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I'm wondering if anyone else has had no strange symptoms after a stapedectomy? I'm on day 5 after my left ear stapedectomy and so far I have been feeling great and have no strange sensations or sounds in my operated ear. I don't have the fullness or fluid sensation either. Frankly, as crazy as it sounds, it's worrying me! I had a stapedectomy on my right ear in January and posted on the stapedectomy report thread. I had just about all of the same healing symptoms as everyone else, so this is concerning. I don't have hearing in the operated ear, but I didn't expect to due to swelling/fluid. My first stapedectomy was a complete success and it's worrying me that this one is so very different. I'm afraid that something went wrong.

Anyone experience anything like this?

Missy
I would call your doctor - but I'd also say count your blessings. My doctor said he's had patients that were like nothing happened the next day - others like me - that take 2-3 weeks or more to feel half way normal - so it's likely nothing to worry about. You may just be fortunate to be one of those that has few side effects of surgery - Good for you! But for peace of mind, call your doctor's office and make certain.
I just had mine today on my left ear and I have no symptoms either. It's still the first day but I expected to be laid out and nauseus. So far I've been helping to take care of the kids (light work). I do believe that tomorrow it'll catch up to me but as of today, only a little pressure. I will admit to a couple of times my ear popped but that was painless.

Have you had any of the ear popping or the slight pressure pain?
No, I haven't had any popping. Every now and then I get a slight pain for a second. I swear if I didn't still have a little discharge on the cotton ball I might doubt that the ear was even operated on!

I'm going to call the dr tomorrow. It just sounds crazy to say "I'm just calling because I'm doing too well" :p My other ear took me 2 to 3 weeks to feel better, like most everyone says. I guess it's a good problem to have!

Thanks for the replies, and I hope you continue to do well in your recoveries.

Missy
Hi, Iím new to posting on these boards, so let me first say Thank You to all those who posted their experiences here, as they help me prepare for my Stapedectomy. I will post this here and on the main board, My Stapedectomy also. In an effort to keep this as short as possible Iíll only give the high points. Keep in mind I had the premier surgeon in the Phx, AZ areaÖ Dr Fucci.

Surgery Friday 4/25, woke up feeling fine. Wheeled into recovering and had to lye with my ear up for four hours. Still felt fine with a couple of pain meds. No dizziness or nausea. Then got dressed to leave, still no dizziness. Went home feeling good, needed a pain pill at 6PM and 10PM. Woke at 4AM with some mild pain, so took another pain pill, which was to be my last. Sat woke feeling great, had some mild pain around noon, so just took some Advil. Have only used Advil since then. Felt wonderful all day Sat. Woke Sunday and had some mild out of balance issues, I wouldnít call it dizziness, as the room didnít spin, just when I would walk, I would tend to fall a bit to the right (surgery on right ear). This condition cleared up by noon and I felt great all day and all day Monday also. I came back to work today and I still feel great. Iím a little tired and if I walk to fast, I have a bit of the out of balance feeling. But, all in all, considering that I had a Stapedectomy, and the symptoms Iíve read about, I feel extremely lucky.

Now to the hearing portion of this. The evening after the surgery, I had to tell everyone to tone it down a bit. I guess they were use to speaking loudly to me and now their volume was hurting my new bionic ear. The next morning that went away, now I couldnít hear anything. My ear pops constantly and I have various noises going on in there. Gurggling, pinging, etc. One night I bit down on a carrot on the same side as my operated ear and it was like someone hitting a pipe with a wrench. I heard this loud tink that sounded like someone hitting the titanium prosthesis. This morning on the way to work the noise from the road was amazing. It was like my ear was connect to the tires of the car.

All in all, I have had a fabulous experience so far and look forward to having the packing taken out this coming Monday, 5/5 and begin hear again.

Again, thank you to all of those that posted in the past.

PS. My doctor removed a small bit of vein from my arm to be used to put around the prosthesis, and in the hole of the window. He said that this would help with the dizziness.
e022...

Welcome. I'm glad to hear of your good experience. I've had much the same. It hasn't been perfect but it's only been two days. I have some popping and I have mild pain. I also have that slight taste sensation on the operated side of my tongue, which I've read on the posts to be common. Please continue to tell your story. I go on 5/8 to get the packing vacuumed out. I have noticed that the ringing in my ears is louder. I almost couldn't go to sleep last night because the ringing was so loud.

Missy-

Did you ever call the doc? What did they say? Are you worrying about nothing or did you have cause for concern? I would like to hear how you are doing.
eo22...Glad to hear you are having such a great recovery. It was helpful to hear that someone else was doing so well. I really had never heard of that before and it was starting to freak me out!

gboyz...Thanks for checking on me! I did call the dr and they said it's not uncommon to be doing this well after surgery and that they would see me in a couple of weeks! That was great news, but I still don't understand how I'm having such drastically different experiences between ears. Unfortunately, I missed the nurse's call and she left a message, so I didn't get to ask specifically about [I]why[/I] there would be differences. I think I'll be on pins and needles until I either start hearing the strange noises in the ear, or get a good hearing test.

How are you both feeling now? Hope you continue to do well!

Missy
MMFL - did you DR use a bit of vein or some tissue from inside your ear to close the hole. I'm thinking that the vein could be the reason for my quick recovery. My Dr said that it helps with the dizziness. That and the fact that my surgeon has done hundreds of these and probably is doing it with the least amount of trama to the ear are my thoughts.
One thing I notice is a louder ringing in my ear as before the surgery. I'm hoping the ringing GOES AWAY!! I despise the ringing.

Missy- You prob. already said but when was your last ear operated on. What is the time between the two ears being operated on and was it the same doc?

e022-Since this is a genetic hearing loss disorder, do you know who in your family had this? The reason why I ask is because it's common in women and in my family I have two aunts (on my dads side) and my grandma that had it. I am concerned for my boys. I have four of them and now worry that one of them will get this.
eo22..No, my dr didn't use vein or tissue. They drew some of my blood prior to surgery and used that. From what I understand he uses it where he drills for the footplate and also to seal the eardrum back. If I remember correctly, I don't have packing in there, just my own blood. It's so bizarre how many different techniques there are to do this same surgery! I absolutely love my surgeon. I feel so grateful to him for giving me back my hearing in my first ear. He is Mayo trained and has his own center in Jacksonville. I did tons of background checks and consulted with a couple of other drs before deciding. It's reassuring to be so confident in our drs, isn't it?

gboyz..The ringing in my ear was louder for awhile after surgery. It did calm down, so hopefully you have that to look forward to! I hope you are trying to take it as easy as possible even while it sounds like you feel pretty good. I've been forcing myself to accept help with my son and house stuff because I really don't want to undo anything! You asked about my first surgery. It was in January, 3 months apart. I did use the same surgeon, which is why it is so strange that I'm having such an easy time this go-around.

I'd like to keep up with you guys and see how you're healing, if you don't mind. I'll keep posting my updates.

Missy
This morning I stretched and heard a pop. I can not hear very well out of the operated ear now. I know that it is suppose to come and go so I will wait for it to come back. I am trying to take it easy. It's hard when you feel well and you feel like you can do things. The reality is...you shouldn't do those things. I've been trying to be still.

I don't understand what you both are talking about when you say vein or blood put into the ear. My doc took some skin from the back of my ear in case he needed it. He actually used it to fix my ear drum which was thin. Did he place the vein in the ear? Fill me in.

Today though, since the stretching incident this morning, I have had some sharp pain that has come and go in my ear.

I haven't mastered the shower situation yet. I tried yesterday but was really nervous about getting water in my ear. The part that I wanted to wash the most was the hair and back of the ear that was operated on. Have you guys mastered that yet. I tried the vasaline on cotton ball but was still nervous that water would get through. Should I not be?
Blood, wow, that may work the same way as the vein. I think the scrapping of tissue inside the ear is probably just more trama to the ear, so they've figured out how to use these other methods.

gboyz - I have significant ringing in my ear also. I try not to get too excited about any of the noises I hear right now, as with the swelling and packings, I hear all kinds of things. Next week will be the real test, when the packing gets taken out. I can't wait.

My father had significant earing loss, as he wore hearing aids in both ears. I don't know if he had this condition. I'll make a guess and say that I would bet that we see more and more men getting this done in the future. Years ago, if you had hearing loss, you slapped an aid on your ear and lived with the side effects. Now that the surgery is so successful and less dibilitating, I think hearing aids will be a last resort. My Dr did four of these the day of my surgery.
I'd like to hear more about what is done with the vein too, if you know more. The blood used in my surgery was just used topically, to seal, the way I understand it.

