!!! I'm just wondering if anyone on here has had it and whether their insurance covered any of it. I read that Botox could be up to $4,000...that sounds like a LOT to me, I don't know whether that's true or not.
[QUOTE=MaggieMay78;3228171]Lib,

You said something about Botox injections causing PET if the muscle is frozen too much?? I've been doing a lot of reading online (on PubMed, medical literature), and haven't seen anything about that. But then again, I haven't really been able to find anything about any side effects from the Botox injections. How do you know about that? Did a doctor tell you that? Just curious, becaue I'm trying to learn all I can, this is such a confusing disorder...

thanks,

Meg[/QUOTE]

yes drs have told me this, i know someone who this happened to, if its over botoxed it can cause p e t. others can get botox and not have an issue, i would only go to someone who has done botox for this a lot, if you look at some other older posts you will find the person who had the botox, just search for botox or patulos eustacian tube.
lib
[QUOTE=MaggieMay78;3228171]Lib,

You said something about Botox injections causing PET if the muscle is frozen too much?? I've been doing a lot of reading online (on PubMed, medical literature), and haven't seen anything about that. But then again, I haven't really been able to find anything about any side effects from the Botox injections. How do you know about that? Did a doctor tell you that? Just curious, becaue I'm trying to learn all I can, this is such a confusing disorder...

thanks,

Meg[/QUOTE]

Meg,

Hi! I've been reading through the last few posts and thought I might comment. I have been diagnosed with palatal myoclonus and have had the botox treatments. My myoclonus like yours is triggered by talking and blowing (like blowing out candles on a cake). For some reason, when i say the letters m and n I don't hear the snap or clicking sound. My ENT scoped me and the camera showed the palate spasming. Now, about the pet, I only have it in my left ear and I had a very bad case of it last summer where my e.t would stay open for several hours and even lying down would not help. It eventually eased up and stopped altogether. After the botox the pet came back in again in my left ear. It is worse in the a.m. and is brought on by yawning or talking but thankfully if I lean forward or lay down it goes away, at least until I talk again. I'm hoping that once the botox wears off, the pet will go away too. As far as the botox helping the clicking noises-it eliminated the clicking and popping (when swallowing) completely in the right side but all symptoms still remain in the left. It's hard to determine what dose will be the right one for you the first time around. But the botox does interfere with your speech ability quite a bit-at least it did with me. So ask your doc about that. My insurance co did pay for the treatment , it just required a note from my doctor expressing a need for medical necessity.

Hope this helped and good luck!

Jen
Jen and Lib,

I appreciate your responses, they have been very helpful! IF I opt for Botox, you can be sure it will only be with a doctor that has done it many times before!

Does anyone here think that severe stress or anxiety contributed to their problem?? Of course, I know that in most cases, the cause is unknown...But I know for me, this started during the most stressful time of my entire life. I read that the muscles of the ear, and even the palate, are prone to going into spasm as a result of stress, just like any other muscle in the body. I've been doing all I can now to control my stress and anxiety...Of course, I know that won't make the myoclonus disappear, but I do want to prevent any more problems from arising. Just my theory, as to what I think contributed to the start of MY problem...

Jen and Lib and everyone else on here, I wish you the best of luck and hope that all of your symptoms resolve SOON!!!

--Meg
[QUOTE=MaggieMay78;3230096]Jen and Lib,

I appreciate your responses, they have been very helpful! IF I opt for Botox, you can be sure it will only be with a doctor that has done it many times before!

Does anyone here think that severe stress or anxiety contributed to their problem?? Of course, I know that in most cases, the cause is unknown...But I know for me, this started during the most stressful time of my entire life. I read that the muscles of the ear, and even the palate, are prone to going into spasm as a result of stress, just like any other muscle in the body. I've been doing all I can now to control my stress and anxiety...Of course, I know that won't make the myoclonus disappear, but I do want to prevent any more problems from arising. Just my theory, as to what I think contributed to the start of MY problem...

