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When I touch my ear or side of my face, my eardrums suddenly start to flutter, also certain loud sounds cause this......could it be middle ear myoclonus?

What tests can I asl a ENT to do, to check for middle ear myoclonus?
[QUOTE=lib;3456240]yes. those are symptoms of middle ear myoclonus. there are no good tests to diagnose but a very good neurotoligist can dx by the symptoms.[/QUOTE]


Hi Lib,

While I am waiting to see a super ENT specialist, I am trying to put a list of questions and things I would like to get tested for, just so I don't miss anything during my consultation.

My symtoms;-

1) I hear my voice and eating/chewing sounds very loud
2) Have been diagnosed with Hyperacusis syndrome (this is confirmed)
2) Tinnitus
3) Certain sounds and touching my ear and face will make my eardrums flutter
4) Full feeling in ears
5) Eyes flicker, but occasionally only, at night time mainly, I notice this
maybe once every few weeks. When it does flicker, I can notice and feel
the eye balls flickering on bothsides.
6) Clicking/Popping but only when I swallow and yawn.

I don't have no inner ear problems because tests show inner ear pressures are normal, so no fluid leaks in the inner ear, no meneries disease, or any other inner ear problem.

I think I should for defs have the possibility of middle ear myoclonus checked out, because Patulous Eustachian Tube patients don't have my number 3) symptoms, I think the eardrum fluttering is for defs some kind of dysfunction of the tensor tympani or stapedial muscle???

Or it could be PET and Middle Ear Myo? Is this possible?

John
[QUOTE=JohnUK;3456401]Hi Lib,

While I am waiting to see a super ENT specialist, I am trying to put a list of questions and things I would like to get tested for, just so I don't miss anything during my consultation.

My symtoms;-

1) I hear my voice and eating/chewing sounds very loud
2) Have been diagnosed with Hyperacusis syndrome (this is confirmed)
2) Tinnitus
3) Certain sounds and touching my ear and face will make my eardrums flutter
4) Full feeling in ears
5) Eyes flicker, but occasionally only, at night time mainly, I notice this
maybe once every few weeks. When it does flicker, I can notice and feel
the eye balls flickering on bothsides.
6) Clicking/Popping but only when I swallow and yawn.

I don't have no inner ear problems because tests show inner ear pressures are normal, so no fluid leaks in the inner ear, no meneries disease, or any other inner ear problem.

I think I should for defs have the possibility of middle ear myoclonus checked out, because Patulous Eustachian Tube patients don't have my number 3) symptoms, I think the eardrum fluttering is for defs some kind of dysfunction of the tensor tympani or stapedial muscle???

Or it could be PET and Middle Ear Myo? Is this possible?

John[/QUOTE]

anything is possible, but i doubt you have 2 very rare disorders, just as i doubt i do. i believe it is all related to 1 disorder. look up dr timothy hain, he describes a palatal eye type of myoclonus, sounds like myo to me. hyperacusis is a sever intolerance to sound. myo causes a sensitivity that can be sever but not to all sound. i am not convinced you have true hyperacusis, i believe you very well have myo.





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