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Hello...

I am going nuts because for the past month or so I have had light crackling sound in my right ear off and on. It sounds a little like soap bubbles popping. I am not noticing any other symptoms like vertigo, etc. Does anyone know what this could be?

thanks!
Carey
Dear cburres,

I've had a condition a couple of times where it sounded like a wax paper was being crinkled inside one of my ears. I believe it to a harmless condition and is (my guess) the remains of fluid that has dried in the ears leaving a residue which creates the crinkling or popping sound.

Hope this helped.
Lib,

I have been following this thread and your story as well as others for some time now. I was hoping you might be able to give some advise if your still out there. I, like many others have been suffering with many ear symptoms for a long time with very little help from any doctors. I have been misdiagnosed and treated for many things that I don't have. It's been extremely frustrating and I need some concrete answers. I know you and others have received a lot of help from sismanis and poe. I have contacted them but have not made an appointment due to their location (I am in IL). So far I have been diagnosed with a sinus infection, occipital neuritis, tmj, depression and allerfies. I've had a brain MRI and a CT scan of the sinuses which all came back normal. Each of these treatments were months long. I did see a specialist (ENT) in Iowa who diagnosed me with palatal myoclonus and I received botox injections into the palate. This relieved the clicking in my left ear only. The other symptoms still remain. Here goes: ear pain and pressure, headaches (right side mainly, temple worse), ears popping/crackling on their own and when yawning and swallowing, autohpony that comes and goes and can usually be corrected when leaning forward, stiffness in neck, shoulders and jaw, fatigue, lightheadedness, throbbing nostrils scalp sensitivity, clicking noises when speaking , and ears crackle with loud sounds. I know, it seems ridiculous to have so many symptoms. You seem like your very well versed in this area. Do you think either of the doctors could help me. I'm desperate. Your input would be greatly appreciated. Thank you for sharing your experience with all of us, it helps tremendously.

Jen:)
[QUOTE=jennifer24;3195987]Lib,

I have been following this thread and your story as well as others for some time now. I was hoping you might be able to give some advise if your still out there. I, like many others have been suffering with many ear symptoms for a long time with very little help from any doctors. I have been misdiagnosed and treated for many things that I don't have. It's been extremely frustrating and I need some concrete answers. I know you and others have received a lot of help from sismanis and poe. I have contacted them but have not made an appointment due to their location (I am in IL). So far I have been diagnosed with a sinus infection, occipital neuritis, tmj, depression and allerfies. I've had a brain MRI and a CT scan of the sinuses which all came back normal. Each of these treatments were months long. I did see a specialist (ENT) in Iowa who diagnosed me with palatal myoclonus and I received botox injections into the palate. This relieved the clicking in my left ear only. The other symptoms still remain. Here goes: ear pain and pressure, headaches (right side mainly, temple worse), ears popping/crackling on their own and when yawning and swallowing, autohpony that comes and goes and can usually be corrected when leaning forward, stiffness in neck, shoulders and jaw, fatigue, lightheadedness, throbbing nostrils scalp sensitivity, clicking noises when speaking , and ears crackle with loud sounds. I know, it seems ridiculous to have so many symptoms. You seem like your very well versed in this area. Do you think either of the doctors could help me. I'm desperate. Your input would be greatly appreciated. Thank you for sharing your experience with all of us, it helps tremendously.

Jen:)[/QUOTE]

hi jen,
i can relate to a ton if not almost all symptoms. one thing you need to figure out is do you have true autophony? do you hear your voice loud like a megaphone? i do think dr poe and sismanis can get to the bottom, a huge clue here is that the botox helped, it would not help in a case of p e t and botox can actually cause pet if the muscle is frozen too much. the fact that you react to outside sounds is another clue, i did too, dr poe said that is not a p e t symptom. i would put money on myoclonus. tell me jen how did this all start for you? i would like to compare notes.
Thanks!
libby
I also been suffering from an ear problem in my left ear for about 2.5 years. My symptoms mostly include a popping when I burp or yawn and a constant clicking at night when I swallow. The symptoms seem to be described in Palatal Myoclonus. I was diagnosed with PET and then that changed to ETD. I have seen several ENTS including Dennis Poe in Boston. Unfortunately when I saw Dr Poe, the symptoms were not bad, so my visit was not effective. I did have a tube placed last November, and that did not help. My hearing seems to be fine, and the ENTS so not seem to notice anything. I have been on steroids and nsal decongestants and acid reflux meds--nothign seems to help

Any advice?
[QUOTE=jennifer24;3214860]Lib,

As soon as I receive the info from Dr. Poe about the newer procedure for palatal myoclonus I will let you know. I have had this for about a year now although the autohpony started earlier, about 19 months ago. I really don't know what caused it-wish I did. The autophony prior to the injections is the same as it was 19 months ago. I just had a period where it went away prior to the injections. It definately cripples you in conversation! It sounds as if your voice and breath are amplified and you can't determine how loud or soft you are speaking or how clearly. Are you still having any symptoms?