Jen and Lib and everyone else on here, I wish you the best of luck and hope that all of your symptoms resolve SOON!!!

--Meg[/QUOTE]

Meg,

Yes, I think stress does play a role. My symptoms started about 3 months after a cross country move that I wasn't really happy about or 100% sure was right for our family. It's been tough and my symptoms just seemed to grow and progressively get worse. Try some yoga and massage therapy. I know it seems trivial but it might help some of those muscles relax.

Jen
Hi,
I am new here and have read all posts. I have cracking in my ears and looked up info on net. I thought it was "normal" as they have been cracking since childhood. I asked my Mom and she said, "everyone has it.?" the cracking is getting worse but it is only when I swallow or yawn. I went to an ENT had a hearing test and the results are a slight to mild hearing loss. I asked about the ringing and cracking and he told me to put the T.V. on if it bothers me. (I have a new apt with a different ENT. I have pressure in my ears too and he also said that my jaw is putting pressure on my ears. It hurts but is bearable, I guess my jaw has grown a bit since childhood, because I did not notice until about 6 months ago. I don't think I have pet or tmj but do have some sensitivity to noise, they "pop" at times even when I type, like now.
This is the first site that has truly discussed these symptoms. Thank you all and I will be prepared better for the next exam.
Thanks again
Mogo
Lib,

I am sooo nervous, Wednesday is the big day for me, I know it is a quick op, but still scary, I am worried of the bleeding after the op will give me a blocked up ear which will last for weeks until the blood drains away down the eustachian tube.

how was it for you after the op? were you blocked up?
and do you have this autophony? it does'nt sound nice.

Please do advice. Thank You.

Libby
[QUOTE=libby79;3235563]Lib,

I am sooo nervous, Wednesday is the big day for me, I know it is a quick op, but still scary, I am worried of the bleeding after the op will give me a blocked up ear which will last for weeks until the blood drains away down the eustachian tube.

how was it for you after the op? were you blocked up?
and do you have this autophony? it does'nt sound nice.

Please do advice. Thank You.

Libby[/QUOTE]
hi libby,
the ear will have packing in it so it will be blocked up, but it reallyis no big deal, after a week to 10 days its fine.
i do not have autophoney.
try not to be nervous, its a simple procedure and you will be glad you did iy.
where are you having this done at?
lib
Thank you Nik for the info.
The sounds are like micro wave popcorn when it is popping fast. That would be the best desciption.
Thank you again
Mogo
[QUOTE=libby79;3235563]Lib,

I am sooo nervous, Wednesday is the big day for me, I know it is a quick op, but still scary, I am worried of the bleeding after the op will give me a blocked up ear which will last for weeks until the blood drains away down the eustachian tube.

how was it for you after the op? were you blocked up?
and do you have this autophony? it does'nt sound nice.

Please do advice. Thank You.

Libby[/QUOTE]

Good luck Libby. Let us know how you are doing as soon as you feel like posting.
Good luck, Libby!!! :)

Jennifer, that is interesting that your symptoms began after a stressful time. I was going through one of the most stressful times of my life...wedding, major surgery, and a cross-country move. Yeah, moving is definitely VERY stressful when you're going far away to somewhere totally unfamiliar! I definitely am going for massage therapy, as you suggested...I've done it a few times, just not enough b/c it's expensive. I also do acupuncture...I have a lot of muscular pain as well, so it can't hurt to do these things!
[QUOTE=MaggieMay78;3238737]Good luck, Libby!!! :)

Jennifer, that is interesting that your symptoms began after a stressful time. I was going through one of the most stressful times of my life...wedding, major surgery, and a cross-country move. Yeah, moving is definitely VERY stressful when you're going far away to somewhere totally unfamiliar! I definitely am going for massage therapy, as you suggested...I've done it a few times, just not enough b/c it's expensive. I also do acupuncture...I have a lot of muscular pain as well, so it can't hurt to do these things![/QUOTE]

Hope it helps Maggiemay!!

