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Hearing Disorders Message Board


Hearing Disorders Board Index


[QUOTE=winterj]Hi lib, I read through a lot of your posts leading up to your surgery w/ Dr. Poe...felt like I was following a soap opera, and then I couldn't find the follow-up posts!

I am located in Northern VA, and my allergist just referred me to Dr. Fitzgerald with Capital Ear Group. I have the feeling and sound of air blowing in my ear, and my allergist has watched it happen through my ear and confirmed that it opens or closes differently from my other ear which is (more) normal. And I also have autophony. This is all intermittent, with some days worse than others, especially warm, humid days, which is all summer, most of spring and fall, and a lot of winter in this area. When my nose is stuffed up, it happens more, so I drink a lot of water, but that's only a temporary fix. Even though claritin-d is supposed to make it worse, it helps decongest my nose a little bit, helps w/ the PND, and doesn't seem to affect the ear problem otherwise. It's worse in the mornings when I first get up, so my doc suggested using an airplane pillow to prop my head up more. The symptoms are relieved by tilting my head or putting my head between my knees.

I've tried Patul-End from Dr. B in Calif, but I have a hard time getting it into my eustachian tube, so that isn't really helping. When I get tired of drinking water, or it's just not practical, I spray lots of saline into my nose, but that's not the most reliable solution either, and it gives me a headache when I sniff too much. Also makes my nose run, but that's ok, cause that's when I breathe best and have the least ear problems.

I had my deviated septum fixed with Dr. Marion, but that hardly helped. Since he couldn't find anything else "wrong", he just said if I know other climates that bother me less, then I should just move. And I'm ready to do it if it works.

Sorry for such a long post!
-Jenny[/QUOTE]

hi jenny,
i also live in nova...springfield.
i hate to share my horror with you but i can tell you i have seen dr. fitzgerald more than once, he was one of the worst drs. i had seen, in fact, he basically told me i was crazy and needed meds. he was the biggest waste of my time, and insurance money. so with that, i recommend you see dr sismanis in richmond or dr poe in boston. is dr marion here in west springfield? i saw dr oppenhiem, he came close but was of no help, i believe they are in the same practice. i have heard good things about marion and noses.
i had the wind noise and they could see my eardrum flutter, it was from the myoclonus, but at first dr poe and i thought it to be p e t, as it sure looked that way, but after surgery he could see it move and we knew my etube was swollen shut and thats when dr poe said he believed this was muscular and told me what i needed to do next....he is AMAZING, does not give up and keeps his thinking cap on. i came back to va and went back to hopkins......where i got no where.....i was talking with dr poe on the phone regularly and was planning a trip back to boston when i stumbled upon dr sismanis' name.....went to see him and the rest is history....he is like poe, amazing, compassionate, careing and educated....so he severed the tendons....dr poe said i sounded so much better when i called him last.....thats a dr that pays attention and really cares.
so my advice, call your allergist, who is it by the way? and ask to see sismanis.
also usually p e t is better when your stuffed up.....interesting .
where are you in va?
lib
[QUOTE=winterj]Sure, sounds good to me. Sounds like we are really close - I am between Sydenstricker and Rolling. When I called to make an appt w/ Dr. Poe, the receptionist said I would need a written referral letter from my doctor diagnosing the problem first; same thing for Dr. Sismanis. Maybe more and more people with these problems are coming out of the woodwork, which would be a good thing. I've also met someone in Fredericksburg who had surgery with Dr. Poe - I think he was the first or one of the first. He said surgery helped a lot, but he still occasionally has symptoms.

So right now it is humid outside, or maybe it's the air pressure changing since it's supposed to rain. Because of that, my nose feels stuffed, and when I swallow, all of a sudden when I breathe I feel and hear air in my right ear, almost as if it's blocked and the air won't go all the way through. So I'm tilting my head to clear it, but that gets uncomfortable after a while. So I'm also drinking lots of water, which thins everything out and makes my nose feel like I can get air through, which in turn helps my ear. When I talk, the "air" also moves with my voice, and I can hear it in my ear, like a simultaneous echo. My symptoms are also set in motion when I exercise, even just fast or hilling walking.[/QUOTE]
hi jenny,
your right, we are right next to each other, i live in lake forest, its a neighborhood on huntsman lake.
i also know jim in fredricksburg, we actually went to surgery together in boston when he had his 2nd ear done.
the air moving with your voice sounds like myoclonus, with p e t you hear your voice and breathing in your ear loudly like shouting, like talking in your ear with a megaphone. i had movement, vibrations and and echo effect, but it was not my voice after all it was the ear drum spasming to my voice. does this sound like you?
maybe the starbucks at huntsman?
lib
holy crap :eek: - i just called Dr. Poe to schedule my consultation, now that I will be getting my referral letter - he's booked until MAY!!, even just for consultations :(:dizzy: so much for spring break in boston!





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