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Hearing Disorders Message Board


Hearing Disorders Board Index


Good Morning Guys!

Yesterday was mostly a good day. I gotta tell you though, when i read all about the dizziness and every one stressed that i would extremely dizzy I thought i was prepared for it. No way - this is awful. I mean moving my head even a quarter inch and i wanna just pass out. Nothing properly prepared me for exactly how bad it would be. They gave me valum for the dizziness and it works for a couple hours but you can sure tell when it wears off. It hits me like a rock.

The ringing/buzzing comes and goes and is usually after I get up and move around. If i'm laying still for any period of time (which is a lot) then it doesn't happen.

This morning I put the tv volume half way. I could hear it, not really clear but could make out most of the words. So having the volume on 17 instead of 39 is cool.

I go back to doc on the 24th for my first post op visit and hopefully to get the packing out, then again on Feb 28for my first hearing test.

I Popped my ears last night - both of them by accident. In the operated ear I could hear a "squishing/gushing sound" when i did it. I gotta call doc today and see if i need to go in and get it looked at. I hope I didn't mess up the way the ear drum is laying and it keeps it from healing properly. That has me a little worried.

I had a little drainage from my ear last night but other than that, it appears fine.

I'm still very surprised that my taste was not affected at all. Nothing has tasted funny or like the metallic taste people have reported.

My mom told me that after the surgery for a couple hours the left side of my face was drooping a bit but by the time i got home and in front of a mirror it was back to normal.

Today i'm able to walk a straight line instead of floating to the left. That is also an improvement. I'm also having a little pain in the operated ear, but nothing unbearable.

Of all things to hear..i heard my dog snoring last night! I even heard myself snoring so loud that I woke myself up a couple of times.

Doc tomorrow at noon to see if I messed up the ear drum seal - but it's supposed to get really icy here tonight so i'm not sure I can get there. I'm in Dallas, TX.

More later,
-CAB-
Hi guys,

Today was a MUCH better day!

It's 8pm and I have taken no pain meds or dizziness meds, just my antibiotic today. I was up and around quite a bit today too without feeling like I was the walking dead or something.

My taste is still fine and my appetite has returned. I can't get enough to eat now.

My first post-op appointment was for Wed, the 24th. But when I popped my ear on day 2, I went to see the doc the next day about it. He said it was all good and that he would see me in a month and that my appointment on the 24th wasn't necessary. So....I guess i'll call and see about when the packing will be removed. He did shoot some powder or something like that in my ear on Friday when I was there, but didn't "remove" anything. I was pretty out of it when I was there and didn't think to ask about the packing staying in until Feb. 28th.

I am hearing my "heart beat or pulse" or something in my operated ear most of the time now. It's kind of annoying. I have had very little ringing/buzzing in the ear today and when it has happened, it didn't last very long.


My kids have been at their dads since the surgery. They come home tomorrow (they have been visiting me every day though for a lil whle) and it's back to meals, laundry, homework, etc. I hope I can handle it. They have for years been told....talk louder, speak up, etc. Now it's going to be...shhhhh, don't yell, etc. It should be an interesting adjustment period for all of us.

I went to my youngest girls basketball game today. I wore ear muffs and it helped with the loud noises. The loudest thing I heard that rattled my head....was me hollering every time she scored.:) I wasn't sure if I would be able to endure the entire game, but I did. She was excited to see me there.

I'm going to try to drive a little tomorrow and see how that goes since i'm not having the dizziness anymore.

I guess DAY 4 for all of us was the magical end of the major dizziness days!

Patience - I don't have any, but I'm working on it:dizzy:

More later,

-CAB-
Hi all,

Right after I had the surgery, I didn’t experience any noticeable changes in taste. That was one of the possible short term affects of this procedure. I don’t know if that’s because I had an immediate [U]major[/U] improvement in my hearing that was overwhelming and had lots of dizziness or what.

I’m now 3 weeks post-op and for the last 3 days I have noticed a metallic taste on the front of my tongue on the operated ear side and a very sweet taste on the back part of my tongue. I’ll be sitting here and all the sudden I just get this sweet taste and my mouth produces an extreme amount of saliva then it will switch to the metallic taste and my mouth goes dry. When I’m eating, the food still tastes as it should but all other times the two tastes just keep alternating. It’s a really weird sensation.

Looking back, I think I may have actually not had [U]any taste [/U]on that side of the tongue those 3 weeks and since I was checking for “strange tastes” but food still tasted normal, I didn’t notice the absence of it on that side.

****BUMP**** hehe (this too shall pass)

My hearing is continuing to get clearer every day. I have talked on the phone exclusively with my right ear for the last 20 years or so because I just couldn’t hear anything with the left when trying. Being able to do that is one of the things I have been really looking forward to. I purposely hadn’t even tried until yesterday because I didn’t want to be disappointed. The hearing was still too muffled, distorted, not clear or whatever you want to call it to try. Since the last few days have been awesome with the improvement in clarity, last night I finally decided it was “time” to put the bionic ear to the test. YAAAY:blob_fire It sounded good. Not perfect because there is still a little distortion, but well enough to have a conversation without having to strain to understand. That was a wonderful feeling and I just sat there and talked with this goofy little grin on my face.

More later:wave: ,

-Carol-
Hi all! This past wk, I was helping a friend with a webdesign project and was too occupied to think about the ear! *gasp*

Today (15 days post op), the doctor removed my packing and everything suddenly seemed so loud esp the smallest noises. I came out of the doctor's room and realised that the ENT centre was very noisy! I actually cringed from the crackling noise when a guy next to me was flipping through his newspaper.

I haven't had any proper test yet but I snapped my fingers on my operated ear and it was louder than my unoperated one! (thank God, both were the same before op.)

The echo in my ear is more pronounced though but the doctor said that was normal. I confided him about my sneezing and burping. He told me the piston he placed is secure and sneezing with my mouth open shouldn't be a problem. Burping is ok too. So far, he said my ear drum has healed and everything looks good. No lifting heavy objects and no water in the ear yet. Next up is my hearing test in 6 weeks' time.

Thank you so much Carol, Noeli and Andy for all the good wishes and advice ya'll have given me. Tomorrow, I'm signing the contract for my first full time job after graduation. Let's hope all goes well.

Jazz
Hi all,

The ringing is still hardly noticable, the tastes are still there but not as strong now, the tongue going numb is gone, hearing is still great and the dizzy spells are gone!!!

My first post-op hearing test is in 10 days and when I go in, I'm scheduling having the other ear done.

So....things here are A-OK!

And you are very welcome Lisa. Let us know what you decide to do.


More later,

-Carol-
Hi all,

Dizziness was a little better yesterday and metallic taste still very strong. Only 4 more days till hearing test and packing removal. YAAAY!!

And for those of you following our stories still trying to make a decision whether or not to have the surgery...Dwalts last post says he's 19 weeks post-op, thats a typo. I wanted to point out that because he said his [U]hearing is stabilized. Remember he's just 9 weeks post-op, not 19[/U]. I know the time frame is very important to us all when trying to make that decision.

More later,

-Carol-
(27 days post op)

Hi all,

I'm glad to read that everyone's hearing is well albeit the bumpy roads.

My operated ear drives me crazy at times.. The eardrum keeps popping and sometimes I feel that my ear is full and blocked. Other times, when my eardrum pops open, the pressure feeling disappears and sounds are even louder. Is this what ya'll mean by the ear opening and closing?

My ear is still ringing (esp when I'm lying down) but i'm used to it. Right side of tongue is slowly losing its numbness but recently certain food tastes metallic. :-( Today, still hazy from sleep, I scratched my operated ear. Ouch, I accidentally flicked the healing incision on my outer ear!

My right ear is doing ok except for some instances when there will be a mild pain when I try to sleep on the right (operated) side. I don't know if my hearing is gradually improving since I removed my packing but the right ear now is def much louder than my left ear. I can finally hear the voices on my home phone! When I place the phone on my left ear, I could only hear murmurings but when I switched to my right, it's loud and clear. And here I was, thinking the phone was faulty all along. :-P

How about you guys? At what rate does your hearing continue to improve? Sigh, guess I'll finally know on my hearing test in 3 weeks' time.

PS: I'm still on the no water restriction. How do ya'll wash your hair by yourself? My mom has been washing my hair but I don't want to trouble her any longer.

Cheers,
Jazz
[QUOTE=CAB1;2818788]Hi all,

Dizziness was a little better yesterday and metallic taste still very strong. Only 4 more days till hearing test and packing removal. YAAAY!!

And for those of you following our stories still trying to make a decision whether or not to have the surgery...Dwalts last post says he's 19 weeks post-op, thats a typo. I wanted to point out that because he said his [U]hearing is stabilized. Remember he's just 9 weeks post-op, not 19[/U]. I know the time frame is very important to us all when trying to make that decision.

More later,

-Carol-[/QUOTE]
[QUOTE=jazz83;2820151](27 days post op)

Hi all,

I'm glad to read that everyone's hearing is well albeit the bumpy roads.

My operated ear drives me crazy at times.. The eardrum keeps popping and sometimes I feel that my ear is full and blocked. Other times, when my eardrum pops open, the pressure feeling disappears and sounds are even louder. Is this what ya'll mean by the ear opening and closing?

My ear is still ringing (esp when I'm lying down) but i'm used to it. Right side of tongue is slowly losing its numbness but recently certain food tastes metallic. :-( Today, still hazy from sleep, I scratched my operated ear. Ouch, I accidentally flicked the healing incision on my outer ear!

My right ear is doing ok except for some instances when there will be a mild pain when I try to sleep on the right (operated) side. I don't know if my hearing is gradually improving since I removed my packing but the right ear now is def much louder than my left ear. I can finally hear the voices on my home phone! When I place the phone on my left ear, I could only hear murmurings but when I switched to my right, it's loud and clear. And here I was, thinking the phone was faulty all along. :-P

How about you guys? At what rate does your hearing continue to improve? Sigh, guess I'll finally know on my hearing test in 3 weeks' time.

PS: I'm still on the no water restriction. How do ya'll wash your hair by yourself? My mom has been washing my hair but I don't want to trouble her any longer.

Cheers,
Jazz[/QUOTE]
Ye Jazz, that's exactly what I'm talking about when I say my ear opens and closes. Hang in there, it won't last forever.

I'm 6 weeks and hearing is still improving, things get clearer every day.

I use a little cup with a washrag stuffed in it to hold over my ear when washing my hair. It took little coordination actually washing my hair with only one hand because the other holds the cup, but after the first couple of showers, it got a little easier to do. However, my hair is only about 2 inches long, so if you have long hair you might have a much harder time doing it this way.
I know, I know....but man, I was ready to get the stuff out. I'll live.

The last 3 days dizziness has been a lot better. I'm back to not being dizzy unless I make some real swift head movements. I can now go from a vertical to a horizontal position without dizziness at all. THAT is a major improvement.

I'm 6 weeks post-op now. I wonder why some docs take out packing after 1 week and mine waits 6 weeks to do it. Hmmm. Oh well, guess I'll ask that question Monday too.

I still catch myself starting out with the left ear (new ear) on the phone and midway through the call, I'll switch ears. But, at least I'm remembering to use it more. It's funny really that I do that because to switch ears I have to take out my hearing aid in the other ear to keep it from squealing..... and I still don't realize i'm doing it. Years of habit to break!

Taster is still getting metallic and sweet tastes, but it's calming down quite a buit. The really strong "taste" moments are getting less frequent.

More later,

-Carol-
Awww, Carol that sucks man. Hehe.. don't worry, what's 5 more days after 6 weeks of anticipation! :-P My hearing test is on the afternoon of march 26th but I doubt I could get leave because of classes (I'm a highschool teacher). I might have to reschedule it. :-(

By the way, I went for my medical check up for work. I was so happy when they ticked on the medical report "[i]hearing: normal[/i]" Hehe, I was amazed I could hear the examining doctor's voice clearly. Pre-op, I had a hard time straining to hear doctors as one tend to speak softer during a one-to-one conversation.

Luciano, hope you're recovering well. My dizziness stopped on the 5th day post op. Maybe because I stopped taking the strong painkillers as well then. My doc's like that too. I had to ask him all the restrictions since he didn't elaborate enough. But it's odd though, he kept emphasizing on the no water in the ear for about a month and not to carry heavy things while yours seems flexible. The "no water" is killing me since I have long hair and I need to wash it everyday to prevent dandruff!

Cheers,
Jazz
Hello all, I am looking for some answers.

I had a right ear stapedectomy on Feb. 7th, 2007. Overall , things went well. I had some post op sickness (4-6 hrs) mostly from the anesthesia, and a small amount of dizziness for about a week after surgery (usually when siting up after lying down). I had some minor drainage from the ear for 2-3 days after surgery. I had very little pain, and did not need to take any pain meds.
My taste was not affected at all. Initially, hearing was improved, although it was like hearing through a tin can. Loud noises were distorted, and some were too loud. I could actually hear noises that I could not hear before surgery, like the snow crunching under my boots, my sons quiet talking, and outside distant noises. It was awsome!!! I actually felt like a new human being. It was an almost life changing experience.
BUT,
When the packing was removed 1 week after surgery, there was NO noticeable hearing improvement. It still sounds like I have an ear plug in that ear. The loud noises have subsided, and so has the distortion, but the ear still seems plugged. Hearing is probably worse right now than before surgery.
I go to the surgeon this week on March 7th. I am very anxious!!!

Is there anyone out there that has had the same experience, that could give me some info as to what to expect in the future. I have read, and read and read about what to expect after surgery, but there is nothing like hearing from someone who has lived it.

thanks dave
Hello all, I am looking for some answers.