I'm finally starting to get something going on inside my ear, here on day 7. I feel it opening and closing a bit, have a wet feeling and am starting to get occasional wooshing sounds. Are you guys still extremely tired? That's actually been the worst thing I've had this time. Just a feeling of being completely run down.

The shower...fun times! Here's what I do and so far I haven't had any problems. I put a cottonball in my ear, coat it entirely with vaseline making sure it's sealed all the way around inside my ear. Then I wrap my whole ear in saran wrap. I put on a showercap while I'm showering. When I'm ready to wash my hair I take off the showercap and hold a small cup over my ear, with a washcloth rolled up inside it to kind of form around my saran wrapped covered ear. The washcloth soaks up any water that may seep under the cup. I know it is complete overkill, and my husband thinks I'm ridiculous, but it works and I feel really sure that water isn't getting in my ear. Give it a try!

Missy
Missy
I haven't really been tired at all. Are you taking meds? I just put the connection together today that when I take the vicodin, I feel dizzy and different. I will not be taking it anymore. Besides, I don't really need it. I feel a little pain and decide to take a vicodin, what is wrong with me? I will try to stick to the tylenol. I prob. don't need any pain meds. My point is, if you are taking vicodin or something close then perhaps that is what is making you tired. I have read on these posts though that some people get really tired. You may just be one of those people. It might have something to do with your body trying to heal itself.

Thanks for the shower info. I need to buy a shower cap. Where do you get those anyways? Do you tape the saran wrap on your ear? How do you get the saran wrap to stay? I am in desperate need of a shower. I still have dried up blood behind my ear from Mondays operation. Sorry if that is too much information :)

I can't wait to be on day 7!! Congrats to you Missy on having something going!!
Hi gboyz...No, I haven't taken any pain meds at all, not even tylenol. I haven't had any pain this time or the first time. :) I should just probably make the effort to get to bed earlier. I don't know why I fight sleep!

I don't tape the saran wrap. I just wrap it around my ear a couple of times and stick it to itself. You should be able to pick up a shower cap anywhere really, Walmart, Walgreens I would think. I did have my husband gently scrub the yucky stuff from behind my ear the first shower after surgery while I held the cup over all the other things on my ear. After that I haven't needed any help staying clean :cool:

Missy
I agree with gboyz. I only took three of the pain pills the first day. 6PM, 10PM, and 4AM, then moved to Advil at noon the next day. Never took any of the Vicodin, and I am taking KEFLEX antibiotics four times a day. I'm sure the limited use of these drugs did help me get thru this period easier.

Showering --- I have some cotton in my ear, but I don't do the vaseline thing. I brought some sticky kitchen wrap. It's like Saran Wrap, but a little bit easier to use, as it doesn't cling like Saran Wrap. One whole side of it has a lite adhesive. I put one edge of it behind my ear, fold it down over the ear and then wrap the excess around and over the ear. Then when I'm in the shower, I bow my head in front of me, cup my right hand over the top and behind my right ear, creating a tight seal of my hand against my head. Then I let the shower water hit the left side of my head and with my left hand move some of the water to the right side. Same with the shampoo and rinse cycles :-)

gboyz - The blood vessel was used to seal the hole in "the window" around the titanium inplant. Another words, the Dr made the hole in the window, then push the blood vessel into the hole to build what I call a little pillow. Then he inserts the inplant (stick) into the pillow and clamps the other end to the end of the second ear bone.
e022 and Missy
Thanks for the showering tips. I am going to conquer that at some point today. My husband doesn't understand the difficulty of the situation. He just thinks you can just take a bath. I have found it is really hard for people to understand exactly what is happening to me. That's why it's great that you guys are here.

e022
You are taking Keflex 4X a day. I am taking it only 2X a day and for a week. Maybe you are only taking it for half that time. Are you?
4X a day is a lot. What did you get Missy?

Missy
No meds, huh? Good for you. I think I got carried away with the thought of even having vicodin. I guess I know now that it's nothing to be excited about. I don't know how people get addicted to it.

I'll keep you all posted. Thanks for informing me on your progress and thanks for all the tips. Please keep posting, I need the support of knowing and experienced others. I'm glad you two are ahead of me in recovery.
gboyz - Keflex, 250mg, 4X day for 10 days. Are you taking 500mgs? Maybe just different DR's.

I feel great today. Back to work for the second day, my fifth day since surgery. No dizziness, a little tired due to I don't sleep well at night. I seem to wake up a few times during the night. Still taking some Advil through out the day for the soreness.
e022
no it's 250, you might be right just different docs. That's great you are back at work already and feeling great. I think I'm 3 days behind you.

All-
When it comes to sleep, are you guys sleeping on your operated ear? I read some time ago on these posts not to sleep on the operated ear. So, I've not gotten good sleep mainly due to the worry of sleeping on my left side. Are you guys sleeping on your operated ear and does it even matter?
gboyz - You hit the nail on the head. You shouldn't sleep on your OP ear. That's why I can't seem to get a good night's sleep. I'm tired of sleeping on my back and left side. I prefer to sleep on my stomch and OP ear. Not sure when we can start sleeping on the OP ear again, but I would guess at least a couple of weeks after the OP.
e022
Did your doc tell you not to sleep on that ear? My doc never said anything about that. I just remember reading it on here a few months ago. I notice it's when I get up from sleeping that my ear feels all out of whack. Is it that way for you?
gboyz - you know what, you may be right. I'll need to check the sheet of do's and don'ts the Dr gave me, when I get home tonight. The not sleeping on it may be in there.

Your also correct in the ear out of whack in the morning thing. I think you sleep with your ear horizotal all night, then turn it up right and it takes a bit for it to adjust. My two short bits with having balance issues were in the early mornings. I always feel great by afternoon and into the evening.
I never got a sheet of Do's and Don'ts. I'd be interested in knowing what is on that sheet. I was just pretty much told not to blow my nose, get it wet, lift anything heavy, bend down, and to sneeze with my mouth open. If you have better insight, please list. I need all the info. I can get.

Thanks e022 and did your sheet say no sleeping on the operated ear?

Missy
You still doing ok? Do you sleep on your operated ear?
I was told basically the same things you were told gboyz about what not to do. For sleeping, the hospital gave me a foam contoured pillow with a T cut out under your ear. I just used it last night for the first time in awhile. I did not start sleeping without it on my first operated ear until at least a month or so after surgery and then it felt weird and uncomfortable, almost like I could feel the prosthetic inside my ear....although I'm sure that was probably just my imagination! 3 months after the first ear, I sleep just fine on it.

For meds, I am only taking ceftin 500 mg (antibiotic) 2xday for 10 days. No pain meds at all, and also no tylenol/motrin either. I just have not had pain with either surgery.

I am still a bit concerned about my lack of recovery symptoms. I have a little bit of wet feeling in the ear again today, and when I focus on my ear in the quiet I also have a faint pulse-like pounding. But, it is sooooo much milder than the first time. My hearing returned and most symptoms went away by 2 weeks the first time, so I guess I have another week to see if the hearing comes back before I really start to get nervous. I can't believe I'm wishing for all of those awful things I went through the first time, but at least it was comforting that changing/healing was happening.

Hope you're both still doing well!

Missy
Day 8
gboyz - well I check the Dr's do's and don'ts and the sleeping thing isn't on there. However, I turned over on it a couple a nights ago and woke up with a unconfortable sore feeling. I think I will stay off of it for a while.

The rest of the stuff on my Dr's sheet is the same as your directions about blowing my nose, get it wet, lift anything heavy, sneezing, etc.

I like MMFL T pillow idea. I'm having trouble sleep right now. When I'm sleeping and its dead silent, the pulse pounding sounds that MMFL mentioned is pretty loud. Sounds like your blood pumping thru the veins in your ear. I'm sure this is due to swelling, packings, etc and should go away on Monday when they remove my packings. I get 3 -4, 1 1/2 hour cat naps through the night, so I'm alright, but my sleep could be better.
That pillow does sound nice. I have never heard of that.

I have the pounding sensation too. It does sound like blood running through your veins. It is the strangest sound/feeling.

