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Hearing Disorders Message Board


Hearing Disorders Board Index


Hi, I'm Aki. Nice to meet you.
I'd like you to let me know about how you're getting along with your otosclerosis. But before that, let me explain about mine.

I've been with oto for more than 10 years. I had a stapedotomy on my left ear a month ago (Apr. 9th), and now I can hear much much better than before the op (60dB -> 30dB). But my doctor told me that both of my cochleas were partially affected by oto and he couldn't tell what'll happen to them.

I became worried, and searched medical papers using Google Scholar. I found one paper* on long-time follow-up of oto patients. They say "28 percent of patients with mixed hearing loss at surgery eventually suffered profound cochlear loss." and "Fluoride treatment is recommended if inner ear hearing loss progresses."
* [url]http://www.ncbi.nlm.nih.gov/entrez/query.fcgi?cmd=Retrieve&db=PubMed&list_uids=8588610&dopt=Citation[/url]

Scared but a bit relieved to know about fluoride, I asked my doctor about it. But he told me that he did not agree with the treatment and fluoride was not approved by our government. Horrified, I searched articles about fluoride in the Web and in here, then found out that the treatment is controversial.

So, I'd like to ask you all:
Q1. How are you getting along with your oto? Is your hearing still O.K. 1 year, 5 years, 10 years, or more after your ops?
Q2. Does anyone know any other information about long-time follow-up of oto patients?
Q3. What would you do if your hearing started to deteriorate after your ops?
(hearing aid, fluoride, ... whatever)

Thank you for reading my long long post, and thanks in advance for your help.





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