I had a right ear stapedectomy on Feb. 7th, 2007. Overall , things went very well. I had some post op sickness (4-6 hrs) mostly from the anesthesia, and a small amount of dizziness for about a week after surgery (usually when siting up after lying down). I had some minor drainage from the ear for 3-4 days after surgery. I had very little pain, and did not need to take any pain meds.
My taste was not affected at all! Initially, hearing was greatly improved, although it was like hearing through a tin can. Any loud noises were distorted, and some were too loud. I could actually hear noises that I could not hear before surgery, like the snow crunching under my boots, my sons quiet talking, and outside distant noises. It was awsome!!! I actually felt like a new human being. It was an almost life changing experience. I was looking forward to talking with my co workers without trying to guess what they were saying.
BUT,
When the packing was removed 1 week after surgery, there was NO noticeable hearing improvement. It still sounds like I have an ear plug in that ear. The loud noises have subsided, and so has the distortion, but the ear still seems plugged. Hearing is probably worse right now than before surgery.
I go to the surgeon for a follow up this week on March 7th. I am very anxious!!!
I have the ringing in my ear also.

Is there anyone out there that could give me some info as to what to expect in the future. I have read, and read and read about what to expect after surgery, but there is nothing like hearing from someone who has lived it.

thanks

dave
Hi all,


I know you have all been on the edge of your seats waiting for this report. (Ok, ok. Maybe it was just me on the edge of my seat, but I’ll share the results anyways).

The goal of the surgery is to “close the air-bone gap”, which means trying to get the “air numbers” to match up as close as possible to the “bone numbers”. Mine are a lot better than they were, but there is still room for improvement. The doc said that the hearing would continue to improve the next 3 months.

Normal hearing is anywhere between 0 and 20 decibels.


“Bone” = the best that can be expected by each frequency for ME. Most of my hearing loss is from Otosclerosis but I do also have some loss due to nerve damage and that portion of loss cannot be restored.

“Air Old” = my numbers before surgery.

“Air New” = my numbers today which is 7 weeks post-op.


..............dB..............dB..................dB
Hz.......air (old)......air (new) .........bone (goal)
250........75...............35...................5
500........85...............60..................30
1000......65...............25..................25
2000......75...............40..................40
4000......50...............20..................20

My Speech Recognition Threshold used to be 65dB. Now it's 25dB.

As you can see my 1000-4000 which are the higher frequencies (females, kids, etc) are as good as they will ever be, the "air new" and "bone" match. The 250-500 are the low sounds (male voices, etc) and hopefully it will improve.

**He removed the packing from my ear about 10 minutes before the hearing test.

It hurt like **** . He pulled and poked and pulled and he couldn’t get the stuff out. It felt like he was trying to pull a one inch rock through my ear canal or something equally as painful. He ended up putting some liquid COLACE (stool softener) in my ear to soften up the packing so he could pull it out. :D It’s ok, you can laugh – I have been. I know its funny but it was very effective.

Needless to say the headphones hurt my ear during the hearing test because of that. So, I don’t know if these numbers are really accurate because I was hurting and distracted by it. It’s now 5 hours after he took packing out and my ear canal STILL hurts. Remember my packing was in for seven weeks and it obviously thought it was going to stay.

Doc said I could get water in the ear now and then started to list other things I could resume doing. I stopped him and said, “Instead of telling me all the things it’s ok to do now, just give me the do not do list because hopefully it’s shorter.” He laughed and said that there was nothing I could not do, no restrictions at all.:) :)

Surgery for the right ear is scheduled for April 17th. Yippee, I get to start this all over again..:dizzy:

More later,

-Carol-
(36 days post op)

Welcome Dave and Shaydad!

Dave, don't worry. Your eardrum is still healing and it's "opening" and "closing". So there are times where your hearing sounds poorer. It will take time for the ear to heal and stabilise while hearing continues to improve for the next 3-6 months.

Luciano, I do have stitches on my outer ear! My doc made an incision to widen the ear canal.

Carol!! I'm so happy for you. Your results are amazing! I can only hope to achieve such improvements in my upcoming test. *fingers crossed*

I don't know what happened but my operated ear started doing that crackling noise again the past two days during bedtime. I started panicking, thinking something's wrong with the eardrum but I guess maybe it's still healing. I have no problem with dizziness but sometimes there's some fleeting pain that last for a few secs.

My ear pops a lot these past week and opens more. Things aren't as loud anymore and I think it's stabilising (I don't have to cover my ears when I shut the creaky door). One problem I'm experiencing is the direction of sound. In the doctor's office the other day, I heard someone call my name loud and clear but I can't distinguish the direction of the sound. Hmmm...


Cheers,
Jazz
I am a 42 year old female. I was diagnosed with otosclerosis in both ears last November. I went to have my hearing checked since it was becoming harder to hear certain voices in conversation.

I had my first stapedectomy yesterday morning on my left ear. Post Op - a lot of spinning and nausea. :dizzy: It subsided as the day went on. 3 prescriptions - one for nausea/dizziness, Tylenol with Codeine for pain and an antibiotic ear drop to start in 10 days. I didn't use the Tylenol w/ codeine since the pain wasn't that severe. Also, I took the nausea meds today as a precaution. A little oozing of the ear overnight, so I replaced the cotton that the doc had placed. Last night I used my cell phone and noticed tones/sounds that it makes during dialing that I had never heard before! That was the best!:D
I feel great today. A little light headed and slight ear oozing. Also, a sore throat from the breathing tube used in surgery and a loss of taste and sensation on the left side of my tongue and my ear feels like its packed. (no outer ear incision as others have had) Ordinary things sound really, really loud! But a small price to pay to be on my way to hearing normally again.
So far, I can't wait to get the right one done!
I had my stapedectomy on my right ear two days ago and am glad I found this forum. The doctor didn't give me the full run down of what to expect post-op, so reading everyone's experiences has been helpful.

I still have the dizzyness if I move my head too quickly, when leaning back in a chair, or looking up. The first day was the worst, though it did get better throughout the day. The popping noises startled me - that was something I did not expect, but seems to be normal according to other's experience. I've also experienced the loud noises. I didn't realize how loud a toilet flushing can be!!

I do have a question for everyone - how are you keeping the ear dry during showers? I took my first shower this morning and it seems I just barely managed to keep water out. I coated a cotton ball with vaseline and taped it up well, with a plastic sleeve over, but still had some water get inside the sleeve. Is there a magic solution?

Thanks!
Hello All,
I am now 4 days post op. Still got the tipsy feeling when I move my head quickly or when I lay down. I'm getting used to the lack of full taste on the operated side of my tongue. I am a little concerned by the still sore throat and what appears to be a case of acid reflux or indigestion. It feels like there is something stuck at the base of my throat.
Did anyone else experience this? Also a few white spots on the inside of my cheeks. Looks a little like when a newborn has thrush, but not as severe.
(I did call my ENT, if it's not better by Monday, I'll go in for a visit)
Just wondering.
I had the sore throat the first and second day post-op due to the oxygen tube, but it's better today. I was very sore to the touch on my neck, chest, and upper back yesterday, so figured the roughed me up good in the operating room (j/k.. :jester: ). No white spots though. Sorry to hear you have this.
Hello all!

I thought I would give my report, as everyone else's has been very helpful.

I had a stapedectomy on my right ear on 2/28/07, I am now 18 days post-op.

I had a hard time deciding weather or not to do the surgery, because my situation seems different from the norm. I first had "noticed" hearing loss in my ear around age 10. We had hearing tests at school, and they notified my parents about the outcome. I went to the doctor and they said when I was older I could have surgery and we left it at that. Throughout my life the only time it affected me was if someone tried to whisper in that ear, and I could not put the phone to my ear.
In the last several years, it has bothered me more because at work if I had the phone to my left ear, and someone in the office was trying to get my attention, I could not hear them. So, when I went to the doctor, he said that it was unusual to have it that early, but from what he could tell is that it was otosclerosis.

So, I decided to have the surgery. He gave me the option of local or general anethesia. He said he prefered to do local, because I would be able to tell him if I was feeling dizzy or had any nausea. I am the biggest chicken when it comes to all of this, so I made a deal with him. I said I would do local, as long as if I started freaking out, he would put me under! Let me tell you, I am so glad I did local....I did really well.

The surgery actually took longer as my facial nerve was over the bone, so he had to be extra careful, but all went well and I was on my way home within 1/2 hour after surgery! I had no dizziness or nausea. I actually felt really well!

Day 2 and 3 I did have a little dizziness and I tired pretty easy but that was it. I had it done on a Wednesday and went back to work on Monday, but only stayed a couple hours. Then went back full-time on Tuesday.

At my post-op visit, I was so scared, because I read the report about getting the packing out...however, I was fortunate enough to have a Doctor that does a gel antibiotic packing that does not have to be removed!!!

Anyway, here is where I am now. For the last week, I sound like I have a cold because of the fluid. I can hear myself breathe and talk out of my ear, which is annoying, but the Doc says it will go away (at night when I lay down it does go away...now just waiting for the day time.)
It is funny how I have read the other posts and sooo relate. The first time I drove my SUV, I thought there was something wrong as it was so loud and the same with the toilet...again....LOUD!! My boyfriend is adjusting as I am always telling him...Quit talking so LOUD!! Again, the Doc said it just takes time to adjust. Anybody out there have an approximate timeline for when it does ??

Anyway, hope this helps anyone with any questions they may have. I am fortunate enought to only have otosclorsis in 1 ear, but I would definately do it all over again.

Good luck !!
Thanks Twillia for the input on avoiding water. I would have to agree the vaseline cotton ball and tape method has worked the best. I have shoulder length, thick-thick hair. My husband washed it one day, but his rinsing abilities were limited, so found it easier to just lean my head to one side in the shower and wash it myself.

So, I'm on day 5 post-op now. My ear has been very plugged up the last two days, but the doctor told me this was normal. My first appt with him is Wednesday, one week after surgery, so curious to see how it's healing and if he removes anything. I'm guessing I have the dissolving packing. My ear drum tore during surgery (apparently I have very thin ear drums) and he mentioned "extra packing", plus he had to do a graft to help it close (he took this from the jaw muscle that runs right behind the ear, so in addition to stuff in my ear I also have 5 stiches running right behind it - lucky me).

Other stuff - dizzyness only during fast moves, but much better. Never had taste issues. Yawning produces more crackling and popping than sneezing, so wonder if I'm yawning too much.

Hope everyone else is doing great and hearing more and more.
Kathy,

I'm sending you lots of good vibes. I'm sure you'll do just fine tomorrow!

I'm six days post op now, same as Matt, and the hardest part is just being patient. I know I'm supposed to take it easy, but the weather is gorgeous (I'm in the DC area) and I just got back from a 1/2 hour walk!

My first follow up is tomorrow and I'm hoping to get the packing out so I can hear all the birds that have been migrating back for spring. My husband is just as excited for me - it's pretty cool to think they can put this titanium/platinum thing in your ear and help you hear again.

The heartbeat thumping has been constant still through today, but there have been the occasional seconds where it stops so I'm hopeful. On a positive note, I "tested" my hearing today briefly w/o the cotton ball in it and could hear my fingers rubbed together next to my ear. I haven't been able to hear that in years!

Let us know how it goes and good luck!

Monica
Today is day 9 post op on my right ear. I went to the my doctor today for my follow-up visit. He noticed that the packing looked "stuck" so he put some peroxide in my ear for a few mins before pulling out the packing painlessly. He sucked the peroxide out first with a vacuum. It was kind of loud, but nothing too bad.

I'm feeling great this afternoon. I'm pretty sure my hearing has steadily been getting better on the whole. I'm still missing parts of conversations, but I'm hearing the TV, radio, and my cell phone all on lower settings. Tuesday I started hearing through "pops" like when you're on a plane. I didn't quite realize how uncomfortable the packing was until my dr took it out. I think the healing process should go pretty easy now that there's no obstruction in my ear anymore. It feels nice to have air flowing around in there.
I have my follow up hearing test scheduled for May 1st and I have tentatively scheduled surgery for the left ear on May 16th.

Oh, and my hearing pre-op was about 55db in my right ear. My left is at about 45db. I'll post my results in May when I see what the total difference in hearing in the right ear turns out to be.

I'm so excited to be entering the hearing world again!

Keep posting your stories and questions! I think this has been a really positive, great forum to read throughout my journey and hope we can keep sharing the support!

-Matt
Wow.. and yes, more lenient doesn't quite cover it. I'm glad your surgery went well though and you're already noticing the sounds - that's great!

My surgery started around 9am and I was home by 3pm - would have been home sooner had the ear drum not torn and the doc had to do a graft, plus I think the anesthesiologist over did it with the meds and I was out a bit longer than they expected. I had the same experience as you waking up - I just wanted to sleep too! I was having a good dream (can't remember it now of course) and just wanted to get back to it!! :)

The continued bed rest surprises me too. Maybe you had more potential for complications and your doctor was just being careful. I was told to take it easy and all the usual limitations - no heavy lifting, working out (though I've been doing walks each day), no flying, etc. Mainly it was to just take it easy, which is not an easy prescription to follow for me. But, no requirement to stay laying down. Interesting. What was the reason for your graft?

Also, your meds surprises me. Especially needing stool softener - kind of redundant with the antibiotics, or maybe that was my own reaction to the antibiotics :dizzy: . I had no issues on the urinating front, though I did have lots of burping since then. I noticed someone else wrote about that too. I partly wonder if I always burped a lot and never noticed - notice it now because it pops in my ear each time! I cringe each time I burp even more than sneezing!

Anyway, hope you're able to get up and move around a bit more. I'm currently at 9 days post-op and now leave the cotton ball out during the day. The sounds are very tinny, but it's wild to hear in stereo again! Dizzyness still persists slightly. The loud heartbeat is gone (sounded like the blood was crashing through boxes), but there is still a beat that is more like a soft wind and much more bearable. Gets louder when I move a lot and my heart starts pumping harder. It's my reminder to take it easy I guess.