The sleeping situation is really starting to bother me. It's like I don't want to go to bed at night because I know what is to come...a night full of tossing and turning and worrying about sleeping on my ear. Plus, the loud ringing in my ear makes it hard for me to initially fall asleep. e022-I still will not be sleeping on my operated ear. I can only imagine that it's not good.

Missy
I have came to the conclusion that since we can't do anything about our situation right now all we can do is wait. We have to wait for the next doc visit and just pray that all is well.

Take care guys
Kendra
Day 3
hi eo22...I wouldn't count on that pulse pounding going away when you get your packing out. I didn't have any packing either surgery and the pounding is there. I actually remember it being one of the last things to go away from my first surgery, it probably went on for more than a month. I hope you get some relief before then, but I just wanted you to know it can be normal if it doesn't stop with removal of the packing.

Missy
day 8
MMFL - your probably right on pulse pounding thing, as it is more likely due to the swelling then the packing. O'Well, it's a minor thing compared to some of dizziness stories I've read. Happy that this is the worse thing I've incountered.

I've got to get me one of those T pillows. Any thoughts on where? Walgreens? Walmart?
I thought I would post my hearing test results from my first ear in January:

................before surgery......3 months after surgery
250 Hz..........65 dB....................10 dB
500 Hz..........65 dB....................10 dB
1K Hz............65 dB....................35 dB
2K Hz............80 dB....................65 dB
3K Hz............80 dB....................60 dB
4K Hz...........110 dB...................70 dB
6K Hz...........115 dB...................70 dB
8K Hz...........105 dB...................70 dB
SRT................20........................25

I wanted to add that I also have nerve hearing loss and the stapedectomy has improved my hearing almost as much as it possibly can. There is only 5 dB air-bone gap at 2K and 4K frequencies. To say that I am thrilled with these results is an understatement!

Missy
eo22...I'm not sure where you may find this type of pillow in a store, but I'm going to try to link to a website where it can be ordered. At least if you look at the picture you may get a better idea of what it is, maybe it's something you can make out of foam rubber yourself if you don't want to order it?

[url]http://www.makemeheal.com/mmh/product.do;jsessionid=123F89B69E5E58E23A33C0397B21CDEF?id=13206&procid=39&catid=571[/url]

Doesn't look like the link worked, maybe you could copy and paste into your browser window. If not, I just googled "foam pillow for ear surgery"

Hope this helps!

Missy
Thanks MMFL - I think I may go back to sleeping in my recliner tonight. That's how I slept the first few nights. I'm thinking I'll be more comfortable and possibly with the head elavated, there will less blood pumping to my head and less of pounding pumping sounds to keep me awake. We'll see.

Wow, you hearing test is amazing. I can't wait.
Hey

Last night I woke up at 5 and had a really bad case of itchy ear. My ear itched really bad on the inside. I then realized that I had forgotten to take my antibiotics and took them. Missy-did your ear itch the last time? How about this time?

e022-Since you are back to work, how are you keeping with the restrictions? Don't you have to bend down or lift things? Doesn't driving put pressure on your ear? I'm having a hard time and I'm here at the house. I keep wanting to drive but am afraid that I might not hear well enough even. I can't hear out of the operated ear right now. I think a little sound is getting through but not enough.

Of course other than that I'm feeling fine. I think my taste is coming back on the operated side of my tongue. I actually slept better last night. I slept most of the night on the couch. If we had a recliner like e022 then I'd sleep in that.

Kendra
Day 4
Hi Kendra,

I just typed a big response and my computer dumped it ~ ugh!

Yes, I did have an itchy ear last time and every now and then this time, too. It's maddening to not be able to scratch it!

I think you would be ok driving now if you aren't having any dizzy/off-balance spells. Did your dr restrict you for a long period of time? I'm not hearing out of my operated ear either and I've been driving everywhere. Just remember to move your head around slowly like when you're backing up, etc.

I am going absolutely nuts that I'm not having much going on in my ear. I'm so afraid that the surgery was a bust and I'll have to do it over again...or worse. Why can't it be just like the first time, since I know how that one turned out?! Ok, vent over!

Have you guys had any of these things happening?
very noticable pulse sound (not only when it's quiet)
scratchy sound in ear
sensitive to noise
weird low bass-like sounds
high pitched tones
opening/closing so that you hear momentarily before it closes
low rumbly sounds
stereo/tv sounds like broken speakers

I had all of these things and more by this time with my first ear, so I'm totally freaking out. Can't wait until my husband gets home so he can talk me back to the reality that I just have to be positive until it resolves in it's own way. Easy to say, so hard to do!

Thanks for "listening". I'll try not to dump on you guys too often!

Missy
day 9
Missy

I prob have/had all of those things you listed. Just yesterday I had a crackling sound like a speaker would make when it's broken. It went away though soon after it started. Today I went to the store with my husband and three of my boys but I think I out did myself. I pushed the cart and grabbed food but I think it's too early for that kind of thing. Hopefully I didn't hurt anything inside there. The high pitched tones are annoying because they come and go. All of a sudden the high pitch noise will kick in for a little while then go away. Maybe e022 is recovering like you and didn't have any of those symptoms. I don't know what to tell you. I wish I had some advice but I'm in the dark not knowing if mine is going to take either. It's hard just waiting for the doc appt. to find out what's going on.

Please "dump" on us whenever you want. It's hard for others to understand because they are not going through it. My husband thinks I'm crazy that I ask you guys what I ask you. In his world this is just a simple thing. In my world it's a major thing.

Kendra
Day 4
Hey guys -- happy friday.

Yup, itchy ear sometimes, and all the things Missy listed. In fact, this morning it popped and stayed open. Maybe the packing moved or is breaking down which opened up the ear drum, but everything is VERY loud right now. Everything sounds a bit tinny and muffled, but loud at the same time. Kinda like a gymnasium loud speaker.

Kendra, my Dr said I could go back to work after 4 days, as I work in a office on a computer. You mentioned your taste coming back, that's another thing I don't have any symtoms of.
Sounds like you are both doing great! eo22...what day are you on? I know I should scroll back and figure it out, but I'm too lazy! :rolleyes:

Missy
day 9
Surgery was last Friday, so day 7? I go on Monday, day 10 to get the packing out.

Bob
Day 7
Thanks Bob. My surgery was last Thursday, so I guess I'm actually on day 8, not 9. I was counting surgery day as 1. It's good to know we're only one day apart. I've just come in from playing with my son and I'm happy to report that my ear is POUNDING! Yay! Crazy, I know, but I'm relieved for the moment!

Missy
day 8, not 9!
You say patato, I say potato. Day 8 or 9... 7 or 8... who's to say?

Your ear is pounding??? And your happy :-) Amazing what makes us happy.

Hey, I slept last night in my recliner and I woke up three times, but no excessive noise/pounding in my ear and I was able to go right back to sleep. I think I will continue to do this for a few more days.

So, if you are at Day 8... or 9 :-) When do you go to see the Dr and get the packing taken out?
That's great that you had a better night sleep in the recliner. Whatever works!

I don't have packing. I go back 3 weeks after surgery and for a few days before that I use prescribed ear drops to loosen up any dried up gunk still hanging around in there, and then the dr cleans it out. It was uncomfortable, but not painful. I also get a hearing test at that time. I'll be interested to hear how your packing removal goes since I've never had that done. Hopefully you'll be able to hear more through the ear with it gone. :cool:

Missy
Wow Missy-you don't have any packing? Interesting.

I'm glad to hear that I'm not the only one playing with the kids. I feel guilty when I do like I'm going to knock the prosthetic loose or something close to that. You have to wait for 3 weeks after the surgery bf you get to see your doc! That would drive me crazy not knowing anything for 3 weeks. I am like Bob and go back on day 10, this Thursday, to get the packing vacuumed out of the ear. It was explained to me like antibiotic goo that dissolves with your body heat. I don't know. What I do know is that at times I feel it draining but I can't see it or wipe it. Bob, do you have that sensation? It's like I feel it rolling somewhere but can't physically feel where it's going. I am 3 and 4 days behind you guys.

Bob-please don't forget to post after you get the packing out on Monday. I am SOO interested in your results. I am excited for you that your day is on Monday and I know you are counting down.

Kendra
Day 4
Yes, my ear has been popping open and close since Friday afternoon. Feels like the packing is moving around and opening up the ear drum. Very loud noise when its popped open. Went out to dinner Friday night and it opened up and all the crowd noise was VERY loud and a bit of a over load to my head. The vibrating feeling was a bit unconfortable, although it was off set my happiness is knowing that I was getting close and the surgery was working.

