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Hearing Disorders Message Board


Hearing Disorders Board Index


Re: Stapedectormy
Feb 15, 2004
Zip,

My appt went good! I first saw the audiologist and my diagnosis is otosclerosis in my left ear. In my right ear my db is 5 and my left ear it's 55. Which I guess concludes that I have a 'moderate hearing loss'. I then saw a dr. in his 7th year of residency. He was younger but extremely thorough and informative. I brought a huge long list of questions and he let me ask all of them....very patient!! Then I saw the actual surgeon who would be performing the stapedectomy and he talked to me for while also. They said they could either use Twilight (Conscious sedation) or General Anesthesia. I was leaning toward the Twilight because I've never had General and it's a quicker recovery and you still don't remember anything. Although, the dr. said w/ my case, since I have narrow ear canals, he said it would be more comfortable on me and easier to do w/ general. I guess they have to use more pressure or something to get their microscope or drill or whatever into the narrow opening. Doesn't sound great! I hope they don't have to rip the cartilage or break any bones !!! I'm aware of all the yuckiness post-op. Lots of dizziness, weird hearing through packing, all that good stuff. But hopefully it will be tolerable. He told me to take 10 days off of work, no flying for 3 weeks, no blowing nose, sneezing w/ mouth open, sleeping w/ extra pillows, sleep on side, not flat on back. And that I will never ever be able to scuba dive.

I scheduled to have the surgery April 8th. I'm scared but want it over with and wish for good results w/o any unexpected surprises! My whole issue is that I'm ready to start trying to have a baby and wasn't sure if I should do surgery before or after due to the pregnancy causing rapid spread of the otosclerosis. The dr. couldn't tell me either way. He said it wouldn't make any difference if I had the surgery before or after because he could still get me back to the hearing that I am capable of either way, even if the oto gets worse, since my nerve conduction is ok. But it's my understanding that if the oto spreads to the inner ear (nerve area), there's no fixing that ever, even w/ hearing aids whether I have the stapedectomy or not. I've decided to have it done before I get pregnant, just to get it out of the way! And so I can hopefully hear for a little while!

He prescribed me to take Monocal (Fluoride supplement). I'm a little weary of taking this not knowing long term effects. It sounds scary messing w/ your bones and teeth! I have well water w/o fluoride and had very well water as a child also so my mom thinks I'll be o.k. And the dr. says it's a low dose. But reading these boards I see a lot of problems w/it. What about when I become pregnant? Are there any side effects even after I stop taking them?

Thanks,
Jodi
Re: Stapedectormy
Feb 15, 2004
Hi Jodimarie,

I just had a stapedectomy a few weeks ago. I had the same reservations as you currently do. I am happy to report that so far all has gone well. It has changed my life. I did have some very weird things going on for about 3 weeks post surgery. I was scared to death, but they all have pretty much subsided. My hearing has gotten better with each day.

I should mention that it is very true about it getting worse after pregnancy. I unfortunately had 2 miscarriages. Although I was only pregnant for about 8 weeks each time my otosclerosis got MUCH worse afterwards. I had a [B]significant increase in hearing loss over the one year period of the pregnancies.

I finally decided to have the surgery because we are planning to adopt a child from Russia. I thought it might be important to hear he/she!!!!!

Best wishes for your surgery. I really think you will be happy with the outcome.


Dina

[QUOTE=jodimarie75]Zip,

My appt went good! I first saw the audiologist and my diagnosis is otosclerosis in my left ear. In my right ear my db is 5 and my left ear it's 55. Which I guess concludes that I have a 'moderate hearing loss'. I then saw a dr. in his 7th year of residency. He was younger but extremely thorough and informative. I brought a huge long list of questions and he let me ask all of them....very patient!! Then I saw the actual surgeon who would be performing the stapedectomy and he talked to me for while also. They said they could either use Twilight (Conscious sedation) or General Anesthesia. I was leaning toward the Twilight because I've never had General and it's a quicker recovery and you still don't remember anything. Although, the dr. said w/ my case, since I have narrow ear canals, he said it would be more comfortable on me and easier to do w/ general. I guess they have to use more pressure or something to get their microscope or drill or whatever into the narrow opening. Doesn't sound great! I hope they don't have to rip the cartilage or break any bones !!! I'm aware of all the yuckiness post-op. Lots of dizziness, weird hearing through packing, all that good stuff. But hopefully it will be tolerable. He told me to take 10 days off of work, no flying for 3 weeks, no blowing nose, sneezing w/ mouth open, sleeping w/ extra pillows, sleep on side, not flat on back. And that I will never ever be able to scuba dive.

I scheduled to have the surgery April 8th. I'm scared but want it over with and wish for good results w/o any unexpected surprises! My whole issue is that I'm ready to start trying to have a baby and wasn't sure if I should do surgery before or after due to the pregnancy causing rapid spread of the otosclerosis. The dr. couldn't tell me either way. He said it wouldn't make any difference if I had the surgery before or after because he could still get me back to the hearing that I am capable of either way, even if the oto gets worse, since my nerve conduction is ok. But it's my understanding that if the oto spreads to the inner ear (nerve area), there's no fixing that ever, even w/ hearing aids whether I have the stapedectomy or not. I've decided to have it done before I get pregnant, just to get it out of the way! And so I can hopefully hear for a little while!

He prescribed me to take Monocal (Fluoride supplement). I'm a little weary of taking this not knowing long term effects. It sounds scary messing w/ your bones and teeth! I have well water w/o fluoride and had very well water as a child also so my mom thinks I'll be o.k. And the dr. says it's a low dose. But reading these boards I see a lot of problems w/it. What about when I become pregnant? Are there any side effects even after I stop taking them?

Thanks,
Jodi[/QUOTE]
Re: Stapedectormy
Aug 19, 2005
Hi, All you stapedectomy vets,
I'm one, too, and new to this forum. I've been happy to read that most folks had successful operations, but I'm in that approximately 1 percent of people whose hearing has decreased as a result of the operation. From a 30 to 50 decibel loss in the right ear pre-op, to a 40 to 60 decibel loss, along with complete loss at the highest frequencies. Fortunately, I have good hearing in the left ear, so I'm not in too bad shape.
My operation was on April 25, 2005, in Sacramento, California, with Kevin McKennan, who has done more stapedectomies than any other surgeon in Northern California. According to everything I've read, only about 1% of people experience complete deafness as a result of the operation, while 1% or so have worse hearing, about 90% have improved hearing and the rest have no change.
I just had a CT scan on Tuesday and it looks as if the prosthesis is probably positioned correctly and everything else looks pretty good in there. The doc's best guess is that I probably have fixation of the maleus bone that he did not detect during the operation. He's encouraging me to have revision surgery. But since he's said that this has a 5 to 10% chance of complete deafness, while only a 50 to 80% chance of success, I am pretty convinced that this is an option I will not even consider.
So now my questions: has anyone out there experienced revision surgery? Also -- is anyone out there who has otosclerosis using hearing aids? If so, what are they like?
Also -- some comments re sodium fluoride. I've been reading all the posts on this subject with great interest, because when I was first diagnosed with otosclerosis in 1979 (I was 27 and had just had a baby), I took it for a year, or maybe two. I did not notice any side effects, and I have often thought that it possibly slowed the progression of the disease, and maybe even kept my left ear free of it. (knock on wood!!) So although this treatment is out of favor in the US, I have yet to find any definitive study on it. So, as some of you have said, "it can't hurt and it might even help."
--lieseg





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