Good luck to everyone! Keep posting progress reports!
Hi everyone. I had my stapedectomy a week ago (friday march 16th). Believe it or not, this is my fourth operation. And I have to say, I wish something like this forum had existed when I went through this the first time in 1990 (or even before my recent operation). It's wonderful that this forum exists. I read back to all of the older closed threads on this topic and I want to thank everyone for the work they've done here!!

Unlike many of you, my hearing loss is not related to osteoporosis, but to a bicycle accident I had as a child (it fractured my stapes). So, my hearing loss in my left ear was pretty total (but all conductive). The first operation I had was in 1990, which was before the lasers (I was awake for the operation and as many of you have pointed out, it was just awful). They put in a high tech superglue to adhere the stapes and it worked great. I could hear again. However, something slipped (the glue) and my hearing went from 100% to 80%. The doctor decided to open me up again, but instead of putting in more glue, he took out the stapes !!! Why? oh Why? Jerk, and put in a prosthetic, which didn't hold. This was 1991. I then had a third operation, 1992, with another physician, and he put in another prosthetic and it also blew out -- this time about two weeks after surgery (a bus was going by and it got really loud and then . . . nothing).

I was not looking forward to this operation, assuming, incorrectly, that nothing could be done (I thought maybe the last one broke something). I had the surgery last week and I was put completely under (I prefer this now and will never go back to being awake). It took about an hour and a half. There was some recovery time afterwards and I went home that night a few hours after surgery. I had the same symptoms most of you have had: nausea, tiredness, loud sounds (everything is loud to me because I am used to hearing nothing out of that ear), blood (seems to have slowed in recent days), some of the sound of your heartbeat stuff, but not very much. Mostly I am just taking it easy and have been very low key. I went back to work Tuesday of this week and it has been slow. I am also worried getting groceries and carrying my computer/book bags. I don't want to lift too much. Mostly just taking it easy and slowly coming back. BTW: I did not get most of your extensive post-op instructions (I think my dr. thought I just knew all of this because I had been through it before, but all I got was no water in the ear, no strenuous activity for 2 weeks, return to normal acitivity in 24 hours). I asked and the doctor said the prosthetic from 1992 (the last operation I had) was simply in the wrong place and wasn't helping me. He also said he, my current physician, removed another bone that wasn't helping me. It sounded like there are two prostheses in there now.

I don't go back to the doctor until a week from Monday. Looking forward to hearing what he has to say. Having been through this before, some of it (the experience) is coming back to me in memories, and some of it I am having to get from you guys on here. I am TERRIFIED I will do something and it will break (again) and I won't be able to hear again. There's nothing worse than suddenly being able to hear and then suddenly not being able to hear. But reading all of your reports and such . . . I really want to believe that this is going to work. I'm trying not to get my hopes up, but it's hard not to.

Well, just wanted to say hi and tell you my story. I'll check back and post updates when I know something. -- Rob
Hi all,

So many new brave people have decided to rejoin the hearing world have joined us in the last couple of weeks! WOW!

I have read all your posts and wish you all well. Just remember..PATIENCE :p

It is interesting to see all the differences is techniques and the post-op instructions and med's. Very odd!

Rob - You have been through a lot and I'm sure the decision to have another op each time has been extrememly hard. Please keep us posted, I'm really interested to know if this last surgery was successful. Giving the choices of not being able to hear or having the surgery - yet again - well, my thought would be a couple of months of all the "bumps" in the road is worth it. I read stories about problems a few years after surgeries and decided before I ever had mine done that even if I had to go through this every 5 years or so, it's still worth it. Hearing is too important not to keep trying.

My update: 10 weeks post op.
No ringing. No buzzing. No "hearbeat - pulse". No pain. No dizziness. No "opens and closes" (popping).

I had one frequency that was still at 60bd (pre-op was 85db)three weeks ago. I think it's getting better but only another hearing test will show for sure. I am still surprised daily at all the new things I hear.

My tongue still goes "stupid" (numb) every once in a while. I'll be mid-sentence and all of the sudden I can't pronounce a couple of words. I just stop and wait about 30 seconds and then it functions properly. Doc said it was just the nerves still coming back. The metallic and then sweet tastes were minimal for a couple of weeks but now seem to be increasing in frequency again. This too shall pass. As funny as it sounds, I'm getting used to it and sometimes it actually tastes pretty good :confused:

Other than that, everything is great!

Left ear is scheduled for April 17th. I'm still not sure if I can take the time off because of my work schedule and may have to postpone it. I'll know for sure by April 5th.

Keep posting everyone. This is a wonderful support group!!

More later,
-Carol-
Hi everyone, thought would chime in and give my story too. :wave:

I too have just had my 2nd stapedectomy. This time to fix my left ear. I had the right one done back in '99. The first operation went very well and restored my hearing quite a bit. I went in on March 19th and Dr. said that everything went well. Surgery took about 90 minutes, but the doctor said it was normal for it to take that long because of my OI (osteogenesis imperfecta). The OI kind of complicates everything because the bones can be incredible thick, brittle, and/or broken. The doctor says he has done over 1000 stapedectomies and 100's with people with OI. So hopefully i will have a good chance at getting most of my hearing back to atleast a somewhat normal range.

I am now on post op day 5, and seem to be feeling the usual effect as most of the people here have mentioned. I can't wait to get the packing out of my ear, because during the first surgery the doctor didn't pack my ear with anything and I noticed the results immediately, when he was scratching the pillow and the sound was driving me nuts!:dizzy: Hopefully at my next appointement 3/27 the packing will come out.

One thing I have noticed, that i didn't see posted in the 20 some odd page i read this morning or i very well could have missed it, is that my own voice seems incredibly loud in my head. Has anyone else experienced this?

This seems to be a great board, just wish i had found it alot sooner.
Hi Mark:

Yes!!! My voice is soooo loud. I feel like I'm yelling and people keep telling me to speak up. My own voice is sometimes sending me to that spinning/vibrating feeling.

Another thing I'm noticing that I dont believe I saw mentioned is that my jaw on the operated side feels a little stiff. Anyone else feeling that?

Mark, I noticed the ability to hear much more a few minutes after I came to, but within about 15 minutes nothing. My doctor did the sratching on the pillow too and I couldn't hear it. I do think it's from the swelling, extra fluid and more importantly the packing. If I just lightly touch the cotton ball i can hear that pretty loudly. I find myself doing that a lot to reassure myself.

It's kind of nervewracking, isn't it?? There are so many internal sounds and I feel every little thing. Every burp, yawn, chew, etc.. It gets me freaked out wondering if I've ruined something.

Last night and yesterday I do believe I was starting to hear. It's kind of coming and going. I was plugging my non operated ear (which also has otosclerosis) and I was hearing my family talking in the the other room through my operated ear. However, it sounded like they were like a mile away and very muffled. I think that's partly because of the packing too.

Mornings are hardest for me. Even as I'm typing this I feel like I'm leaning sideways and my head feels like it's buzzing. It's also very hard to get good sleep. If I lay flat on a pillow, I feel upside down. so I've been laying on my unoperated ear and my neck and back are getting sore from being in that position. Plus, I'm a stomache/side sleeper and I normally sleep on the operated side so it really sucks to not be able to get comfortable. sometimes I just get out of bed and go to a recliner.

My husband is cracking me up. I was laying in bed last night and i felt the slightest movement near my ear (i didn't hear anything) and it was him sneaking up trying to make sounds by my ear to see if I could hear it. then he would wait a while and try whispering to me. Unfortunately I haven't heard him yet but I always notice the 'movement' and turn to see. I think he's really hoping I will start hearing.

OK, so today is day four post op for me. I am feeling pain today (like an ear infection, with each heartbeat feels like my ear drum might burst) so i took some ibuproferen. Feeling more positive than yesterday. I'm really anxious to get going back to normal life but I know that I should not be driving yet as long as I'm dizzy and I'm feeling guilty about that. We have 4 kids still living at home, all in different activities and I just hate asking for help. When I was getting ready for this surgery, I only made sure to have things covered for 3-4 days...I had NO IDEA I would be out of it longer than that. Wishful thinking or denial??

Have a great day everyone.
Hi Kathy,

I think the stiff jaw is ok. Mine was a little stiff/sore also. Seems like I had the worst sore throat on the operated side after surgery, which seemed to subside by the next day.

Driving did seem like a daunting task for me too. But on Friday, the 23rd post op day #4, i had to go pick up my check from work, so i drove the 4 or 5 miles to work, and the hardest part was probably when i got there i was a little uneasy when i got out of my vehicle, but nothing too bad.

I too am very anxious to get back to my normal routine. During my last appointment, before the operation, my doctor said that i would have to take two weeks off of work due to the fact that i drive truck for a paving company. So I'm really hoping that on the 27th he will release me to go back to work on the 2nd.

Post op day #6, still not able to hear out of the operated ear, but hoping it is due to the packing. Overall, seem to be doing a little better than yesterday.:)
Yes, the loudness of my voice is the first thing I noticed after the very first operation. Of course, not being able to hear, I have no idea how loud my voice is (trust me, it is booming loud -- I have a bass voice). I talked to a friend on the phone Friday and she said I sounded quiter and was the calmsest she had ever heard me . . . LOL . . .

I am on day 9 post-op here. Doing really well. Some pain came and went over the weekend, but I haven't been taking any of the tylenol 3 because it wipes me out. I ran out of the ear drops today. Will call tomorrow to find out if I should get more and keep using them until I go back to the doctor in a week. I can still hear--not sure if it is lower (packing, fluid, etc.) or just that I am getting used to it. I did notice, as some of you have commented on, when driving on the freeway Friday how freaking loud it was. Had to roll up the window. Also, box stores (why didn't I buy that LCD TV before this operation) and cafes are impossibly loud. Had a great experience the other day. I am a teacher and a woman on my left (the bad ear) was talking to another student and I heard her. She said, "you heard that?" It was great. I worry about driving though, as there are a lot of potholes in california (the roads are bad here). Freaks me out everytime I go over one.

Ultimately, if I even get a small amount of improvement it will have been worth it to me to do this. Just be patient everyone. This really does take time to recover from.
Hi all - I'm on day 12 post op now and not feeling optimistic. I know I should be patient, but now starting to wonder if something slipped or whatever - I haven't been able to hear much out of my operated ear in the past two days.

Initially, I did hear out it and had all the loud noises, so hoping it's just plugged or closed for now and will open up again. I had most of the packing removed last week, with a little still covering the graft on my eardrum which will be removed this Wednesday.

If any of those who are further along had the same experience, please let me know!

Kathy - I also had the jaw tightness and soreness and still do on occasion. Mine is mainly due to the doctor using tissue from the jaw muscle right behind my ear to graft the ear drum closed.

Other than not hearing :confused:, the dizzyness has finally gone away for the most part. It only took about 10 days! I never had taste issues, though reading everyone else talk about the sweet/salty experience makes me wonder if I missed out!
Well, post op day 8 for me. Went to the doc to day for post op check-up and everything seems to be going really well. No signs of infection or anything bad, just a little dried blood by the eardrum, but he said that it will come out on its own.:)

I was finally given the ok to take a normal shower:D:blob_fire never been so happy to hear that in my life, and given the ok to go back to work on Monday.:D

As for as changing the cotton on the outside of the ear, I changed it everyday, but doc said i only needed to keep it in for the first 3 or 4 days. As far as sleeping on the operated side, my doc never mentioned anything to me about that after the operation, even though i did try to avoid it because I would wake up in the morning and my ear would be a little sore. But I twist and turn so much when i sleep that it would be almost impossible for me to stay off the ear all night.

I've finally noticed i am slowly gaining my hearing back in the operated ear. Doc did the tuning fork test, and said he was very pleased with it, and said i did regain the conductive part of my hearing back!! Then he said he would want to do a hearing test in 6 weeks and one in a year, but that's all he needed to see me.:D I think he is a GREAT doctor, but the less i have to see him the better.:jester: I would recommend Dr. Kevin McKennan in Sacramento to everyone, he definitely knows his stuff.
It's so great to read the reports of other's experiences. It just reminds me how alone I was in 1990, 91, and 92 when I had my first 3 operations (no world wide web).

My first three operations I had bandages on the outside of my ear and had to change the dressing all the the time. This time . . . nothing. No bandages (and he cut a piece of cartlidge in my ear this time--that was new compared to the old operations). A nurse in post-op put a cotton ball in the ear and I pretty much just used that technique for the first week or so (well, as long as I had bleeding). For showers I had left over shower caps from Vegas (the Luxor puts them in these cool little cardboard pyramids, so I grabbed a few of em and brought em home--they work great!!).

I am at 11 days and feeling so much better. the numbness in my taste buds has subsided, but there is still some weird sweet/salt taste (salty foods, I discovered, make it worse). I expect it to subside. However, my doctor told me that few people want to have a fourth operation, as I chose to do, because each time they lose taste sensation (and there is the possibility of the metallic taste never going away or the taste forever being altered).

Well, I hope everyone's operation is a success. I know how hard this is and I also know how hard it is when it doesn't work. I find myself trying hard to be optimistic, but also wanting (emotional) distance and not expecting too much. But, I have to admit, I am getting excited. Oh yeah, today when I was giving a lecture, my ear would pop open while I was talking (so the volume would come and go really fast -- god, how distracting). I can't wait to have my post-op consultation and find out where things are and where I stand.
Carol, I forgot to thank you (I wrote it in a post that didn't post -- sometimes it seems I have to enter my password twice to post on this forum).

Anyway, as I was saying: THANK YOU Carol for your sympathy and, more importantly, for your cheerleading on this forum. You are the new Zip (truly). I read the entire contents of the earlier thread with Zip (which you so kindly posted a link to) and just now had the chance to read through all of the previous posts on this thread (I was so excited--and exhausted--after reading through all of those other posts I didn't have time before now). Your story is wonderful to read. Just remember, you are not alone. I hate to mention age here (it truly is a state of mind and not a number and I live that everyday--and, it truly works for me), but I am 45. The bicycle accident that broke my stapes happened in 1968 (I was 6 years old!!!). I lived all of that time without being able to hear, so I know what you've been going through (and what it means to finally be able to hear). In my case, I only had this (80% or more hearing loss) in one ear and you have had to contend with a loss in both (which I truly cannot imagine).