Yup - today is the day. Go to the Dr at 1:30 Phx time. I'll try to send a message when I get home. Should be about 3ish Phx time, 6ish Florida and Michigan time.

I can't wait, I'm so excited :-)
e022-
Well.....I'm anxiously awaiting. I'll check back in an hour or so. My countdown has started. I go back on Thursday for the vacuum.

Kendra
Day 7
OK, just got home. The vaccuuming is a bit uncomfortable, but then I hate when they put that thing in my ear to look at it also. No pain associated with it, in fact because of the movement of air it feel a bit cold. And it's over in a couple of minutes. He didn't take any stiches out either. They said the stiches in my arm would disolve, so I'm assuming the ones in my ear were done with the same material.

The hearing... I can't hear as well as I hoped. I can hear, but it is a bit in a drum sounding still, but I can difinitely tell that I can hear. I think that's to be expected as I think there is a packing on the inside of ear, behind the ear drum. So that is probably resricting the movement of ear drum also. For what I've read on these posts, that will breakdown and be absorbed over the next couple of weeks. So I think my hearing will improve a little every day for the next few weeks. The Dr hit a tuning fork and held it up to my ear and I could hear that loud and clear. So, I think I just need to have patience. Its definitely headed in the right direction.

Also, concerning the topic of this discussion, "No sympthoms after surgery" I thought in my case it was the top notch surgeron I had. But, he mention that the lady he did right after me, on the same day, just got out of the hospital this weekend, due to sereve dizzyness. I think the take away on this is it just depends on the person, their constitution, and ability to deal with trama to the body. Just my thoughts, I don't know.
Good for you e022!!!

I agree with you about giving it time. My doctor had said that it'll take a couple weeks after the vacuum to notice the hearing is at it's peak.

I think just hearing better is a blessing. I would be happy if I didn't have to turn the closed caption on the tv when I'm watching it and the kids are asleep, or even up for that matter. I have to put the tv on volume 20 right now. I can't wait to be able to turn it down.

So, here's the question e022---would you do your other ear if it's needed? I keep thinking about it and wonder if I even want to go through it again. Although I've had no symptoms of sickness, it's the restrictions and the uncertainty that get me.

Kendra
Day 7
Hi, I had the same operation back in August 2007 - my symptoms seemed the same as yours but the doctors assured me that it was a gradual increase and i would notice it over time. When the packing was taken out after 5 weeks, i notices a little improvement like being able to hear the alarm clock which i had never heard before but not enough to not wear my aid. I am having a revision operation tomorrow as my surgeon feels that the bone hadnt stayed in place. I hope I see a difference this time. If all goes well I will be having the same op on my other ear next year. I will keep you posted. Hope yours is a gradual incease and has more improvement as my first op. Helen
Would I do the other ear if it needed it??? Absolutely. With the experiance of very little pain and dizzyness and future looking so bright for being able to hear, why wouldn't you? I know you can't count on having the same experiance the second time, but even if I had to stay on pain pills for a few more days and had some more dizzyness, it would still be worth it.
Zak799
Welcome! I surely hope this revision is all that you need. Let us know how tomorrow goes and keep us posted on your recovery.

e022
You are so positive. I guess I tend to focus on all the negative that I've read on these posts. It appears that there is more negative than positive. Would you agree? Even after the good results I've had so far, it's not even close to over (only on Day7). I still have a few weeks of recovery. It's extremely hard at this point to not be able to pick up my two youngest boys. I can't take them anywhere because I can't lift them into their car seats or anything thereafter. I get afraid everyday as I minimally take care of them that I am going to not let myself heal right. I dread going to bed at night because that's when I am vulnerable to movements and sleeping on the operated ear. Are you getting where I'm coming from? Perhaps I'll have a different outlook once recovery is over and I can hear the results.

Where you like this during your first recovery Missy?

Thanks for caring and sorry for the added negatives
Kendra
Day 7
I agree, I try to keep a hold of the idea that it could be worst. The pain could have been worse. The dizzyness could have been more. As long as it is progressing and the hearing is improving, I'm excited. I can understand your struggles with not being able to do things with your kids, but just keep reminding yourself that in a few weeks you will be able to hear them better than before and that might mean hearing them when they skin a knee in a back room of the house and being able to respond quicker than you would have before the surgery :-)

Try and find a way to sleep with you head elevated. I sleep in my recliner in the living room. If you don't have a recliner, maybe prop yourself up in bed with a number of pillows.

Well, speaking of improving. I slept extremely well last night. Slept thru the entire night for the first time since the surgery. Felt great when I woke up this morning. My ear feels really good after my visit to the Dr yesterday to vaccuum out the packing. The hearing is very pronuce. Still has some "in a drum" and "sratchyness" to it, kind of like a broken speaker, but difinitely hearing allot more. I'm hearing allot more than even last night. This is great.

Hang in there, as a few weeks is not much when you look at the number of years you will enjoy with better hearing.
eo22
You give me hope!!!!!!!!!

Kendra
Day 8
Hey guys,

I'm still here! I have had the most insane few days I think I have ever had in my life! I'll go ahead and bore you with the details ;)

I have been mostly a stay-at-home mom since my 4 year old son was born and with the gift of hearing I have been thinking a great deal about what I want to do about returning to the workforce. (Hearing is not why I left the workforce, but now having it has opened new options for me) So, I decided to go back to school to become a RN! After all my research, I had to rush around yesterday and today and re-enroll in my homeschool and register for summer b and fall classes, enroll in another college for summer a classes, which started on the same day that I enrolled, attend advisement sessions and orientations, get the computer setup for online courses, and do coursework. It has been nuts! And, I am exhausted!

Kendra...I absolutely without a doubt did not hesitate to do my second ear. And I even had one of the most miserable recoveries for three weeks the first go-round! It is SO worth it! And Bob is right about hearing your boys. It is wonderful to be able to hear everything my little sweetie says, even when he's far away. I forgot how old your boys are, but my son just climbs into the car and into his carseat with me steadying his back and I just lean in to buckle. It is breaking my heart to not be able to pick him up though. Especially when he wakes up in the middle of the night and I walk him back to bed with him leaning on me instead of carrying him. :(:( But, we just went through this in January and there were no lasting effects for either us. It will be okay! About how much the surgery cost, I really can't remember because like Bob said I just had an out of pocket max with my insurance. That's why I scheduled the surgery for January, so I could have the rest of the year "free" (yeah, right!) and also had the other ear done as soon as possible so it would also be "free".

Bob...That's great that your packing removal wasn't too traumatic! I remember that overwhelmed feeling in restaurants and crowded places. It gets better. And, the scratchy/broken speaker I also had with the first surgery. All sounds normal, and really great!

As for my ear, I still have no real recovery symptoms. I am hearing some out of the ear because I keep testing it with the telephone. It's not loud yet, but it's not a dead ear either. I go back to the dr next Wednesday 5/14, so I'll be very anxious to see how my hearing test goes. I have a feeling I'm going to be disappointed. But, we shall see! I'm trying to not obsess anymore since I can't do anything about it right now anyway.

How is your ear feeling lately Kendra? I don't think you've mentioned it in a few days?

Sorry this post is so long, I should have split it up, but not enough time.

"talk" to you soon!

Missy
Missy
That's great you are going back to be an RN. Good hours and good pay. My sister in law is an RN at one of the local hospitals and she makes as much as her husband who works full time! She is able to work 2-3 nights a week and still be there for her four boys. Holiday pay is HUGE. Great profession if you can deal with bodily fluids. :)

I am a part time teacher, one day a week, and not hearing the kids really makes a difference. Eventually, I will teach full time when my youngest one grows up a little. My kids are 10months 2, 4,and 5. All boys. Let me tell you how the last couple of days I've had to tell them to quiet down because they seem so loud to me.

My ear feels fine. It's still ringing, tinnitus, louder than it did before the surgery. I go tomorrow to get the packing vacuumed out. I can't wait to hear the results.

Did any of you have tinnitus before the surgery and what's the status now?

Kendra
Day 9-whoo hoo
I had tinnitus before the surgery and still have it. It's worse right now, but hope that it calms down a bit as the ear continues to heal.

Bob
Day 12
I did have tinnitus before my surgeries. It did get worse after my first surgery, but now that I think about it I really don't notice it anymore. So, I guess it has pretty much gone away :D I don't seem to have it in my recently operated ear, but I also don't have all of the other obnoxious things going on in there either.

