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Hearing Disorders Message Board


Hearing Disorders Board Index


I have had Meniere's disease for almost 7 years now, and I recognize all of what you describe. the panic is awful because of worrying what is happening. It took almost 2 years for them to diagnose me, and after one year I had even heard of meniere's but it was so rare and unresearched in my rea until I lucked out and went to the Northwestern University Med Center in chgo. I had it under control a year later and now have the vertigo and worse migraines only 2-3 times a year.

I take 2mg valium (aka diazepam) and calan to control it and with my diet of low salt low caffeine, thatcan take the edge off the worst of it.

until you get diagnosed or treated, these few tips might help you cope with the vertigo aka dizziness (mine makes me feel like a wildly spinning compass point) if you can keep your eyes open, focus on a spot on the wall, or one object on a white background. that helps you keep your orientation. if you can, build a ramp of pillows to sleep on and don't lie totally flat.
I sleep at a 45 degree angle personally. the antivert helps with episodes of nausea, but you can also get bonine over the counter for motion sickness, it is also called meclizine.

the tests to rule meniere's disease in or out include an ENG (the test mentioned below where an audiologist does things like track your eye movements and watch for your eyeball to pulse or jump around as they change temperatures and pressure around our ears with air and water, hot and cold) MRI, sometimes a cat scan, and my doctor is actually the one who invented some of the equipment now used to diagnose meniere's. one of the devices he uses is a set of goggles that record my eye movements as he moves my head around. I guess he can see very clearly into the eyes.

Anyway, there is help, some relief, and possible control if you have meniere's disease. I have researched it for myself for several years, and learned what helps me. It could be a few other things as well that you need to get ruled out first.

one other note, I do get the breathless feeling because of the way I hold my breath and fight for control when I suddenly feel like I am falling and spinning with no ground beneath me. My husband is wonderfully supportive and we worked out hand signals (because I often cannot speak in the middle of a seizure) and I might manage the word "spinning" and he will grab my hand and squeeze it and say "I am holding you and I'm not spinning so you can't be." it sounds funny, but sometimes that reassuring voice makes all the world of difference.

Colleen in Chgo





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