Jennifer
Please help!

I have been reading all the messages and am quite confident that one of you will be able to help me.

Ok, so I will just start at the beginning with the long list of problems and the long list of tests and diagnosis I have been given. I have been having problems for about 3 years now. I have pressure in my left ear about 90% of the day. It is sometimes accompanied by moderate pain, ringing in the ears, clicking or snapping sound after I talk, being able to hear myself talk - muffled. Anyway, I know many of you have had this combo of symptoms. I first saw an ENT since I was sure there was something wrong with my ear. The tests showed so significant hearing loss or ET dysfunction. He looked in my ears and said the fullness was just due to allergies. Well, I am a pharmacist and tried about every combination of decongestant/antihistamine/steroid out there and I knew it was not allergies. Anyway, since there seemed to be nothing wrong with my ear I was happy and willing to accept the diagnosis of TMJ from my dentist. So we did the whole braces/splint thing to correct my bite. OK, well that did not work and I don't think there was much wrong with my bit to begin with. When this did nothing I went back the the ENT and had the same results from the same test they did last time. Still no help in sight. My dentist then referred my to a specialist in TMJ and craniofacial pain. They did the same splint thing again, an injection into the joint and still nothing. I had an MRI and it showed no problems with the joint. The TMJ specialist has contacted his friend that is an ENT. They seem to think it could be the tensor tympani. Could a spasm of this muscle cause all this feeling of pressure/fullness in my ear. This pressure/fullness all the time is my biggest complaint. Yes, the snapping sound after talking is bothersome too but does come and go. Hearing myself talk it not as sever as some of you have experienced it. Anyway, I have seen many doctors and had many tests and spent lots of money! What do you all think is the diagnosis and what can I expect as treatment?
Any help would be greatly appreciated.
God bless,
Emily
Have you looked into getting ear tubes placed in to help equalize the pressure inside and outside your ear? Could also look into the Eustachian tube and it's function.
Hi, I'm Esther. I became aware of a crackling in my left ear about Sept '07 and thought nothing of it. Became progressive louder and more often. Now it's about 80% of my awake time and loud enough to interfere with my excellent hearing in that ear. No hearing loss. No fluid or wax. No head or neck damage. Due for an MRI ASAP. I just need to know that I'm not alone in this as I've never heard of this before. A friend directed me to this sight. I guess we'll have to hang in there.:)
[QUOTE=sproulrx;3393965]Please help!

I have been reading all the messages and am quite confident that one of you will be able to help me.

Ok, so I will just start at the beginning with the long list of problems and the long list of tests and diagnosis I have been given. I have been having problems for about 3 years now. I have pressure in my left ear about 90% of the day. It is sometimes accompanied by moderate pain, ringing in the ears, clicking or snapping sound after I talk, being able to hear myself talk - muffled. Anyway, I know many of you have had this combo of symptoms. I first saw an ENT since I was sure there was something wrong with my ear. The tests showed so significant hearing loss or ET dysfunction. He looked in my ears and said the fullness was just due to allergies. Well, I am a pharmacist and tried about every combination of decongestant/antihistamine/steroid out there and I knew it was not allergies. Anyway, since there seemed to be nothing wrong with my ear I was happy and willing to accept the diagnosis of TMJ from my dentist. So we did the whole braces/splint thing to correct my bite. OK, well that did not work and I don't think there was much wrong with my bit to begin with. When this did nothing I went back the the ENT and had the same results from the same test they did last time. Still no help in sight. My dentist then referred my to a specialist in TMJ and craniofacial pain. They did the same splint thing again, an injection into the joint and still nothing. I had an MRI and it showed no problems with the joint. The TMJ specialist has contacted his friend that is an ENT. They seem to think it could be the tensor tympani. Could a spasm of this muscle cause all this feeling of pressure/fullness in my ear. This pressure/fullness all the time is my biggest complaint. Yes, the snapping sound after talking is bothersome too but does come and go. Hearing myself talk it not as sever as some of you have experienced it. Anyway, I have seen many doctors and had many tests and spent lots of money! What do you all think is the diagnosis and what can I expect as treatment?
Any help would be greatly appreciated.
God bless,
Emily[/QUOTE]