I guess you must be having a hard time taking it easy with four little boys! Is your baby walking yet?

Can't wait to hear how your vacuum goes tomorrow. Do you have a hearing test then, too? Bob...did you have a hearing test yet?

Missy
Day 13
Missy-

I'm sorry you don't have anything going on in there. Since we don't know let's not downgrade it yet. It could be fine. Your doc didn't seem too concerned.

No the baby isn't walking yet but trying. That makes it worse because he pulls up on my leg and wants me to pick him up. I just stare down at him and tell him that I can't pick him up. It's a sad thing for a mom.

No I won't be getting a hearing test tomorrow. I think he'll just do the vacuum job and send me on my way. I'm not sure when the hearing test comes. I'll find that out tomorrow.

Missy and E022-
Thanks for the tinnitus info. Today I tried to lay down but the ringing was so loud that it made it extremely difficult to fall asleep. I might be like you Missy and in a few weeks not even notice it. Let's aim for that goal.

Kendra
Day 9
I'm hoping the tinnitus goes away over the next couple of weeks also.

Yes, I scheduled another Dr's visit on 6/11, one month, and he will do a hearing test at that time.

Side note: second day after vaccuuming. Woke up this morning with a full, kinda clogged up feeling in my ear. Hearing very muffled. Stayed that way all morning, then openned up slowly around lunch time. Still sounds like in a drum and scratchy. Just wanted to let Kendra know what she might expect to experiance over the next couple of days. I would bet the packing inside my ear is breaking down, moving around, etc and my hearing will be on again, off again, for the next couple of weeks.

Bob
Day 12
I can hear so well. It made me want to cry when I left the drs office. All of the things that I've missed. I surely hope that it continues to get better. The doc said that I should be 100%. Let's just see how the next week goes. I go for a hearing test in 8 weeks.

A sidenote: I was on cloud nine when I left the drs office and well pushed the car to the limits and ran out of gas. The silly thing was that I didn't care. I was so happy running out of gas did not hold me back :)

Kendra
Day 10
Kendra! I'm so happy for you! :D That first shot of hearing is AMAZING isn't it? Hope it keeps getting better and better for you.

I'm pleasantly surprised today. I've been periodically checking my hearing in my newly operated ear by trying it out on phone calls. It was really good today, definitely louder than a couple of days ago. Maybe there is hope for this one. If so, I will be so surprised since my recovery has been virtually symptomless (is that a word?!)

How are you doing, Bob? I definitely remember the things you last mentioned with my first ear. Funny thing is I kept a daily log of what was happening the first time so that I could refer to it this time and know if I was on-track, guess I didn't need to do that afterall!

Missy
day 14
Happy Friday... well not much change. My ear seems to have a bit of a clogged feeling in the mornings and clear up late in the afternoon. This means I can't hear much in the mornings and some in the evenings. Still not hearing all that much, even in the evenings. Real hope that things begin to break loose this weekend or early next week in terms of hearing improving. I guess its only been 14 days and I shouldn't expect too much for another week or two.

Sounded like Kendra was hearing real well. So I'm a bit depressed that I can't hear any better than I can. I guess I just have to have patience.

Bob
Day 14
Hi guys

I just wanted to see how you were doing. Missy, your hearing test is Wednesday, right? And Bob, has the hearing gotten any better?

My family was sick this week and passed it to me. I didn't know that it was possible to sneeze so much. I surely hope I didn't do anything to the prothetic. I also had to blow my nose. I couldn't not do it. I did blow lightly and tried to do it one nostril at a time. I am mostly over the virus now.

I can still hear well in the operated ear. I also still have ringing but it's not as bad as the other ear. Also, the whooshing sound is gone in the operated ear. Overall, the recovery restrictions have been rough for me but they are about up now. I started picking up my little 22 lb boys today. I hope it's not too soon but I have ran out of resources. My ENT said that I could start today, which is the 2 week mark.

Let me hear how you are doing.

Kendra
Day 14
I still don't hear much. It's very muffled and crackly at times. I think I have a packing on the inside that still needs to break down and be absorbed. I can hear a bit, so I know the stick is still in place. I guess I just have to be patient.
I guess I spoke too soon about the ringing. I have the ok to pick up my little 21 lb baby and so today was my first real day back at the mommy thing and of course the baby is sick and needs to be held...one of the times I picked him up I got this high pitch ring that started in my operated ear. I can still hear out of it but the ring is rather loud. Hopefully, it's only temporary!!!
Hi guys,

I think what both of you are experiencing sounds normal. It's so hard not to get frustrated by the day-to-day differences. Bob, is there a chance that the vacuum process made for a bit more swelling? I'm not familiar with getting packing vacuumed out, but it would seem to me to involve a little trauma to the eardrum?

Kendra...Glad you got the go-ahead to pick up your baby. I can't wait to pick up my 40 pound baby ;) and give him a big hug!

I've been using abx ear drops since Sunday to break up whatever dried blood and junk that may still be in there before my appt tomorrow. It seems to be helping with improved hearing. I haven't had an obvious OMG I can hear moment like with the first ear, but I suppose that's because I've been getting by basically just hearing from my first operated ear since it healed up. But, the telephone sounds just as loud in the second ear and when I've got my first ear buried in the pillow I'm still hearing what's going on. So, I can't wait to see what the dr says and how my hearing test turns out! I'll let you guys know, but it may not be until Thursday....I have class until 9:45 after my appt. Blech! :yawn:

Missy
day 19
I had my left ear done on April 22 - Laser Stapedectomy with vein graft- and had instant hearing....heard the patient 2 rooms down getting his discharge directions post op! I was adjusting quite well to my new hearing level until a few days ago when things got even louder! Now I get some vibrations when sounds are loud. Is this something you have noticed? I had my right ear done 12 years ago and did not get this instant hearing...it took about 3 weeks to notice any change. Is it the new titanuim stapes that gives this bionic hearing?
Thanks, Kristin
Hi Kristin,
Congrats on the instant hearing! I'm not sure what you mean about vibrations with loud noises. I can't remember anything that I would describe as vibrations. I did have what seemed like a broken speaker in my ear with loud noises. Maybe that's the same thing? There also was a time with my first ear that it felt like I had super bionic hearing, but it passed to something more normal. I'm definitely sensitive to loud noises though.

The one thing I've figured out from reading this board and my own experiences with stapedectomies on both ears only 3 months apart, is that every surgery has a different recovery it seems. The differences between my two surgeries is insane!

I'm glad that you posted that your prosthetic is titanium. I've been meaning to ask my surgeon what mine are made of and hopefully I'll remember to tomorrow.

Hope you continue to recover well!

Missy
day 19 (4/24 surgery)
Mine is also titanium. Missy didn't you get a card that you have to carry around? I have a card that is from the manufacturer that shows the size and what the prosthetic is made from. My doctor gave it to my husband while I was recovering from anethesia after the surgery. I guess if it puts off a metal detector in the airport or something you have to show them the card so they don't think you are trying to smuggle in some contraband or something. I guess the saying, "I have metal in my head" just won't do. :)

Missy-looking forward to seeing your results from your hearing test!

Kendra
Day 16
Hi Missy,
Wow! You had both ears done in the last 6 months. Did you have equal bone growth in each or was one worse than the other?
Thanks for the input on the broken speaker sound. Yes, that is it! Did yours go away? I find myself wearing cotton in my ear alot.....band concerts, windy days, when my 3 year old in holloring :)
My surgery 12 years ago was local with no vein graft. This time, general, with vein graft. Funny thing..my mom had a vein graft 30 years ago with hers. My surgeon combined the old and new ideas.
Just curious, anyone else in you family with Otosclerosis? My Mom and Grandfather both had surgery for it too.
Have you had a hearing test yet? I have my next appointment on May 27. Do not know if a hearing test will be done.
Talk soon, Kristin


[QUOTE=MMFL;3567759]Hi Kristin,
Congrats on the instant hearing! I'm not sure what you mean about vibrations with loud noises. I can't remember anything that I would describe as vibrations. I did have what seemed like a broken speaker in my ear with loud noises. Maybe that's the same thing? There also was a time with my first ear that it felt like I had super bionic hearing, but it passed to something more normal. I'm definitely sensitive to loud noises though.