Jen[/QUOTE]

Hi jen,
I do have some symptoms but my worst symptoms came from the middle ear, i had the tendons cut and that helped a ton. my other symptoms are from the etube, it spasms and i get snapping, popping and crackling in the ear, with talking and swallowing when its acting up, so its not constant. i also have a snapping sound from my palate sometimes, do you get that? what other symptoms do you get other than autophony and cracking? are you able to see the palate move?
lib
[QUOTE=lib;3215120]Hi jen,
I do have some symptoms but my worst symptoms came from the middle ear, i had the tendons cut and that helped a ton. my other symptoms are from the etube, it spasms and i get snapping, popping and crackling in the ear, with talking and swallowing when its acting up, so its not constant. i also have a snapping sound from my palate sometimes, do you get that? what other symptoms do you get other than autophony and cracking? are you able to see the palate move?
lib[/QUOTE]

Yes, I get a snapping sound from my palate. It feels like a quick pull in my ears (now only the left since botox) and sounds like a snap. It's only brought on when talking or blowing out air as if blowing out candles on a birthday cake. It is not constant, I have to talk to trigger it (thank God:). I don't get the clicking noise (snap) when saying M's or N's though. I'ts definately the palate. I cannot see the palate move myself because I can't talk while looking in the mirror with my mouth open but I did see it on the monitor twice while being scoped. My other symptoms are ear pressure and headaches, stiffness in neck, shoulders and jaw, fatigue and lightheadedness. The ENT that diagnosed the pm said he also thought I have allergic rhinitis and gave me a nasal spray for it. I immediately declined because those steroid sprays can make the autophony worse but he said it wasn't steroid based so I gave it a shot and it actually helped the headaches and jaw stiffness. I looked it up on line though and some people have had some pretty scary side effects from it so that makes me nervous. They said it caused depression, mood swings, sleeplessness, dizziness and weight gain. The first 4 I can definately do without, been there and still there with the lightheadedness. My husband said I should continue the spray since its helping and stop it only if I get those symptoms. I'ts hard for him to understand all we've gone through though even though he tries.

Talk to ya soon

Jen
[QUOTE=MaggieMay78;3228171]Lib,

You said something about Botox injections causing PET if the muscle is frozen too much?? I've been doing a lot of reading online (on PubMed, medical literature), and haven't seen anything about that. But then again, I haven't really been able to find anything about any side effects from the Botox injections. How do you know about that? Did a doctor tell you that? Just curious, becaue I'm trying to learn all I can, this is such a confusing disorder...

thanks,

Meg[/QUOTE]

Meg,

Hi! I've been reading through the last few posts and thought I might comment. I have been diagnosed with palatal myoclonus and have had the botox treatments. My myoclonus like yours is triggered by talking and blowing (like blowing out candles on a cake). For some reason, when i say the letters m and n I don't hear the snap or clicking sound. My ENT scoped me and the camera showed the palate spasming. Now, about the pet, I only have it in my left ear and I had a very bad case of it last summer where my e.t would stay open for several hours and even lying down would not help. It eventually eased up and stopped altogether. After the botox the pet came back in again in my left ear. It is worse in the a.m. and is brought on by yawning or talking but thankfully if I lean forward or lay down it goes away, at least until I talk again. I'm hoping that once the botox wears off, the pet will go away too. As far as the botox helping the clicking noises-it eliminated the clicking and popping (when swallowing) completely in the right side but all symptoms still remain in the left. It's hard to determine what dose will be the right one for you the first time around. But the botox does interfere with your speech ability quite a bit-at least it did with me. So ask your doc about that. My insurance co did pay for the treatment , it just required a note from my doctor expressing a need for medical necessity.

Hope this helped and good luck!

Jen
Thank you Nik for the info.
The sounds are like micro wave popcorn when it is popping fast. That would be the best desciption.
Thank you again
Mogo
[QUOTE=cburres;2453049]Hello...

I am going nuts because for the past month or so I have had light crackling sound in my right ear off and on. It sounds a little like soap bubbles popping. I am not noticing any other symptoms like vertigo, etc. Does anyone know what this could be?

thanks!
Carey[/QUOTE]





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