Kathy: the itching didn't start for me until this week and it drove me nuts too. And I honestly don't know how you did all of those chores so soon. That is a lot to do. FYI: I did drive the day after my surgery (24 hours), and again in three days and every day after that, but usually short distances. But cleaning just seemed like too much activity to me (I put away some dishes and was completely fatigued). Plus, I have been afraid to over do it.

One thing I did this time out was drink tons of water post-op. I had about 2-4 liters a day of water and I think it really helped with my recovery (just in the general sense). It also was important to have on hand at first when my throat would dry up.

Okay, I hope you are all doing well. It is 2 am and I am going to sleep now! Keep posting those updates. I enjoy hearing from you all. -- Rob
Hey folks,

So today is 2 weeks post op for me. I got my packing out on day 9 and my hearing is amazing. I live in Seattle, and for the first time last weekend, I heard the drawbridge on the ship canal when I was near my apartment! I'd heard it go up when I was closer to it, but never from my house. So exciting! I'm finding out that those little water-planes are really loud too!

I'm not having any pain, but I do have a weird ringing in my ear. It's not a solid ringing, but more an in-out, like waving a metal saw. I hope it clears up. If for some reason I don't adjust to it, I may not opt to do surgery on my other ear. I just don't know if I could handle that in both ears.

Keep posting your stories everyone!

-Matt
Today is one week since my surgery or post op day 8.

Rob, you are so NOT an age to worry about! 45 is young! Hee hee, my husband is 49! We have an age difference (i'm 33) so it's always fun to hear what other peoples perspectives are on their own age. Age truly is a state of mind, I'm convinced of that. Aside from music tastes and memories of historical events, one absolutely cannot tell. Actually, I think my husband is about 17 age wise ;-). I will say prayers for each of you tonight that your ears heal and you can hear!! I cant wait to see how mine has done. I've become very withdrawn over the years from social settings. It's almost a lonely feeling. I've been fantasizing lately about going out with my husband and feeling confident and carrying on conversations without saying, "what was that? I'm sorry, I didn't hear that I have hearing loss, can you speak up?" and then when I still can't hear, do the smile and nod and pretend like I heard. LMAO! I can imagine that each of you know that feeling! I've always preferred doing things over the phone rather than in person.

My taste is still off...I notice too that salty things bring out a super sweet taste on the other side of my mouth. It's easy enough to ignore. I've had some weird sounds the last couple of days. There are times when our house becomes pretty loud (we have a 5 year old and three teens...all girls) and I've found some sounds becoming distorted...like my voice sounds like it has an underwater sound to it or a loud voice sounds more like a whistle....

Oh the itching....it's driving me BONKERS! My post op is on friday. I really hope I get the packing taken out then.

Regarding my activity...I paid for it yesterday. Yesterday was probably the worst day I've had with constantly feeling like I'm leaning or falling sideways. :dizzy: So I will now start listening to my body and taking it easy when I need to. Today I dont feel like I'm leaning over and I've only had one episode of buzziness (knocking on wood) so I really hope this is a sign that it's going to subside.

Matt that's wonderful news!!! Even with this packing in, I'm catching myself hearing things I haven't heard before. I heard our heater come on yesterday. I've never heard that. I was hearing a chirpy sound in the back yard and searched everywhere until I saw a humming bird pirched on one of our sprinklers...it was chirping. I had NO IDEA humming birds made any sound! LOL... (i was amazed also at just seeing one sitting still!). I think I will miss sleeping like a baby though. That is one of the benefits of hearing loss. :-)

The jury is still out on wether or not I'll do my other ear in a few months also. I hope that I get this great hearing and all of this will be worth it and I'll forget how crappy it feels to be off balance. My unoperated ear has a 65db loss and the gap is huge...I'm actually capable of hearing in that ear below the decibles of normal hearing. I opted to do my other ear first because the tinnitus is so loud and I'm hoping that sound will mask it.

Have a great day everyone. Would love to hear how the rest of you are doing. Carol... I'll second the grattitude. This string has really encouraged me and helped me not feel so alone and anxious (those hearing people have NO idea!).
[B]Day 18 and 1st Post-Op Doctor's Appointment[/B]

The doctor used the vacuum to clean out the ear yesterday (man, it hurt and I bled a little afterwards out of the ear). He said he was happy with the surgery. My only restrictions were: no water in the ear for two more weeks (wants me to continue using the ear drops) and no head trauma/head contact sports for 3 months. He said he sees no reason why it would not stay in there this time. I won't have a hearing test for 3 months. He did the tuning fork and I heard it just fine from the ear.

I've been excited since yesterday. This is the first time in all of this that I am letting myself feel like it is going to work. However, I did have a question for anyone who might know: last night I noticed that loud sounds were causing a vibration feeling in my ear. It happened with my voice and even when one of my roommates talked loudly. I am a little worried because this is what I remember from the very last operation when the prosthetic went "out" or suddenly silent: there was a loud sound, a bus driving by on University Ave in Seattle in an area with concrete, so it echoed, and the vibrating in the ear, and then all of a sudden . . . nothing . . . This was within days (or a day or two) of the doctor removing the packing material and vacuuming it out. So, this is why I am worried a little.

An earlier post mentioned vibrating (someone said it sounded like they had a bell vibrating in their ear), so I am curious if others have felt this vibrating.

I can't hear as well out of the operated ear as the regular one . . . yet. However, I can hear well enough to clearly hear sounds (words, etc.) and even had the stereo on in the truck and, with the window down, could still hear traffic outside my vehicle in that ear. I tried the cell phone and could make do with it, but the sound isn't quite as full as my non-operated ear.

How's everyone else doing?
Hi There!

I do get a vibrating feelig around loud noises (and I still have packing!)..I would characterize it more in my forehead...not really in my ear. Maybe I'm just weird!

I bet you'll be fine!

Here's my update. (today is post op 13 for me).

On friday (post op day 9) I went for my post op appt. He tried to remove the packing but it's really stuck in there (man that vaccuum is LOUD!). He was only able to get about half out and didn't want to force it and risk damaging the ear drum. So he left it in and sent me home with some ear drops to use for a week. I got back this friday (which will be post op 16) and he'll try to remove the rest.

He did the tuning fork and I was hearing everything that he did with the tuning fork on my operated ear but couldn't hear it in my unoperated ear ( i have a 65db loss in my unoperated ear still so I'll be getting surgery in that one as well). I took that as a great sign! I even still have packing in! :blob_fire

I can sort of hear out of my operated ear but it's muffled. I attribute that to the packing. I have been able to use it to use the phone though but I just have to focus on hearing, it doesn't come as easily as if I use my unoperated ear. I am back to normal activity now. driving, back to my old self (which is sooooo great!). My husband is thankful too...he's learned to appreciate all I do...he he.

I have no more dizziness/buzziness or leaning feelings. My tongue is still being funky. Feels almost numb most of the time but when I eat something salty, it tastes super sweet on that side. I did have one night where my teeth on that side felt/tasted extremely metalic and I was having an overabundance of saliva. that actually kept me from a good night's sleep. Hasn't happened since though.

As far as my ear goes, other than everything sounding muffled, it's popping a lot. The heartbeat tinnitus is there but very quiet (quieter than pre op). I have to think about it to hear it. I do still have the high pitch sound but I think once the packing is out I'll notice that less too.

Saturday was one of my daughter's birthday. I have a large family so there were about 20 people here (in addition to our 7). I was utterly exhausted after about an hour. Mentally exhausted. It's almost like I'm not used to hearing so much sound (albeit muffled) and my brain gets tired...anyone else experience that?

So that's all for me for now. I'll post again after my appt on friday.
Hi All - Tomorrow will make it 3 weeks post op for me. The bad feelings I had almost two weeks ago that I wasn't hearing anymore out of my operated ear have pretty much gone.

My problem is that my unoperated ear still has good hearing and my operated ear was very plugged up at that point. It's hard to notice a difference sometimes unless I plug my good ear up. Trying the phone also is reassuring as I couldn't hear a thing before. I'd say the hearing is about 1/2 that of my good ear now. I'll be patient and wait out the 3-4 months it takes to really improve.

My restrictions continue for the first month - still no water in the ear, no heavy lifting or strenuous workouts. I've taken to lots of walking to try to keep in shape!

I also had the vibrations and still do on occasion. It seems to happen more with higher pitch sounds. For the past week I've also been experiencing what I call a second radio sound. Out of the good ear I hear the normal sound, but it's the same thing but at a different pitch and volume in my operated ear. It's hard to explain - it's like two radios playing at the same time, but one is tuned differently, yet it's really one radio or one sound I'm hearing. Ok, enough of trying to explain this one!

I'm curious to know everyone's restrictions in terms of airplanes? I want to be able to take a trip in the next month, but can't if I still can't fly. I go back to the doctor next week (had same issue with some packing still stuck in the ear as Kathy - using drops too) and will ask him, but it seems everyone has been given different instructions on this.

Hope everyone is recovering well and hearing all kinds of new things!

-Monica
Day 25 Post-Op

Good news! For the past two days, all tinnitus has disappeared! I no longer hear the heartbeat even faintly. For the first time, I could actually hear the fan in our bedroom while laying on my unoperated ear! So, yes, that's a plus and minus - great to hear it, but gone now is the ability to block out all sound at night. Oh well... I'd rather hear any day!

I've also had some noticable increases in my hearing over the last couple days. I guess for me the big leaps really started just before week 3, so anyone getting discouraged in the first couple weeks, take notice and be patient!

Take care y'all and post your updates!

-Monica
Hi all.........I'm baaaaaaaaaack!

Its been a busy couple of weeks for me.

Its great that there are so many new people posting here. I've read all the posts since the last one I did. It sounds like everyone is doing well and those that are still concerned need to remember the "bumps".

Those who thanked me for being the cheerleader...I would like to say a big "You're welcome". I know how much encouragement helps us all through the scarey times.

I'm now 12 weeks post op. I went for a hearing test today for the pre-op info on my right ear. Left is still changing a bit, numbers were different than 4 weeks ago and now i'm preparing to get the right one done. IT's scheduled for May 12.

oops, gotta run. more shortly.

Remember...patience and bump, bump, bump!

Carol
Hey all... well last friday (post op day 16 i think) I had most of the packing removed. there was still about 10% in there but I was sent home to use the drops twice a day to dissolve the rest.

On the way to that appointment I heard a bunch of rapid snapping and popping and immediately after I could hear everything, despite the packing. It was very exciting! At the appointment when he was vaccuuming out the packing that loud sound pretty much made it so I couldn't hear again. And my, was I DIZZY :dizzy: after the packing came out. Dizziest I've been. The Dr. said that was normal due to the suction effect on the ear drum. I did pretty well with the tuning fork. I heard almost every sound, every pitch in my operated ear but not in my unoperated ear. I was a little concerned when he put it on my forehead and I could only hear on my unoperated ear but he explained that's a good thing. Since my unoperated ear still has otosclerosis, the bones are fixed and that's why I'm hearing it on the unoperated side more.

Today is day 23 post op for me. For about a week I completely felt normal and back to myself. but I've had a wicked cold and the buzziness feeling is back. But I'm congested everywhere (even my sinuses) and that's probably what's throwing me off. I'm pretty sure I got all the packing out as the last few days the drops just run clear and there's nothing in my ear in the morning any more. I still have two stitches that haven't dissolved and they're driving me batty. I keep forgetting they're there and accidentally scratch them. My tongue continues to play tricks on me. feels like an absense of taste unless I eat something salty, then it's a sweet taste. The metalic taste has come a few times but not often. I've told my husband I'm not going to have my other ear done until this is resolved, I think it would drive me nuts to have it all over my mouth.

Hearing wise, I know i'm hearing more though I do know there's still room for improvement. However, I dont know how much of that is my unoperated ear. The TV volume is down much more now. I hear the heater every morning (i never heard that before ) and my alarm clock now wakes me up. I'm not saying "what?" as much anymore and my kids have been surprised a few times saying, "you heard that?" when I respond to something they're saying from the other room.

Aside from a few things, I haven't really had too many "wow that's loud" experiences. However, the movie theater is LOUD! I do have the opening and closing but it's very subtle for me. There are times when I hear things loud and crystal clear and other times where I notice it's quieter and not as much clarity. My heart beat tinnitus is gone more than it's here which is nice. Before surgery it was always present and loud. I have a new sound in my ear, it's not loud so I can tune it out but it sounds almost like a piece of paper attached to a fan that's blowing.

I'm looking forward to hearing more and more!

I go back in 3 weeks and will post again then.

Oh and one more thing, I get so irritated when sitting in the car and someone gets in after me. The door slamming seriously bugs me...its not the sound though, more like the pressure ...anyone else experience that?
Hello everyone. Zorbatar - great to hear everything has gone so well for you with the surgery! I also liked the words of encouragement you gave for anyone considering the surgery. I would do it again in a heartbeat! :)

It's been (adding up here...) 5 weeks post-op for me now. About a week and half ago the doctor finally scraped the last of the packing out, and yes, I mean scraped. He had me do the drops for a week to soften it up as it had dried hard and this was right over where he had to do a graft to close my ear drum, so he was understandably reluctant to pull it off before. Still, he had to scrape and my ear felt a bit tender afterwards though he says it's all healing nicely.

I had my first hearing test then too. I didn't get the tuning fork like everyone else, but according to the tests I was hearing around 35db, where I was almost 70 before. Quite an increase, though still a lot of room to improve. Doc says my eardrum is still pretty thick from the surgery and graft and my hearing will improve more as it heals more. I'm just happy to be able to put a phone to my ear and hear the person on the other end!