The one thing I've figured out from reading this board and my own experiences with stapedectomies on both ears only 3 months apart, is that every surgery has a different recovery it seems. The differences between my two surgeries is insane!

I'm glad that you posted that your prosthetic is titanium. I've been meaning to ask my surgeon what mine are made of and hopefully I'll remember to tomorrow.

Hope you continue to recover well!

Missy
day 19 (4/24 surgery)[/QUOTE]
Hi Kendra,
I will ask my doctor at my next follow-up about the card. Would not want to get stopped for an airport search for that!
How is your recovery going? I am on day 23. I have only seen my doctor once...at one wekk post op. I go back on May 27. Do not know if he will do a hearing test or not.
I also asked Missy...do you have any other family members with otosclerosis?
Talk soon, Kristin

[QUOTE=thegboyz;3568215]Mine is also titanium. Missy didn't you get a card that you have to carry around? I have a card that is from the manufacturer that shows the size and what the prosthetic is made from. My doctor gave it to my husband while I was recovering from anethesia after the surgery. I guess if it puts off a metal detector in the airport or something you have to show them the card so they don't think you are trying to smuggle in some contraband or something. I guess the saying, "I have metal in my head" just won't do. :)

Missy-looking forward to seeing your results from your hearing test!

Kendra
Day 16[/QUOTE]
Hello Bob,
Just a note of encouragement. When I had my first ear done, I did not hear a thing until about 3 weeks post op and then it was instant! I was taking a shower and could hear the water splashing. Give it a little more time and good luck!
Kristin
[QUOTE=e022313;3563254]Happy Friday... well not much change. My ear seems to have a bit of a clogged feeling in the mornings and clear up late in the afternoon. This means I can't hear much in the mornings and some in the evenings. Still not hearing all that much, even in the evenings. Real hope that things begin to break loose this weekend or early next week in terms of hearing improving. I guess its only been 14 days and I shouldn't expect too much for another week or two.

Sounded like Kendra was hearing real well. So I'm a bit depressed that I can't hear any better than I can. I guess I just have to have patience.

Bob
Day 14[/QUOTE]
Thanks Kristan... that helps. I have been a bit depressed about not being able to hear. Your words really help. My ears been popping open since yesterday, and things seem to swish a bit when I'm chewing, so things are beginning to move around and open up a bit. This morning I can hear some... it is muffled, but not broken speaker sound. What I hear, sounds pretty clear, it's just not very loud yet. Hopeing that the rest of this week, this weekend, maybe the first of next week things will break loose hearing wise. After all, it hasn't even been 3 weeks yet, so patience.

Hey guys, I haven't heard of the card for your wallet, or purse :-), for the prosthetic. I wouldn't think that it is big enough to set off a metal detector. Kristen, let us know what your DR says about this when you go see him on the 27th. I'll have to ask about it with my Dr also, but I don't go back until 6/11.

Bob
Day 19
My card says Implant Card (in like 5 languages) and has a sticker with my name and DOB then in the inside it says that my implant is titanium 4.25 mm long and .06 width. I would think since it's so small you don't need it but it's nice to have it in case. Not like I'll be flying ever because now I'm scared of popping the implant.

Kristin-
I have two aunts and my grandma that had/have it. I didn't even know until I researched it after the diagnosis (obviously I'm not that close with my father's side of the family-they live in Missouri and I live in Michigan). When I talked to my aunt she said she had the surgery in the late 80's and hers dislodged when she jumped into a swimming pool one time. She's thinking of getting it again.

My recovery is going well. I keep praying that it'll keep going this way. I have resumed my full time house wife job and it's been a little challenging. I've been picking up and putting down the baby, a lot more than I should but what can I do. I do have ringing though and it's annoying. The unoperated ear seems so loud now (the ringing not the sounds I should hear) Sometimes I feel slight pains in the ear but not sure it's because it's healing or because I'm bending/picking up kids that are over 20 pounds.

Bob-
What happen to positive Bob? You have always lifted me up. Don't get down. Kristen said her first one took three weeks. You still have time before your three week mark. June 11th seems so far but really it isn't. It's less than a month away.


I have a question for everyone--my doc. let me take home my old stapes bone. Did you guys get to take yours home? It's the smallest little bone. I just wondered if you all got to take yours home. It's in a little plastic container that snaps shut. It almost gets lost in there it's so small. Just wondering!

Kendra
Day 16
Hi Kendra,
The reason I found this thread was because I was concerned about the ringing/hissing/popping vibrations. I also thought I might be doing too much too soon. I have a 40 pound 3 year old and the car seat thing doesn't work too well without some lifting and sometimes you just forget or just want to lift them :)
I think these hearing changes are just part of the healing.
It is very cool that you got to keep your stapes! My surgeon said mine was fully encased and had to be broken out. My first ear had biscuit formations. Doesn't that sound nice...
Intersting on you family history. My grandfather had one of the first surgeries done in Iowa. At that time they did some oval window surgery with vein grafting. My Mom's first surgery was similar to his...sometime in the 1960's. She is actually talking to my doctor about re-do options for her.
Does your little one sound different now? I did not realize how noisy my little boy was when he wants his way!
Talk soon, Kristin
Happy Bob's back :-) My ear have been open most of the day. I can hear low tones pretty well. If I block my good ear there isn't much change in the sound of low tones. Which means the both ears are hearing about the same on low tones. High tones totally disappear, but I think we are making progress. The ear doesn't feel as stuffy as it has been. I'm looking forward to the next couple of days and thru the weekend for the high tones to start coming thru. Yeeeeaaaaahhhhh :-) That makes it right on track for the three week mark. Guess I should have been a bit more patient.

I was having some intermittent pains yesterday also. I think because things (packings, etc) are breaking down and moving around in the ear.

Speaking of vibrating feelings, I have had this a number of times also. I think I mentioned it in an early posting, about the night after my vaccuuming, I was playing pool at my brothers house and the clack of the balls and his voice were so loud, yet had that broken speaker sound, that I could feel my eardrum vibrating and it was very uncomfortable, to the point where I left earlier then I usually would, and went home and didn't turn anything on. No TV, no radio, just silence to let my ear rest. Last night, driving home my ear popped and I started to hear with the broken speaker sound, and the music on the radio created the same effect, so I had to turn it off. I think the broken speaker effect and the vibration thing are both caused by things resting on either the eardrum or window. The restriction would cause the sound to change (broken speaker) and the contact while things are vibrating would be irritating (to the eardrum or window). I don't know, just a thought.

Bob
Day 19
Kristin-
What happened that your mom would need to have it redone? I'm thirty years old so does that mean that I will need to get it done again in my lifetime? Yikes! Another question, why did you wait that long before getting the second ear done? Was the first one not that bad?
Yes, hearing my kids (I have four, my five year old is the oldest) is much different. I didn't realize that they were so loud. I am constantly telling them to quiet down. I tell them that they hurt my ear. Sounds are much louder now but I remember that I was told once that it takes your brain a while to readjust to hearing. Not sure if that's true but I believe it. I was told by that by an audiologist.

Bob-
Welcome back. I look forward to hearing more good news about your hearing.


Kendra
Day 16
Hi Kendra,
My Mom's hearing has faded some. She is actually about where I was before this second surgery. She turns the tv way up, misses some conversation, ect... her surgeries were done about 30 and 40 years ago and without laser or titanium...so that is pretty good! My surgeon did say that if I loose enough hearing in my right(first ear) side, he could re-do that someday. The boney growth does try to sneak back in, but my hearing in the right ear is still very good after 12 years.
I waited 12 years out of convenience. I did not want to give up the 6 weeks of running, snowmobiling, flying or whatever I was into at the time. This winter it got so bad that it was time!
On the kids and noise...do you constantly turn down the TV, car radio, ect..? My girls are 13 and 16 and think it is funny that Mom can finally hear their world! One thing they are doing is taking a FloriCal supplement daily. My surgeon suggested this to deter otosclerosis and help with nerve connections if they do get this family disease.
I do not have my 3 year old taking it. The disease starts showing up in your teens. Did your hearing get worse with each child? Pregnancy seems to excelerate the bone growth. I think having our little boy after a 10 year break is what got this left ear so bad, but he is worth it!
Talk soon, Kristin

[QUOTE=thegboyz;3569373]Kristin-
What happened that your mom would need to have it redone? I'm thirty years old so does that mean that I will need to get it done again in my lifetime? Yikes! Another question, why did you wait that long before getting the second ear done? Was the first one not that bad?
Yes, hearing my kids (I have four, my five year old is the oldest) is much different. I didn't realize that they were so loud. I am constantly telling them to quiet down. I tell them that they hurt my ear. Sounds are much louder now but I remember that I was told once that it takes your brain a while to readjust to hearing. Not sure if that's true but I believe it. I was told by that by an audiologist.