absolutley! yes the middle ear muscles can spasm causing all these symptoms.
[QUOTE=dnuremmb;3438292]Hi, I'm Esther. I became aware of a crackling in my left ear about Sept '07 and thought nothing of it. Became progressive louder and more often. Now it's about 80% of my awake time and loud enough to interfere with my excellent hearing in that ear. No hearing loss. No fluid or wax. No head or neck damage. Due for an MRI ASAP. I just need to know that I'm not alone in this as I've never heard of this before. A friend directed me to this sight. I guess we'll have to hang in there.:)[/QUOTE]
I too am experiencing the same crackling sensation in my right ear. It is particularly noticable in situations where I have to speak louder...it sounds almost like a raspy stereo speaker. I have seen my GP as well as two other doctors who can't seen to find anything wrong. I am due to see a specialist soon and with any luck, I will have answers. My hearing is otherwise very good...no tinnitis or hearing loss, just that annoying crackling. I am a professional musician and believe me, it has me a bit worried too.
[QUOTE=cburres;2453049]Hello...

I am going nuts because for the past month or so I have had light crackling sound in my right ear off and on. It sounds a little like soap bubbles popping. I am not noticing any other symptoms like vertigo, etc. Does anyone know what this could be?

thanks!
Carey[/QUOTE]
Hello Dominick,

I too have had these symptoms for about two months now and it is really having an impact on my day-to-day existence! As a professional musician, you could imagine how it effects me!

My symptoms are excited by sound; that is it is not tinnitis. Loud sounds, certain frequencies when whistling or humming or even playing my trombone cause this kazoo-like buzzing in my right ear. I was having a conversation on the phone the other day that drove me nuts because it sounded as though a bee was buzzing around in my ear. Are your symptoms the same?

I finally had enough of the situation a couple of days ago and went to get yet another opinion (I had seen three doctors up to this point who say there doesn't seem to be anything wrong). This doctor immediately diagnosed the problem as an inner ear infection and prescribed an anti-fungal salve that so far seems to be giving me some hope. It is still noticable from time-to-time but not nearly as bad as before. I plan to see an ENT regardless just to make sure.

I wish you luck and hope it turns out to be something that can be easily remedied. I would see a specialist and get a professional opinion.

Good Luck,

Bassbrass
No...from the sound of things you are certainly not alone! I have been on a number of different sites now and read countless testimonials from other who also have this problem. All of us have one thing significantly in common...no one seems to have a clue as to what causes this day-to-day annoyance. I have been to several different doctors and they too are telling me that all is well. I am on a wait-list for an ENT and I am hoping that he will have some answers for me (if so, I will pass them on).

I wish you the very best and here's hoping your ENT can provide you with answers and treatment. Keep us posted!

Bassbrass
[QUOTE=lib;3453466]absolutley! yes the middle ear muscles can spasm causing all these symptoms.[/QUOTE]

Lib - I've got crackling in both ears, its caused by swallowing, opening and closing my mouth wide, yawning and sometimes head movements. My doctor says its ETD, but its been 3 months and I still have the problem. The clicks are short and sharp sounding. Does this sound like ETD or a myoclonus to you? What tests do the doctors do to differentiate? Things that make me think its ETD are it started when i had an ear infection and cold 3 months ago and apparently ETD can take a long time to resolve. Things that make me think its myoclonus, the sound feels / sounds to me like its originating at the ear drum, its a sharp snappish crackle type sound like crinckling newspaper. There are no other ETD symptoms like pressure problems and i can do valsalva easily. However I'm not sure its myoclonus as its not affected by sounds, and only occurs when i actively swallow, or tense muscles in the ear area. Let me know what you think and what I should tell teh ENT to check next time i see him.

Thanks





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