I still get dizzy when I move around too much and hope this will eventually go away. Does anyone else still get this a month or more after surgery?

Other news for me is that I moved in the last two weeks from DC to Dallas. I will still fly back to DC for my next ENT appt in a couple weeks (I seem to go to the doctor a lot more than most on this board!), but ultimately need to find another ENT here in Dallas. Not looking forward to that as I had a good team of doctors in DC.

Keep on posting everyone! I know we have a lot of readers who may not post or at least don't post often, but if they're like me they're reading everything and getting encouragement! This is a good thing...

Monica
Hi All...

I'm just under 27 days post op (i think, i need to check a calendar).

So far, I'm still not sure that my hearing is that great of an improvement from before I started. I had a few "wow" moments the day most of the packing was taken out but since then, nothing to write home about. When I started I had otosclerosis in both ears and my hearing loss was just about the same in both ears (between 65-70db loss). When I snap or rub my fingers together and compare ears, it's louder in my unoperated ear! That is so disconcerting to me. I REALLY hope it's possible that I'm still experiencing swelling or fluid or something at this point. I'm thankful that I can still hear (not deaf) but I just wonder if I went through that for NOTHING?! I suspect I've only gained hearing at a few tones. I can hear my heater running now but that's really one of the only sounds that seems to be new to me. I still go around saying "what?" to everyone.

I have my next appt this friday..I'll post back then!
Update from my appt (4 weeks post op):

Well, I went yesterday, I told the ent that I'm feeling like I DID have a dramatic improvement in hearing 3 weeks ago and that since then, it's gone away. So he cleaned out my ear and gave me a hearing test. The office was so busy that I had to reschedule to come back to talk about the results (my daughter had a soccer game starting). I got a message on my voice mail after. He looked over the results and wants me to have an x-ray to see if the prosthesis has slipped. :confused:

I'm releived to hear that in a weird way, because it confirms what I've been experiencing...that my great hearing has gone away and I'm not crazy. But it saddens me as well. I'm guessing if that's the case, I'll need to have the surgery again, right?? Has anyone experienced this?

I knew the risks going into this and decided to take them. Guess I wasn't part of the 90% success rate. I'm just thankful I'm not completey deaf! If I had to go through the rest of my life with my hearing the way it is, I'm OK with that.

I do hope this can be corrected though! If this ear can't be fixed, i just cant take the risk with my other ear (both had about equal hearing loss due to otosclerosis..right now my unoperated ear is hearing BETTER than my operated ear).

Please send prayers, good vibes and good wishes!

I'll update you all once I have new info.
Topshotta...good luck to you! i'm sure you'll do great!


For me: 5 weeks post op

I dont really have much of an update. I talked to my ent a few days ago, I'm getting a CT scan on the temporal bones. He suspects the prosthesis slipped so this will confirm it. He says if that's the case, it's fixable, but I'd need to go through the surgery again. What a PITA!

I've been freaking myself searching the web to find causes of declining hearing right after stapedectomy. I've decided to stop doing that! LOL. One can find some scary stuff doing that!

On a brighter note, I did get a call this morning from his office...I get to take REAL showers now....wahoo! I'm sooooo excited, I can't wait to just let water run all over my face and head!
Lorraine - I'm just past 7 weeks post op and took my first flight yesterday. My ENT told me at my 4 week follow up that flying on a commercial airplane was ok, due to the pressurized cabins.

My ears popped a lot, but no more than they would normally. It was amazing actually - it seemed like I could hear even better than before, but that was mostly just the illusion of the opening and closing as we ascended and descended. I would suggest chewing gum during those times to help you pop your ears. I forgot, but drank water to swallow often.
I have been diagnosed with otosclerosis and have been to several ENT's for their opinion on stapedectomy and to try and find the one I would have the best confidence in for the procedure. Half of them use a general anasthetic and half use a local. The ones using a local say there is a much better chance of not losing your hearing (ie not being in the 1-2% with a dead ear after the procedure) as the hearing condition can be monitored through the operation. Has any reader had their procedure under a local???? Was it scary being awake during the operation?

I also wanted to know people's experiences about post-op activities like flying (with colds), amusement park rides, heavy workouts etc. Are there any things that cannot be done long-term after the stapes has been replaced?
Hi all,

Hope everyone is doing well.

Kathy, I read alot about a prothesis slipping. If it did, they can fix it and you will be ok. Hang in there!!

I am now 15 weeks post op. Here's my update.

No dizziness. It was extrememly bad the first 5 days, the next 3 weeks it was off and on, then it went away except when I was really tired during the next 3 weeks. So the last 8 weeks, no dizziness at all.

I still have the metallic taste at times, but not anywhere near as strong as it was.

No off balance feeling at all.

I went back to work after 9 days, the first weeks was a little tough adjusting and dealing with the dizziness. I got used to it and all was good.

Hearing - I posted my results. Hearing is much better than before surgery. SRT is now 25db instead of the 60+db that it was.

I started playing softball again after 4 weeks. Running, looking up while running, etc..and I was fine.

Bran......I was up the day after surgery. I could sit up and watch tv, mess with laptop, etc. 3 days after surgery, I could walk around (veering to the left) without wanting to puke but my mom and bf still walked beside me to make sure I didn't fall because i was really dizzy. At 5 days, I was much better. 8 days I was driving and on day 9, I went back to work. I have found nothing in the way of physical restrictions as a result of this surgery. I run, mow, swim, sneeze (hehe) etc, all without being scared now. At first I was a little apprehensive, but now...life is as usual (at least for the next 9 days).

I'm having my other ear (right one) done next week on the 17th. I'm still a lil scared but nothing like I was before the first one.

Good Luck to you Bran, and everyone else. Keep posting, we are helping so many other people make decisions and feel comfortable about knowing what to expect and when not to be scared.

More Later,

-Carol_
Well, I'm 2 months post-op and I go in tomorrow to get my other ear done. I'm not nervous like I was the last time, but I'm still not excited for the recovery. I'm hearing great with my operated ear and am optimistic about this second operation. I haven't had many side-effects, just ringing in the operated ear.
Is it possible to have no packing? The only visible stuff in my ear canal is a bit of scabby/dried blood gunk (that I would LOVE to rip out of my oh so itchy canal). I'm assuming maybe "packing" is just a wee bit of stuff way back? Surgery was 5/11 and having all the reverb super amplified hearing creepysaurus stuff. Post-op on Friday.

thanks everyone who has responded previously!
When you saw your surgeon for the post-op did he/she clean out the ear gunk? It feels like there is a disproportionate wad of stuff in there! A bit (a lot) maddening. Almost total loss of taste/numb tongue. I'm a bit more curious about this viscous paste in my mouth. I have to carry a water bottle w/ me or it gets too thick to speak. I thought it was from the anaesthesia or maybe the nausea patch or other meds but I am off everything and still the tongue paste continues.
Ohm!
Thanks so much for your responses ~
Yes, he cleaned out some of it at the 1 week and most at the 2 week post-op. There was still some of the packing stuck with dried blood where he had to do the graft on my ear drum, so he left that until the next visit. He had me put ear drops in to loosen it up.

The cleaning was a little freaky too - it's vacuumed out and it's loud! Not painful, just weird.
Hi all. I just had my first surgery on my right ear may 15th. No complications to report. Wish i had known about this forum months leading to surgery, but sure am glad to have found it! I had pain during 4 hour post op recovery, but as soon as i got my hydrocodone i was fine. Dizziness was the biggest setback. I had no nassea and a big appetite. I found myself eating more just out of boredom! The posts here make me feel so good about my decision(really the only one to make!!) I was getting a little worried, but realize it takes time for the healing process.

I've been dealing with hearing loss for about 6 years now. Finally decided to do something about it and received best news possible. Cheers to the Stapedectomy!! First post and it won't be my last. Healing prayers to all, Tony:angel:
Hi all,
Day 4 post-op. Still can't hear a thing. :(

Major dizzies everyonce in a while. Pain off and on. Ear still draining a little too.

Trying to keep a positive attitude but it's really hard to right now.

I know, I know - patience. But its driving me nuts.

Need some cheerleaders to pick me up!


More Later,

-Carol-
Going through the open-close phase. Got a good heart beat going too. Still get dizzy here and there. Can't imagine being on my feet for 9 hours at a time. Work's gonna suck!:dizzy: :confused: 6th day post-op
Carol - Don't despair (as you know)!! Not hearing for a while is something the doctors say can happen. We've all be lucky on this forum to hear fairly early, though after a couple days I remember not hearing very well at all. I'm sure you hearing will start to improve!

Deftone - I can't imagine having to stand for 9 hours without the surgery, let alone with it!! I'm pretty much dizzy-free, though there are still days that I feel it... and I'm now 9 weeks post op. It affects me more when I'm tired, so I try not to be tired :dizzy:... not always easy to do.

Bran - hopefully the reverb feeling has subsided for you! I had a hard time with that phase. That and the loud heartbeat... I even told my husband to put his ear next to mine - I was sure he had to be able hear it since it was SOOO loud. He didn't. Oh well.

Good luck everyone!
Hi all,

Day 4 (late at night) post-op.

No pain, dizzy spells everyonce in a while. Still can't hear anything except.....for the old heartbeat/pulse sound. It's LOUD.

Other than waiting to be able to hear...things are going well. My naps are even getting shorter.

Kat - I didn't get ear drops prescribed with either surgery. Just pain med, dizzy pill and antiobiotic.

More later,

-Carol-
7th day post-op. Got out of the house yesterday to feed a freinds dog and pick someone up from the airport. Wow, did i get dizzy! Probably wan't a good idea, but i managed. I go see the doctor tomorrow. Everything seems to be going as planned. This site really puts the worrying to rest.

Thanks all, Tony:cool:
Hi All,

5 Days post-op.

There is no pain to speak of. I only have the dizzies if I look up quickly or flop over in bed fast. My ear is still draining a little bit.

Had my first shower yesterday instead of a bath - boy was that interesting. I forgot how much fun it is to try to wash your hair with one hand (cause the other is holding the cup over the ear).

As far as the hearing....

Yesterday my ear was making "gurgling or bubbling" sounds for a while. Then I had the "heart beat/pulse" sound for a bit. Late afternoon some conversation started getting through. It was very light, but was getting through. I was a weee bit excited.

I, of course, then did the cover one ear and listen...cover the other ear, etc. With the TV on 19, I could hear bits and pieces of words in the operated ear. So....I guess the swelling is doing down a little.

I hope everyone is doing well.

More Later,

-Carol-
Hi all,

Today is day 20 post-op.

My hearing is not distorted anymore. (The blown speaker effect is gone).

I can hear the TV on volume 4 (and sometimes it's too loud).
I can hear the car stereo on volume 1 if I'm sitting still. With the road noise, it has to be on 3 (better than 15).

So, YAAAAAY! I can hear all sorts of stuff now pretty clearly.

Metallic taste is still there but I'm used to it and it's not annoying.

Still no pain, no dizzies since day 4.


*****************

Where is everyone else? Why are you not posting? We need updates, I'm curious and I know everyone else is as to how you guys/gals are doing.

More later:wave:

-Carol-
I had my right ear "fixed" about 15 years ago. At that time the prosthesis used was of a ferrous material which means I cannot have an MRI. As is normally the case, the worst ear was the first in line for surgery. I was evaluated two years later for the same surgery on the left ear. My ENT said I had too much neurosensory loss in what HAD been my "good ear" to warrant the surgery. I have been funtional w/o hearing aids since, but functioning below normal and with volume up to an uncomfortable level for my family. As I approached 65 I decided it was time to be reevaluated. I had the left ear operated on May 30. I had my first post-op visit today. The surgery was "successful" and the healing is progressing nicely. That said, I cannot and do not expect the same level of hearing as in the right ear. Also, I had to have the ear canal "siphoned" gently to remove some "ichy" stuff that had accumulated. Mildly worried about infection, the doctor ordered ear drops to be used twice daily and an oral antibiotic. There are risks in having the surgery. Weigh them carefully. I not only had it done, I had it done twice....years apart. The methods used today are different. The new prosthesis is of non-ferrous metal. I had three small stitches to close a small incision above my ear this time. No incision last time. Taste is messed up but I can still identify the foods that I am eating. Imagine how your tongue feels after eating very cold ice cream. That is kind of what it is like. In addition, my mouth is dry. I had a bit of light headedness yesterday but not enough to make me nauseated. I have only vomited twice, the first day and the second day. The most difficult part of recovery is just taking it easy. I want to work in my garden, pick up my grandkids, etc. I don't mind that the vacuum cleaner is too heavy for me to pick up!
Hello again...

It has now been 6 months since my surgery- right ear only... left is fine. Here is a quick overview...

The metallic/sweet taste is now gone entirely! There is hope for those of you still dealing with taste deprivation... Taste will return to normal and you will once again enjoy those tastes that are special to you.

My hearing is good now in my right ear- normal according to my hearing test 2months following surgery. However, my ear still opens up and closes a good bit. That part is not yet stable compared to my other ear. I find myself yawning or swallowing hard to get the ear to open up.

I still have ringing in that ear and probably will always have it. However, I do believe it is better than pre-surgery.

Finally, I noticed that the operated ear is not producing much ear wax and wondered if those of you who are now 4-6 months post-op have had that same experience. Is that normal?

Blessings on the journey ahead. The surgery was definitely worth it.