Bob-
Welcome back. I look forward to hearing more good news about your hearing.


Kendra
Day 16[/QUOTE]
Hi Bob,
Great new! You are getting there! I am still holding out for you to hear the sound of the shower or rain falling-maybe this weekend!
On the hissing, cracking sounds....it was getting really bad for me over the past week. I had a meeting yesterday afternoon and left with a major headache from the noise!
This morning I woke up with no hissing or popping at all! Everything is nice and clear. Hope it stays this way! Funny how it can change so quickly.
Keep me posted on your sounds!
Kristin

[QUOTE=e022313;3568996]Happy Bob's back :-) My ear have been open most of the day. I can hear low tones pretty well. If I block my good ear there isn't much change in the sound of low tones. Which means the both ears are hearing about the same on low tones. High tones totally disappear, but I think we are making progress. The ear doesn't feel as stuffy as it has been. I'm looking forward to the next couple of days and thru the weekend for the high tones to start coming thru. Yeeeeaaaaahhhhh :-) That makes it right on track for the three week mark. Guess I should have been a bit more patient.

I was having some intermittent pains yesterday also. I think because things (packings, etc) are breaking down and moving around in the ear.

Speaking of vibrating feelings, I have had this a number of times also. I think I mentioned it in an early posting, about the night after my vaccuuming, I was playing pool at my brothers house and the clack of the balls and his voice were so loud, yet had that broken speaker sound, that I could feel my eardrum vibrating and it was very uncomfortable, to the point where I left earlier then I usually would, and went home and didn't turn anything on. No TV, no radio, just silence to let my ear rest. Last night, driving home my ear popped and I started to hear with the broken speaker sound, and the music on the radio created the same effect, so I had to turn it off. I think the broken speaker effect and the vibration thing are both caused by things resting on either the eardrum or window. The restriction would cause the sound to change (broken speaker) and the contact while things are vibrating would be irritating (to the eardrum or window). I don't know, just a thought.

Bob
Day 19[/QUOTE]
Hi Kristen
Yes the pregnancies made it worse. It didn't get that bad until the 4th one (age 29). I actually noticed it when I was pregnant with my fourth. I told my husband it's a sign not to have any more. I can't take anything else going wrong with me. So, after your first surgery healed did you go back to doing everthing you did before. I'm afraid to go down the water slide at the water park or hesitant to even travel up in the hills. Am I exaggerating things a bit?
Hi Kendra,
Yes, I went back to all my activities after the first surgery. I was fitted with ear plugs for watersports like waterskiiing and tubing and wore those the first summer. I asked my Dr. about wearing those again this time and he said it should not be needed, but I will probably put them in if I go tubing with the kids this summer.
I do not need to fly until September, but had no problems last time with that either. My ears usually hurt less than my husband on landings!
I did take a motorcycle ride last week and the wind sounds bothered my ear some. I need to remember to use cotton!
Also, went to a parade yesterday and the bands were extremely loud! I stuffed my ear with kleenex when they marched past.
It is a whole new loud world!
Have a good weekend!
Kristin
[QUOTE=thegboyz;3570140]Hi Kristen
Yes the pregnancies made it worse. It didn't get that bad until the 4th one (age 29). I actually noticed it when I was pregnant with my fourth. I told my husband it's a sign not to have any more. I can't take anything else going wrong with me. So, after your first surgery healed did you go back to doing everthing you did before. I'm afraid to go down the water slide at the water park or hesitant to even travel up in the hills. Am I exaggerating things a bit?[/QUOTE]
Hi everyone...

I am 24/m from Los Angeles and I just had my stapedectomy surgery...

I am really worried that I will wait the 2 weeks before I see my doctor and find out that it has to be redone or that something went wrong.....

HOW DO I KNOW IF I WILL HEAR???

RIGHT AFTER my surgery I HEARD PERFECT for about 20 minutes and ever since I havn't really heard anything....I am like completely deaf in the operated ear and I am getting nervous....DID THIS HAPPEN TO YOU GUYS???

I am kind of betting on when the packing is removed that My hearing will be restored....WHAT DID YOU GUYS EXPERIENCE??
O yea.....forgot to say that it has been 4 days since my surgery...

and here is my journal that i am keeping from day one:

I APOLOGIZE FOR THE MESSINESS AND VULGARITY

After surgery-

hearing in operated ear was extrememly sensitive for about 20 minutes. I could hear my mothers footsteps in the hospital hallway.

-ear started to swell and hearing went away. blood and fluid build up i guess.

-pretty bad pain i experienced 30 - 40 min after surgery. took meds felt better. ate some hospital food and felt good as new....I got dressed and could have walked out the hospital but was wheeled out...

-on car ride home, felt no pain whatsoever felt great...once getting into my appartment I started to really feel the VERTIGO ...fucked me up pretty bad....had to really really try very hard not to let myself throwup the hospital food as i didnt want to fuck up the surgically repaired ear.

-took dramamine and pain killers and fell asleep for 15 hours.

1st day after surgery

-woke up and felt like shit....NO PAIN BUt worse SENSE of INbALLANCE...this shit is almost as bad as pain....feeling like you might fall and throwup all over yourself sucks hairy moose balls...

-i ate some soup and bread and was ok but had to keep my head down on a pillow as the vertigo was really bad...

2nd day after surgery

-it is the night of the 2nd day after surgery and i am feelin sick as I am typing on my computer....fucking diizzzy man...shoot me in the head,,,this shit fucking sucks....

-this morning i woke up after 14 hours of sleep as the bed is the only place i dont feel nautious....THERE IS NO PAIN>>>BUT VERTIGO IS SOMEWHAT OF A PAINFUL EXPERIENCE...

- i have to say i feel a little better ...but my ear is completley plugged with fluids and can't really hear shit....\

- can't wait for post-op exam ...take this shit out my ear and hopefully i will hear better...this vertigo shit is really fucking with me....i hope it goes away AND NEVEr COMES BACK>>>FUCK U VERTIGO
Hi!

Sorry I haven't checked in since my appointment, it's been crazy busy around here! I still haven't had anything going on in my ear. At my appt, my dr cleaned out my ear, I think it may have actually been the vac...not sure. After that I had a hearing test. Amazingly enough, my hearing in the newly operated ear is almost identical to my first ear and is just about as good as it can get with the nerve hearing loss! Dr said all looks good. He lifted all restrictions, I can shower without a cup over my ear, and I rode roller coasters at Disney on Friday! I have been hearing better since the cleanout. Unfortunately, it's all the annoying things my husband doesn't even hear, or blocks out, like the hissing of the gas stove, annoying rumble the dryer makes. I've been making him crazy again calling out for him to come check something because it sounds broken!

However, as good as all this sounds, I was seriously discouraged later on the day of my follow-up. I have been taking on-line college courses, and in addition to that, that evening was the first in-person class for another course. I thought I was doing well hearing as the class geared up. Once the lecture and note taking started, I realized that I'm still very dependent on reading lips. Every time I looked down to write notes I would completely lose track of the professor's lecture. I had no idea that I was still relying on lip reading for hints of conversation. It was very disheartening after seeing so much success on my chart. With my nerve loss, my hearing just isn't good enough for [I]all[/I] things, and that was a really hard reality to face.

Even though I have had this incredible gain in hearing in both ears, it's been recommended to me by my audiologist that I look into open-fit hearing aids. I had my regular cic aid adjusted after my first surgery and I couldn't stand it, as it seemed to stuff my head and blocked what I was now hearing naturally, and my own voice sounded like I was in a tin can. My surgeon says I could benefit from them, and my chart shows a need for them, but my surgeon said it's really up to me and what level of hearing I'm comfortable having. It has been amazing not wearing hearing aids at all lately, and I truly have been functioning just fine in my day-to-day world. Better than when I wore hearing aids, actually. This is the first setting that it hasn't been enough. I'm going to have to figure out my game plan and take it from there. For now, I've dropped the in-person class until I can figure out my direction. Ugghhh ~ it's never easy, is it?

I've got to catch up on all the posts I've missed, so I apologize if I'm not answering something you've asked. I'll be sure to catch up on everything within a few days.