Dwalt
Greetings to all:

I'm new to this site, and this is my first post. I sure am glad I found this forum and have read almost all 48 pages. I can relate to a lot of everyone's circumstances, and hope I can pass mine along as well. So here goes:

I had my stapes surgery done on my right ear 3 weeks ago. I was quite nervous before the surgery, but all went well, they tested my hearing before putting in the packing (I could hear), and then they turned my head up straight to leave the operating room. That's when the whole world started spinning! They put me in post-op for 4 hours, and then I was suppose to be able to leave. Didn't happen. I was still so dizzy, and nauseated I couldn't get up. I had to spend the night. Went home the next day, but had a really rough time the next 7-10 days. Very imbalanced, nauseous, dizzy, and a lot of head pressure. I tried to work on day 8 but had an emotional meltdown and had to come home. After packing was removed (whew!) I've been able to enjoy the benefits of my new hearing, but have still struggled since then till now (3-wks out) with my balance and a lot of head pressure. I have tinnitus in my operated ear which I didn't have before, but my doctor said that may go away over time. He said everything went well with my operation, and that my eardrum has sealed up nicely. I have no restrictions on water, activities etc. However, I have just felt really bad, tired out with my head pressure, instability and swimmy-headed woozy feeling. I've had 3 follow-up visits with my doctor, and he keeps telling me to give it more time, which he is probably right. It has just been kinda scary, frustrating, and worrisome. I've really been trying to stay positive, pray about it, and be patient. And thanks to this site, I realize that it may take 2 to 3 months or more before all this goes away.

So, on the positive, my new hearing is good, (oh yes, very loud) but good, and I am enjoying that. Thanks to all of you for sharing your stories, and I will keep you posted on mine as I continue my recovery.

God Bless,
Tim
Hi all and welcome Tim!

(and I hope that MAC does come here and read this).

I'm now 4 weeks post-op.

I hear extremely well and some things are still actually too loud. Go figure!

It's mostly the loud rumbly sounds like wind noise, big trucks, airplaines, etc. that sound like that are "inside" my head. Everything else is great.

Oh, the a/c in my house, when it comes on, wakes me up/keeps me awake during the night and has been for the last two weeks. It's one of those loud rumbly noises

I still hear the tv on volume 3 or 4 and sometimes it's too loud. I still giggle about that now. Never in my wildest dreams would I have thought I could hear something that low.

The metallic taste is almost gone from both sides of the tongue. I have to think about it to actually taste it.

My left ear was my worst ear before the surgeries. I can sure tell the difference between the newly operated on left and right ears. The right hears much more than the left does. Don't take that wrong, I can hear lots out of the left - but the right is super duper bionic now. HEHE.



Tim...I have 3 words for you:

[COLOR="Red"][SIZE="5"]BUMP....BUMP....BUMP[/SIZE][/COLOR]

I had the dizzies all the way to 5 weeks with the left ear surgery and no dizzies at all past day 4 with the right ear. So...no two people OR surgeries on the same person are the same as far as the recovery time. Just be patient!

I did find that when I was physically tired, the dizzies were worse. Also if there was dizzies, there was usually a little pain. I took ibuprofen with the right ear surgery every 8 hours to help reduce the swelling. I didn't do that with the left ear...Maybe that was the difference. No swelling, no dizzies, no pain. hmmmm. Something to think about.

More Later,

-Carol-
Hi to all again:

Carol, thanks for the words of encouragement, and most importantly the "P" word. Patience, patience patience..........., you are so right.
I am a very patient person with situations and other people, but I guess I'm not with myself. I have always been very healthy and active, (I'm a triathlete, avid outdoorsman, snow skier, and participate in every other activity you can think of.) So this imbalance and disequilibrium and sickness feeling I've had for 3 weeks now has really been hard to bear. But, I've finally begun to get it all in perspective now. And thanks to this site, I've learned that maybe my post-op recovery is really not that unusual at all. If somebody had told me before the operation that it might take 1,2,3 months or so to get totally back to normal, I would have never worried so much.

So, here's my latest update-
-Today was a much better day,(23 days post-op) with only mild imbalance and tightness in the forehead. Hoping it stays that way. I think I had done to much before on some days, and paid the price the next day.

-Tinnutus is still there, but I've gotten more used to it, and I guess it's like living next to the railroad tracks, after a while you don't hear the train.

-Still feel like I need to yawn, wiggle jaw etc. all the time to relieve pressure.
I've "popped" my ears about once a day or so, which feels good, but gives me a dizzy rush when I do.

-Still learning to adjust to the hearing and loudness. I keep thinking my passenger door is open when I'm driving (on my right operated ear side) because I hear this rush of air sound. But yes, I DO NOT have to have the radio so loud anymore when I'm driving.

-Loud noise situations are bothersome, (ie. church fellowship hall with lots of people talking, or church singing in the choir) I guess time will adjust the volume.

-As I feel better I'm enjoying my new hearing more and more, and feeling better about having done the surgery.

I hope everyone is doing well, and I will keep you posted.
Happy Father's Day to all you Dad's!

Tim
Hi Carol -

I just moved to the area from Northern VA / DC area about two month's ago - one month after surgery (I drove!). I flew back for my post-op visits.

I do need to find a good ENT locally though... would you recommend either of them? I'm sure I'll be going for another Stapedectomy down the road - though hoping it's far down the road!

My unoperated ear is fairly normal still, but has started showing some Oto in the last year. It took about 5 years for my "bad" ear to reach a point of not hearing much. I don't plan on going that long next time around.... I enjoy hearing too much. :)

-Monica
Hi all,

I'm now 6 weeks post-op on the right ear.

*Metallic taste is completely gone.
*Ear still opens/closes a couple times a day but only stays closed for about 10 minutes.
*Hearing is getting clearer.
*Loud rumbly noises don't rattle my head so much anymore.
*Still no dizzies or pain since day 5.

So, everything is going well here. I get the first hearing test on right ear in 6 more weeks and the 2nd on the left ear. I can't wait to see the results.

I don't turn on the captioning on the tv at all anymore. I did for the first few weeks after this surgery just out of habit.

I hope everyone is doing well.

More later,

-Carol-
Hi. My husband just had a stapedectomy 3 days ago on July 19. He's not much for computers and I happened upon this site and thought I could find some encouragement for him. He's 53 and has had hearing loss in his right ear for 7 or 8 years. We thought it was caused from a loud blast from a machine that went off in his ear but after the surgery the dr seems to think it was something he was born with. He is very discouraged today. Right after he came out of recovery his ear 'popped' and he said "I can hear" ......even with all the packing. He said he could hear himself talk and even hear the sliding of the bow of his glasses when he put his glasses on. He was so excited and so was I. However in the last day or so he's back to not hearing anything and the 'crickets' as he calls them or the tinnitus is back to the same where it had lessened some at first. I've read in the post op 'what to expect' after surgery to him and it says to not be concerned about your hearing for 6-8 weeks. And I know from what the dr said and from what many of you have shared on this site that it's really a waiting game. I don't think he would be so discouraged and down if he hadn't heard sounds right at first and now he doesn't. I know there is swelling and the packing too. But can any of you share anything to help ? I will call the dr tomorrow and see if they need to see him. I feel helpless ......we knew the risks going in and I feel, I hope this is all 'normal'.....
It is amazing how many there are of you that have had this surgery. I pray for all of you.
Hi all,

WOW, several new brave people this week!

Viki, Senthill and Suzie's Hubby - don't do too much too soon. Take it as easy as you can for a couple weeks and anytime you get discouraged, reread this board. Then say to yourself "Patience, Patience, Patience and Bump, Bump, Bump" ;)

The reason you can't hear anything at all, even the tiniest sound like you could before surgery is....before there was no swelling and what little "wiggle" function your stapes bone had left would allow you to at least hear SOMETHING, not much, but something.

The doc has now cut away that bone and replaced it with a prosthesis. That prosthesis has to move to produce sound. The inner ear is very swollen from the trauma in the ear from the surgery....The prosthesis can't move because everything is swollen so there is no room for it to "wiggle" to help produce sound.

The point here is that....

***It's the swelling that is keeping you from hearing right now - not a failed surgery****
...just so you know!

Take an anti-inflammatory (ibuprofen, etc) every 4-6 hours. It will help reduce the swelling quicker and get you to the "hearing" stage of recovery faster. Until then, be patient and don't panic.

Suzie - remind your hubby that when you bust your knee falling down, it continues to swell for a day or so after the initial trauma. The same goes with the ear. If he could hear right after surgery and couldn't a few hours later...NORMAL..because the swelling continues from the trauma for a day or so before it starts to very slowly subside. Thats why he could hear for a lil bit then couldn't anymore. I hope you can help him understand that and calm his anxiety.

I'm glad this board helped you out in your decision and will also help you during your recoveries. Please keep us posted on your progress. Don't forget to post your "the first time i've heard this or that" stories, those are the BEST. I get all teary eyed when I read those because I can soooo relate to them.

My update:

I'm now 6 month post-op on the left ear and 9 weeks post-op on the right ear.

My left ear is great and has no lingering issues. My right ear can hear everything but still does the opens and closes every once in a while. I still have the metallic taste about once a week but it's not too strong. Other than thoses two little things, it's all good.

My hearing test was rescheduled to August 22nd. I'm excited and am having to exercise "patience" waiting for that day to arrive.

Good Luck to you all.

More Later,

-Carol-
Thank you for the replies to my post! My husband is 8 days post op now. And I shared your posts with him and they have helped. Thank you Gary and Carol! Maybe I can get him to type himself one day.

We did go back to the dr on Monday and he did a quick hearing test. Although Bob was not experiencing improvement at the moment, by the tests there was some improvement already. And the dr reassured my husband that he had done nothing to 'screw' things up as he was worried about like getting water in his ear in the shower.
He said 'nothing like dangling a carrot in front of you' referring to him being able to hear right after surgery. But all was progressing 'normal'.....but as was mentioned on this board each one of you is having his own experience within all the 'normal' range.
Since then the pain has lessened and he is no longer using pain meds. Last night he sat up in bed and said "My crickets are gone!"......He's had this awful tinnitus or 'crickets' as he calls them for years. Sometimes maddening. But last night they were gone........although replaced by a low humming and a hissing noise as if air was escaping an air hose. But instead of worrying we are hopeful that this is just step in the right direction . The other day he was in his van and playing the radio and he noticed he could 'hear' only the bass tones....he actually had to turn the bass knob down........he was excited and called me........another baby step.

He also has a 4mm titanium steel prosthesis to replace the stape bone. Amazing what they can do.

Thanks and good luck.
Suzie
[QUOTE=kadida1;3143351]I just wanted to keep this topic going


Teresea[/QUOTE]

[SIZE="3"][FONT="Lucida Console"]It is good to keep the topic going. I too like to read what other patients are experiencing. My second surgery was 5/30 of this year. My packing was completely gone/dissolved by the time I went for my 2nd post op. My binaural hearing is much better not only because the hearing in my left ear is better, but also because I can hear from both sides of my head. This gives me the ability to discern direction sounds come from but also allows me to hear more natural sounds since my left and right ears don't have the same frequency hearing range. When I sing, my tone seems more normal. Taste has not returned to normal but it is not awful. I love food and beverages with lots of flavor. I am hoping to return to being able to fully enjoy them again. Note: losing a little in the taste department is an acceptable trade off if it never returns to normal. I wish that all types of hearing loss could be restored by surgery like this and empathize with those who would not benefit or who chose the surgery and found it less successful[/FONT][/SIZE]
Hi all. I too appreciate keeping this going. I pass all of it on to my hubby. and I am encouraged myself by all of you.
Today starts the day for Bob of ear drop 2 times a day for a week until he goes for his first 'scheduled post op' appt on the 17th.
They are an antibiotic drop..........and I'm not sure if the dr said they would help dissolve the packing......he is 3 weeks out now from his surgery and not reporting much. There is still no hearing on that ear. But we are hopeful since he heard so well immediately after surgery.
Just trying to encourage him that waiting is hard and we are praying that what he heard after surgery is what we are hopeful for in the future.
Last night he played his bass guitar at praise team practice for the first time since surgery and he did say he felt pressure on that ear. but no significant sounds.
I hope I'm not a discouragement to anyone with Bob's progress..........like I said, I am encouraged by your comments and know that we have to wait and that everyone's experience is the same in many ways and also different in many. He still has his metallic taste however and like many of you, he likes the more spicey things....He is dealing with it.

We'll keep you posted......thanks everyone.
Suzie
Hi all,

DS - Sometimes I'm just sitting there and all the sudden i get "static" as if I'm changing radio stations (right ear). It only lasts for a few seconds then quits. I have never even thought about mentioning it because it happens so rarely.

It happened with my left ear too but after 13 weeks post-op, it never did it again.

Right now I have a sinus infection. My head is clogged completely. My right ear (the most recently operated ear) has a low humming noise and I can't hear a thing. If I tilt my head to the left, the pitch of the hum changes. Its not loud, it's just there. Right after I get out of the shower and my head is not clogged up for a few minutes, the hum disappears and I hear perfectly.

I'm taking major sinus drugs and hopefully my head will clear up in a couple days. The right ear is now 11 weeks post-op. I've said what and huh? about a million times in the last 3 days after not having said it at all for the last 9 weeks. It made me realize or refresh my memory of how bad my hearing was before the surgery and that the surgery really did perform miracles.

Suzie - 7 more days and Bob gets the packing out. Will he get a hearing test at that appointment or is it scheduled for later? I'm sorry he's not hearing anything yet, I know how frustrating that is. Please keep us posted on what the doc has to say.

Shirley - I'm glad to know your hearing is doing well. Have you had your hearing test yet? If so, do you know what your SRT (speech recognition threshold) was before and after?

I had to change my appointment from the 22nd to the 29th, so I won't get my hearing test until then.

More later,

-Carol-
Hi All!!

I am new to posting here, but I have been reading this forum for a week. I do have some questions for the veterans.

Background first: I starting losing hearing in my left ear around 12 years ago. About 7 years ago I went to an ENT and I was told nothing could be done. I went to an ENT, again, about 6 weeks ago. At that time they told me I had maximum conductive hearing loss in the left ear and I needed a CT scan to see what was causing it. The result of my scan showed Otosclerosis, bilaterally, although my hearing in the right ear is near normal. I had a Stapedectomy on July 31st. I am on the 14th day post-op. I never really had any vertigo after the day of the surgery, but my tongue has been numb since, but it sounds like taste should come back but it will be awhile.

I can hear from the operated ear, but it is not as loud as the un-operated ear. Load sounds are painful, but that seems to be getting better. But I am still missing some sounds my other ear can hear quite clearly. Is this normal? As the weeks progress, did anyone’s hearing become better, more sensitive? I have read a lot about the popping and hearing stabilizing, but not much on sound getting louder.


Thanks. I hope everyone is doing well.

Mos
[QUOTE=mos123;3153111]Hi All!!

I am new to posting here, but I have been reading this forum for a week. I do have some questions for the veterans.

Background first: I starting losing hearing in my left ear around 12 years ago. About 7 years ago I went to an ENT and I was told nothing could be done. I went to an ENT, again, about 6 weeks ago. At that time they told me I had maximum conductive hearing loss in the left ear and I needed a CT scan to see what was causing it. The result of my scan showed Otosclerosis, bilaterally, although my hearing in the right ear is near normal. I had a Stapedectomy on July 31st. I am on the 14th day post-op. I never really had any vertigo after the day of the surgery, but my tongue has been numb since, but it sounds like taste should come back but it will be awhile.

I can hear from the operated ear, but it is not as loud as the un-operated ear. Load sounds are painful, but that seems to be getting better. But I am still missing some sounds my other ear can hear quite clearly. Is this normal? As the weeks progress, did anyone’s hearing become better, more sensitive? I have read a lot about the popping and hearing stabilizing, but not much on sound getting louder.


Thanks. I hope everyone is doing well.

Mos[/QUOTE]

Mos,

There probably is packing in your year which would stop you from hearing very low frequency sounds.I had packing in for around 10 days and after the doctor took it off I could hear sounds in more detail.
Thanks for responding.

I saw my Doc on Day 8 post-op. He removed a clot on my eardrum and hearing did improve a at that time, but I don't see him for 9 more weeks. At that time I am scheduled for my hearing test.

I have to assume that nothing more will be taken out.

I know I need to be patient, but I am still worried.
Hang in there Suzie… I am thinking about you and your husband.

Cab,

Glad to hear (hehe) you’re over the sinus infection. I have an audio system hooked up to my TV that measures volume in dbs, so the higher the number the lower the volume. I used to have to watch with the volume on 45, and I had to strain to hear spoken words, this despite having one good ear. Now we watch with the volume on 61 and I can hear everything that is said. I also listen to music when I workout. I went back to the gym today to do light cardio (with Dr’s blessing). I normally have to listen on about 18 (out of 20). Today I could only stand it at 10. So things are looking up. I only wish this tinnitus would go away. It is making me crazy.

The tinnitus has been really loud lately. It is bothering me more than anything. For those that did have tinnitus and it went away, how long was it before it was gone?

I am now at 3 weeks post-op. The hearing is getting better daily, but is still not as good as the un-operated ear, especially higher frequencies and softer sounds. This is most likely due to a thick ear drum. I also think I may have some blood still in the ear canal and on the drum. When he removed the clot on day 8, it bled again. I also had a scab come out of the ear this weekend. So that may be affecting it as well.

Other than that everything else is fine. No dizziness or light head. The too loud sounds continue to come and go. Again, I really think it is the ear hearing new sounds or continuing to become more sensitive that causes this. Hopefully, I have to deal with this for a few months. ;) I have tickets to a concert the beginning of October. I hope I am able to go, and able to deal with the volume. I got the tickets before all of this went down. I will most likely take ear plugs with me. No sense in taking any chances.

I hope everyone else is well… Keep on posting. There will always be people that will find this thread and will need to comfort and reassurance it provides.

Mos
One more note for Suzie....

You said you hesitated posting the poor results for Bob. Please do not hesitate and I don't know of anyone on here that would NOT appreciate hearing the true story.

I/we keep stressing giving realistic answers. If someone experiences poor results, I'd rather hear about it and so everyone knows. While most people get great results....the 1% of the bad results that the doctors warn about is in fact a true statement.

Facts...the good, the bad and the ugly. Don't sugarcoat anything.

That's why I wrote about my sinus infection and my ear closing up on me...11 weeks post op for an entire week. I wanted everyone to know that it does indeed happen.

MOS - I had no tinnitus issues before or after so I can't help you there. The heartbeat or blood rushing sound is all I had and it was only for a day.

More later,

-Carol-
Hi all,

OK …here are the results of the latest hearing test.

The goal of the surgery is to “close the air-bone gap”, which means trying to get the “air numbers” to match up as close as possible to the “bone numbers”. Mine are a lot better than they were, but there is still room for improvement. The doc said that the hearing would continue to improve the next 3 months.

Normal hearing is anywhere between 0 and 20 decibels.


“Bone” = the best that can be expected by each frequency for ME. Most of my hearing loss is from Otosclerosis but I do also have some loss due to nerve damage and that portion of loss cannot be restored.


Hearing Test August 29th, 2007, - [B]Left ear- 6 months post op[/B]
..............dB..............dB........ ..........dB
Hz....air (Oct 2006)......air (today) .....bone
250........75...............40.......... ........15
500........85...............65.......... ........15
1000......65...............25........... .......20
2000......75...............40........... .......10
4000......50...............20........... .......15

[COLOR="Red"][B]SRT – 30 is now instead of 65[/B][/COLOR]


Hearing Test August 29th, 2007- [B]Right ear – 3 months post op[/B]
..............dB..............dB........ ..........dB
Hz....air (Oct 2006)......air (today).......bone
250........50...............20.......... .........5
500........54...............15........... ........25
1000......54...............30............ .......25
2000......40...............20….......... .......35
4000......35...............35............ .......15
[B][COLOR="red"]SRT – 20 is now instead of 45[/COLOR][/B]

SRT = Speech Recognition Threshold

Long story short - I CAN HEAR!

More later,

-Carol-
That is great news Cab!

My report:

I am 6 weeks post-op. I still have good days and bad days with my level of hearing. Some days my hearing is muted and my ear feels "full", other days it feels clear and I can hear really well. On these days, I almost think sound is louder in the operated ear than in my "good" ear. I saw my PCP yesterday. He looked in the ear just to check it out. I guess I have a lot of scabbing left in the canal from the incision. Waiting for that to come out. I bled a lot after surgery.

All in all, things are going well. I see my ENT on 10/15 for a checkup and the hearing test. The only thing I miss hearing are crickets. LOL I can hear them with my good ear, but not with the operated one. Maybe with time…

I can say this has changed me profoundly after just 6 weeks. I used to listen to music all the time when I was younger. Once the hearing started to go bad, I lost the enjoyment I once had, mostly due to the lack of stereo and listening to music also made my bad ear feel tired. I guess this was due to the ear drum moving, but the stapes being completed fixed in place. Over the last 2 weeks, I think I have listened to more music, than I had in the last 2 years. My ear still feels a little tired, but I am sure that has more to do with the trauma of surgery than anything else. The fidelity is almost the same as my good ear. And OMG, to hear in stereo again is amazing!

That’s all for now. I hope everyone is doing well.

Mos
Hey,
My name is Justine and I'm 18 years old. I just recently had a Stapedectomy on the 19th of September which makes it day 5.

This operation was my second one in the same ear as the new bone had fallen out. Since it was the second time around I knew what I was in for and surprisingly so when I woke up I didn't feel that dizzy. I had more pain than before since they had to re-open the wound but it wasn't that bad. I've been hearing my heart beat through my ear and that sizzling sound in my ear. One thing I'm a bit worried is that I've been hiccuping a bit which make my ear feel weird for a second.

Right now, I'm feeling much better but whenever I talk my voice sounds hallow which I find extremely weird! I can't really hear that well yet but it's pretty much hallow.

I have my first Post-Op appointment on Thursday (27th) to get the packing removed.

I pray to god that the healing process is going to plan, I really don't want to go through the whole operation failed once again. So this time around I'm really calm and not stressing overly like I did the first time and I've been extremely careful.

I really hate the fact that I can't doing much jogging or contact sports since I just started an exercise program. My doctor said I should steer clear for three months, I really can't wait that long!

P.S
I'm glad I found this forum!
Hi all:

I hope everyone is doing well. I see that it has been 3 months since I last posted here, so I thought I would give my latest update.

It has now been 4 mo. since my surgery. I've been doing quite well, even though I still continue to struggle with dizziness/vertigo/lightheadness as a result of the surgery. It happens when I look up at times, or tilt my head to the right or when I lay down at night on my right side.(surgery was on the right ear.) I'm dealing with it though, and not letting it get the best of me. I have returned to my full Triathlon exercise program (swimming, biking, running), and have run in some 5k & 10k runs. Although I didn't compete this season in Triathlon, I did complete a race of "my own" this past Sat. and it went very well. My hearing has continued to be very good, and the only other side effect I've had recently was some "buzzing" vibration as a response to sound. My ear would crackle like a bad speaker, but I could stick my finger in my ear, wiggle it around and it would go away. It was really weird. This has happened 2 or 3 times in the last month or so, lasted for 2 or 3 days and then stopped. Otherwise, I have continued to enjoy my good hearing from the surgery. I play piano, guitar and sing at church for Praise Band and solos. I played piano and sang a solo a couple of weeks ago and it was amazing! To hear my voice in full "stereo" was incredible. I really feel blessed. So, from the struggle I had the first 3-4 weeks post-op with terrible vertigo/dizziness to where I am now has been a long road, but worth it now in hindsight. I still ponder back 'n forth at times with whether I should have done the surgery, but my answer is always, "yes" and I celebrate each and every one here that had the courage to do the same.

Peace,
Tim
Hi everyone! Hope your all doing great! Getting ready to have my other ear done and very excited about it. I am a little worried that I still get spins from time to time. I'm 4 and 1/2 months post-op. Can anyone relate?
Hi Deftone - I can relate! I'm almost 7 months post op now and no longer have the spins, but I did up until the 5th month or so. I had a lot of fullness in my good ear too and kept thinking I had other issues. It all cleared up eventually though. I hope it does for you too!

Good luck with the next ear!

-Monica
Hi Everyone,

I had my stapedectomy on 10/4/07. Today is the 10th...so guess that would be day 6. After surgery, got very sick..vomiting...the spinning was really bad..I had to stay overnight in the hosp and even the next morning everything was still spinning. Never had any ear pain at all...just feels muffled from the packing. Mouth and tougue were somewhat numb..but thats pretty much gone now. I've heard some sounds...and popping in the operative ear. It was draining quite a bit the first day but, now that has stopped. The dizziness,vertigo is still my main problem. I can't drive or do much of anything else without losing my balance. My Dr. says its just going to take time..just not sure how long. My husband has been staying home with me but he's gotta go back to work today.:( I'm going to have to enlist the help of some friends to get my daughter back and forth to school...and take of my three dogs...so I am really feeling horrible and useless. I hope this passes sooner than later so I can get back to work too...MY post op appt isn't until the 18th...
Thanks for having this forum...I have read all of the threads and its helped to know others have similiar issues.

Sincerely,
Jeanne
Hi everyone!

It has been awhile, but I thought I would check in.

Arlanthe,

I had the procedure done 10 weeks ago, and it has reduced the ringing in my ears a little. It is hard to say if it will do the same for you. For the most part, Dr.s’ hesitate to say that it will help. Sometimes it will and sometimes it won’t. I have read that some people’s ringing went away after the surgery. I think that is a coin toss.

From the amount of loss you are experiencing, you might consider the procedure seriously. Again that is a personal choice, and depends on how the loss is affecting you day to day. My hearing loss was affecting my work. It was too hard for me to hear people speak in client business meetings and I was missing key points. I need to do something.

Good luck with whatever decision you make!

My update:

As I said I am 10 weeks out from my surgery. Things are going well. The ear still opens and closes, but it is getting better. I still have times when sounds are too loud. I had my initial post-op hearing test today. The operation was a complete success. The air-bone gap is completely closed across all frequencies.

For me, having the procedure was a no brainer. I had maximum conductive loss in my left ear, so the tiny risk of a failed procedure wouldn’t set me back too far. It now hears as well as my un-operated ear. This has truly been amazing. I can again hear in stereo and can tell where sound is coming from. Music is once again a joy and I can hear my children (still torn on this one). Just kidding…;)

The Dr. wants to see me once a year to monitor my right ear. I have evidence of otosclerosis in that ear. I will drop in and see how folks are doing.

Good luck everyone!!!

I really do believe this surgery is a miracle. It has helped so many people. I want to thank Cab for starting this thread. It has helped so many people through uncertain times. I know it helped me, and if I ever need to have the other ear done I will again rely on the encouragement if offers. I will continue to post on the progress of my current procedure, until I can no longer tell I had anything done.

Cheers!

Mos
HI all,

It's so good to see everyone's stories. Recoveries are widely varied which doesn't surprise me too much.....

Pops, sizzles, dizzies, ringing, heart beat/blood rushing sounds, ear opens and closes, metallic taste, numbness, zero hearing for first few weeks, different meds different rules from docs, etc. (did I leave anything out?)

**** 6 months guys and gals*****

Some of you will get lucky and it will all go away immediately. Some of you will have one or two symptoms drag on forever (at least it seems like forever at the time).

The only thing I can say to you all is "Patience"....although I'm not the best person to be giving that advice right now.

Update on me:
Left ear - 9 months today post-op. All is GREAT!

Right ear - 5 months tomorrow post-op. The only issue i'm still dealing with is the opens and closes. When the ear is open I can hear great, when it's closed or "partially" closed I obviously can't hear very much. It will be open for a few hours and right when I really need to be able to hear (walk into a meeting, phone rings, etc) it slams shut. I'm extremely frustrated with it and it puts me in a very bad mood when it happens.

I had lots and lots of allergy/sinus issues which kept me clogged up for 3 months. We thought that was the reason why the ear kept closing. So, I went through the million needle allergy test and they said I was allergic to pretty much everything. (see previous posts). The day before I was to start the allergy shots, I decided to get a 2nd opinion. I really really hate needles so that was a big decision for me to voluntarily go for a second round of the million needle test. I'm glad I did. 2nd test showed allergies to trees, weeds and cats on a minimal level. That's it. So, no 2 shots a week for life for me, just some nasal spray. While I was going through all the tests, my head finally cleared up and has been clear for 2 weeks.

It was great news that I have no major allergy issues and no shots needed - but I was really hoping in a way that THAT was the reason that was causing my ear to keep closing. The last 2 weeks it's still been doing it even when my head was clear.

Again folks - when my right ear is open I hear great so the surgery worked very well - I just can't seem to keep it open for more than a few hours a day.

I'm tired of doctors, needles, surgeries, and medical bills. I'm going to just deal with it for a couple more months and get these bills paid off (and pass the magical 6 month post-op mark). If it's still keeps closing on me, I'll search for more answers or possible solutions. I'm just tired right now.

So, there you have it folks. The Good and the Bad.

More later,

-Carol-
Hi Carol

My ear is "clogged and full" as you described and I can hear out of it but the sound is distant as in an echo or in a cave. Nonetheless, on day 3 post op I was eager to try out the new ear in challenging circumstances.

I went to the local video store with the them song for the "The Good, the Bad and the Ugly" playing in my mind for an ultimate showdown with a clerk who I am convinced is in a conspiracy to talk so softly as to drive me mad :)
(How anyone can hear and understand this guy without cue cards is beyond me. A modern day Miracle really.) Anyway, I chose my videos and confidently walked up to the cash and looked him right in the eye. He said "mghmsmph??" and I replied "What?" (and leaning over to provide the non verbal "please speak up"). "Did you find everything you wanted?" he asked with a smile. Too early from surgery I thought to myself. "Yes, thank you" I murmured.

So, I will go back again when the "clogged and full" feeling subsides. I'II be ready then.

Carol, hope that off switch thing gets resolved.

David
Hello Everyone

I went for a hearing test today so that is 10 days post op. Test results showed that my hearing has increased by 30 dB across all measurements. I am not sure how to interpret dB other than to say my hearing has greatly improved. The Dr. described it as "awesome".

I can hear conversations all over the place now though I think the ear will need time to learn how to interpret speech. I can hear the sounds but not necessarily "interpret" the speech. I noticed when doing hearing tests over the years that I could immediately identify the word spoken into the right ear but with the left there was a "translation" or "interpretation" which resulted in a slight delay in my response. I'm not sure if that is a left/right brain thing or just me. Sound is still speaker like but I think that will improve with time as I "learn" to hear again.

My taste still needs some time but I can say it is improving.

All in all outstanding results and I am very grateful to the Dr and excellent health care I received through the whole process.

I don't know what the treatment will be in 25 years for this sort of thing but if the futurist Ray Kurzweil has his way we will probably have nanobots implanted. The 21st Century promises to be quite a ride. I would fasten your seatbelts.

Thanks again to everyone for these posts. Keep them coming as they are a huge benefit for those deciding whether surgery is right for them.

David
Hi everyone
I had my stapedectomy done on 10/31. Discharged home 2 hrs after procedure.
Immediately after the procedure my hearing improved, my hearing decreased on 2nd post op day (probably due to fluid in the ear). Today is 3rd post op day my hearing is improving again I am having slight dizziness which is improving. I had some pain which controlled by tylenol hydrocodeine. tinnitus improved from 2nd to 3rd post op day.
I will keep posted
Hi Vicky

How exciting! I am sure you will be fine. I resonate completely with your frustration and not joining certain conversations. Too exhausting. I can join them now.

I have no idea whether my post op strategy helped the results or were mere fantasy on my part and had no effect on the outcome at all but here is what I did.

Instructions were not to sleep on the operated ear for 24 hrs. I did not sleep on it for at least 5 days.

I did not get water in the ear. I still have not got water in the ear. I asked the Dr. and he said give it another week - Nov 8. I think I read some instructions on a hand out by the hospital for about 5 days so there is some contradictory info here as Nov 8 would be 17 days. But on the 8th it will be back to normal for me. I also need a haircut so the ear is getting wet on that day for sure. Still not sure what the recommended duration is so I would ask around while you are in the hospital.

I made sure I took the twice daily oral antibotics prescribed until completed and also twice daily antibiotic eardrops for a full 7 days as prescribed.

I tried to take it easy as possible for the first 5 days. Hardly lifted a finger.

Food was MUSH after the surgery so soups and liquids may be better than any solid food for the first little while.

I think it's great that you are staying overnight. Less movement the better in my eyes but again this is merely conjecture on my part. I got in a car and drove for an hour after mine. Then I had to get up at 6:00 am the next morning and drive an 1hr there and back again to have the packing removed which took about 3 seconds flat. I would have preferred to lie quietly until the next day.

Wishing you all the best with the surgery and looking forward to hearing how it went.

LAXMI60 looking forward to hearing more about the results of your surgery.

David
Hi all
I am post op day 9 today, still having some dizziness(light headedness rather than spinning) and high pitched tinnitus :( :mad: , my low frequency sounds have returned after initial deterioration, since last night I am able to hear some high frequency sounds :o. Not able to sleep well due to all these changes. I went shnucks yesterday back ground noise was very loud I noticed increased tinnitus (high pitched) in the store and car. As I able to hear high pitched sounds now I hoping that my tinnitus will improve. I am able to hear TV at 7 instead of 9 (my other ear hearing is normal). I need to get adjusted to these sounds psychologically. I have self absorbing pack in ear. Ear fullness is improving.
I am not going to work for another 3-4 days since it is high stress and demanding job in noisy environment.
I did have some meltdowns but now I realize this just a bump on the road :(.
I am glad I found this message board.
Laxmi60
Thank you Monica
I felt better for few hours today, tinnitus and lightheaded sensation are slightly better today. My hearing is much better today, may be it is related to that. I started hearing high frequency sounds much better today. My hearing in low frequency sounds may be near normal now.
I don't remember the post op course of my first stapedectomy 10 years ago, my mom said it took 2 weeks to be back to normal.

laxmi
Hello all,


This is my very first post and I'm not the most computer illiterate so I hope I don't screw this up! :confused:I had a stapendectomy done on my left ear for Otosclerosis on 10/19/07. I go Monday (11/19) for my first pos-op visit. About 2 1/2 weeks post op there was a few days where my hearing felt perfect in my operated ear and I was so excited. But that went sort of downhill in week 3 and still currently is downhill. My doctor said that there's probably still fluid in my middle ear and that there still could be some of the packing and ointment he puts in the ear. Although it's supposed to dissolve on it's own, I would think there's dried up blood and some remaining packing. I hear from my operated ear, but not as loud as my un-operated ear and thing in my operated ear sound different, like tinny and the broken speaker I've read on this thread.

Sorry so long, I'm just looking for re-assurance that it's too soon to expect to hear completely normal from my operated ear. :(

Thanks!!!!!!
Hi everyone
I am post op day 16 now had minimal ligheadedness in morning after 24 hour shift, but doing well now. My hearing improved a lot, I am less sensitive to loud noises now, I am able to hear everyone well (especially men and soft spoken women). I am able to use phone on my newly operated ear.
I had stapedectomy done in both the ears. My stapedectomy was done at shea ear clinic, they invented this procedure in 1956.
Take your doctor's advise regarding the use of asprin and ibuprofen (motrin and advil) in immediate preop and postperiod as they prolong bleeding time.
I will keep posted
Laxmi
Juliep,
When I called my physician on 7th post op day regarding packing he said it would dissolve and get absorbed, but it can take two months (it is variable among different individuals). I think he has to look into your ear canal and do an audiogram and tuning fork test before he can say anything about hearing. You may only notice very small improvement till then.
When I had surgery done for the first time in1998 probably my hearing loss was mild before surgery (I could not hear phone well) I did not notice much difference for many months, but my hearing did not deteriorate, now I can use phone on that side and the audiogram is normal on that side.
Laxmi
Hi Annie!

WOW is right! I am so happy to "hear" that you can hear so well!! :bouncing:

I am starting to worry. My hearing seemed pretty good when I got home from the doctor, but yesterday and today it seems like I can't hear as good out of my operated ear----sort of how it was pre-surgery, but not as bad. I talked to the nurse yesterday and she said there could still be fluid behind the drum that takes longer for some people's bodies to absorb and also my eardrum can be thickened--whatever that means??? I do still have ringing and I hope as time goes on, it goes away or lessens. She said this is all the reasons they wait 3 more months to do an audiogram. So, from reading many of these posts, it seems that I won't hear as good for another few months while my body gets used to the prosthesis.

The doctor said the surgery was a success and the tuning fork supported that. I am just impatient and want to have NORMAL hearing in my operated ear sooner than later!!

Have you known anyone who experienced not the best hearing post-op, but over time it all of sudden got better?????
12 days post-op

Hi All. This is my first post, and I have enjoyed reading all 72 pages since my operation, I am grateful to whomever started this topic, as it has been comforting to see like symptoms, milestones, and especially the various time periods therefor. I must say though, OMG, some of you do go on and on :)

I had mine done by a local surgeon who does over half of the stapedectomies performed each year in Canada. He is approaching the 3,000 mark! He is the one to whom most ENTs here refer. He's all over the web, and I gather people watch him from around the world. My hearing, pre-op, was not too bad in my operated ear, but I was getting sick of the hearing aid (4 years), which, despite it costing over $2,500.00 to purchase 4 years ago (plus plus plus), was doing less and less for me recently, and so thought: "what the heck!". Anyway, I have to say, I was as sick and dizzy as a dog immediately post-op. Was under a general for the usual 45 mins, then dragged home by my good (patient?) wife 4 horrific hours later. Bless her for waiting with me that long in the recovery room, I guess. Operation was on a Friday, waited on hand and foot by wifey and three daughters, then back to work on Monday (a bit begrudgingly, and probably too soon). I am still vertigo-ish, but each day marginally better than previous. Saw doc at the 6 day post-op mark, where he tried to clean out some packing and stuff, but he said it was scabbed, and would have to dissolve on its own. The packing is a self-dissolving polimer, glucose type of stuff. The prothesis is made of Teflon, a material which is a very hard plastic (haven't heard any of you with that one yet). As others say, the ear feels "heavy", "plugged", and has very little hearing in it so far. Recently, some very squeaky tones. As others say aslo, I am very impatient, and this thread has been very helpful in that regard, indeed! I have only just started driving today (12th day post op), as I felt like I wasn't safe till now, and we do live in a city of about 3 mill. Will keep you all posted of my Canadian experience.
Hello all. I agree, we should put at the top how many days post-op we are. :)

I am 34 days post-op. That's why I'm starting to worry the surgery didn't work as my ringing is still there and it's pretty much the same and I hear about the same (maybe a bit better) from my operated ear as I did pre-op! I know I must be patient as Laxmi, Annie and Vickie have stated. I'm sooooo not a patient person---:D

The nurse of my surgeon said that fluid in the middle ear can take longer for some people than others to re-absorb. I'm hoping not too much longer. But I keep seeing on this thread that it takes almost 4 months to notice a remarkable improvement so I have 3 more months to go!!! :)
13 days post op

Hi Gang. No change from my (first) post last evening. Thanks Annie, I will try anything to get rid of the vertigo, which occurs esp when I walk. I will pick up those wrist bands at the pharmacy, as I stagger on the way home from work today. (I must look drunk to passers by). One saving grace for which I should be thankfull, is I have never experienced any pain whatsoever as a result of the operation, so no need for those Tylenol 3s he prescribed for me just in case when I left the hopital. (I'll keep them in my war chest for a rainy day though, just in case). I'll let you know how the wrist bands work. To all others...I'm very eager to "hear" of any other remedies for the vertigo!

Happy Thanksgiving to our American posters! (ours is always about a month earlier, oddly enough).
Hello all,

Day 13 post-op.... I feel great.:bouncing: I have been on the drops for a week tmrw and I feel great... my ear doesn't pop much anymore and I have virtualy no tinittus in the operated ear. I still get the ringing and what I call cricket noise and the sound of blood rushing in my other ear so I am very anxious to get the other ear done... I think my doctor said about 6 months. I haven't had any dizziness or light headedness since the first week.

My husband says I am like a reformed smoker but with my hearing... I walk thru the house and ask "Do you think the TV is loud enough" I just can't stand listening to it as loud as I used to have to have it... My poor husband who has very good hearing is so use to it being loud he is having a hard time hearing it at the level I put it at now. My Son and Daughter-in-law came over today and couldn't believe how low the volume on the TV was..

I will talk to you all later.... I hope all of you had a great holiday....

Vickie:wave:
Hi all,

6 months post op....

and Canada boy.....BTW....your ears and sinus are all connected. If you get a sinus infection or have sinus issues........it can mess up your hearing and that is what this board is all about. Post op situations and experiences having to do with and affecting your hearing. .....Because you can't blow your nose -hard- for a while after surgery and this is what happens as a result when you can't get all the crap outta your head.

Maybe when you get your first cold/sinus problem and wonder why you can't hear again and how to fix it...and what works and what doesn't....you might be interested.

THAT is why its posted. If you don't wanna read about it, there is the X on the top right hand corner of the web page.

I'm glad everyone else is doing ok.

I haven't heard a peep in about 3 or 4 weeks now out of the right ear. I go to ear doc today to see about getting a tube put in the right ear so it will open and I can hear again. It's been a really stressful few months.

More later....maybe...:mad:

-Carol-





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