Hope y'all are doing well!

Missy
day 25
Hi Missy
I did wonder where you were at. I wondered if you had bad results and didnt want to discuss them or something. I was actually told by an audiologist that I still may need hearing aids after the surgery if the surgery doesn't correct it as much as would make me live comfortably. I was worried that I would spend all the time and money on the surgery then still have to come up with the 4K for the aids. So far that's not the case but I haven't got my second one done like you have. Plus, I'm still healing from the first one. My hearing test isn't until July near the end. I'll look forward to hearing more later.
Kendra
Hey guys -- My hearing is unbelievable. Sat I was sitting at home watching TV and notice that the TV was loud. So, I started to turn it down. As I did I notice that it was getting down to levels half of what I normally listen at. I put my finger in my non operated ear and notice that I could hear as well with the operated ear as my good ear. That evening I went over to a friends house and we all sat out on the patio talking. By the end of the evening I notice that I hadn't missed hearing one word. I use to only hear about 60% of what was being said. Man, what a great feeling. Sunday I woke and it wasn't there anymore. It was about 50% in the operated ear. Very muffled, but no broken speaker sound. What I was hearing was very clear, just not the volume I had the night before. This morning pretty much the same. Just got back from lunch and it's about the same as Sat. The chewing action always seems to help. I think it helps move things around in the ear, and break up whatever is still in there. Very good hearing right now. I expect that this week will be on and off again in various degrees, by I can see the light at the end of the tunnel. When its clear, my hearing is unbelivable.
Hi Bob
That's great! It is so amazing to see where the volume is on the tv and even the radio in the car. I can't believe that i used to have the car radio up so loud with all my kids in the car. Hopefully, they aren't suffering any ill effects from that. I totally know what you mean about not missing anything in a conversation. I have noticed I hear things that I never heard before and frankly didn't even know I was missing. Keep us posted. It's great to hear about your progress. See, you are reaping the rewards of patience!

Kendra
Hi everyone,

I was wondering if anyone here knows:

Why my doctor is having me come back to remove the packing after [B][U]3 weeks!![/U][/B] when I see that a lot of people here have said they had their packing removed after [U][B]only 10 days[/B][/U]

WHAT DO YOU GUYS THINK?...Is there any reason I should have to wait double the amount of time????.....thanks for any info!!
JR95-
Not sure why it would be three weeks but my guess may is that it takes about three weeks to mostly dissolve. If you haven't noticed each doctor appears to do this surgery differently. Bob and a vein taken and placed inside his ear (mine was skin from the back of my ear) and Missy didn't go back until 3 weeks and I don't think she even had any packing. So, maybe it's just your doctors practice. I know waiting three weeks is tough. Missy had to do it and it seemed like three weeks was three months. But you just have to be patient (ask Bob about that one) and not worry because there is nothing you can do but wait it out.

Hope this helps
Kendra
Hi All,
I had an appointment one week post op and my next one is next Tuesday-5 weeks after surgery. My packing was disolvable, so the only thing he did at one week was to remove a few loose pieces. I had a laser stap with vein. My first surgery-12 years ago-was without the vein. Like you said, each Dr. is a little different in technique. I am happy with both results. Looking forward to a hearing test-I think I am at my full hearing ability.
Kristin
Kristen
I can't wait to be where you are. I just had the one done and I keep telling myself one down one to go. The only problem is that I'm going to have to wait a little while. It's not for the same reasons you waited but it was just so hard on my family to have me out of commission for two weeks. The baby is so little then I have the two year old that needs me. I can hear pretty well with one great ear. The problem is that the tinnitus in the unoperated ear is so loud. I still have tinnitus in the operated ear but its not the same. I don't want to live with the loudness any longer. It's hard to explain that to my husband though. People who have not gone through any hearing loss or tinnitus don't quite understand what you go through. I tell him about the ringing and whooshing like an ocean but unless you hear it all day the impact of the story doesn't do it justice. Do you have tinnitus in either ear?

Kendra
Thanks for the input.....

But do you really think it is necessary for me to have packing in for 3 whole weeks?....sounds a little crazy...

-The packing I have isn't like a cotton plug....IT is more like... well all I can see is a little strip that hangs out of the ear.....I am assuming that there is something stuck on my ear drum....WHAT DO YOU GUYS THINK?...or know..?
JR95
My packing was a type of antibiotic ointment consistency. It was clearish like that too. Not sure what yours is. Hopefully, somenone can help you out.

Kendra
Hi Kendra and All,
The tinnitis was bad in my left ear before this latest surgery. You know that buzzing sound that you have to stop and wait to subside before doing anything more...like a bee flying through your head. That is gone, but I do get just a little ringing in the right ear once in a while. I had not noticed it before because the left was so much worse. I can live with this.
Talk soon, Kristin
I am new to this board but cannot tell you how great it has been to read the posts and realize I am not alone in my recovery. I had my surgery Monday (5 days ago) in Boston with Dr. Poe and do not have a follow up appointment for three weeks so I am second-guessing myself like crazy. My doctor did not say anything about vein or blood grafts and my prothesis is platinum teflon. I did not get a card like some of you but my doctor signed a note saying it would be ok for me to have n MRI should the need ever arise. I have had no pain since the surgery and very few symptoms. I sat around the house for two days doing nothing and on the third day went out to water my garden and became so dizzy I had to lie down. But that passed after an hour or so and since then I have been driving, working at my computer, walking and doing light house work such as laundry. I have been sleeping well have no ringing but some occasional popping sounds, especially when I yawn. The hearing in my ear is ok but not great and I still have a mild numb feeling on one side of my mouth. This is all a big deal for me since I have the disease in both ears and do not hear well at all in the unoperated ear. I'm terrified the operation hasnt worked or worse that somehow I have been too active and broken something. I was so scared about washing my hair that I had it done at a hair salon. But that was too espensive and I'm going to try the cotten ball vaseline saran wrap approach. I asked my husband if he'd help, but he's too worried about screwing up. Like some of you, I have two young children and a very old dog who needs to be carried in and out of the house. Because I cannot carry him since the surgery, he has been peeing on the floor inside, which then means I have to bend down to clean up. Sorry for the ramble, but it's nice to vent!
Polly
[QUOTE=psalty;3580696]I am new to this board but cannot tell you how great it has been to read the posts and realize I am not alone in my recovery. I had my surgery Monday (5 days ago) in Boston with Dr. Poe and do not have a follow up appointment for three weeks so I am second-guessing myself like crazy. My doctor did not say anything about vein or blood grafts and my prothesis is platinum teflon. I did not get a card like some of you but my doctor signed a note saying it would be ok for me to have n MRI should the need ever arise. I have had no pain since the surgery and very few symptoms. I sat around the house for two days doing nothing and on the third day went out to water my garden and became so dizzy I had to lie down. But that passed after an hour or so and since then I have been driving, working at my computer, walking and doing light house work such as laundry. I have been sleeping well have no ringing but some occasional popping sounds, especially when I yawn. The hearing in my ear is ok but not great and I still have a mild numb feeling on one side of my mouth. This is all a big deal for me since I have the disease in both ears and do not hear well at all in the unoperated ear. I'm terrified the operation hasnt worked or worse that somehow I have been too active and broken something. I was so scared about washing my hair that I had it done at a hair salon. But that was too espensive and I'm going to try the cotten ball vaseline saran wrap approach. I asked my husband if he'd help, but he's too worried about screwing up. Like some of you, I have two young children and a very old dog who needs to be carried in and out of the house. Because I cannot carry him since the surgery, he has been peeing on the floor inside, which then means I have to bend down to clean up. Sorry for the ramble, but it's nice to vent!
Polly[/QUOTE]

Psalty, don't these people make you feel like it is a common procedure? I am glad that we all can benefit from their experiences. I too am glad I found it. I hope you continue to do well, but don't over do it. Good luck!

I have a question for anyone who can advise me on this, and even if it is more than one person, I'd like as much input as possible. I work at a school and today was my last day for the summer! Yeah is normally my expression in the years past, but not this summer. That is because one June 4, I am going to consult with a physician in New Orleans at Oshner's hospital about having this procedure. I would like it done asap so that when school starts again on August 6, I am ready to go. My problem and question is that I am moving to another school. No big deal, I have already packed and brought my stuff in what was supposed to be my new room. Within the next week, my project was unpacking, setting up, etc. Now I am being told I will probably be in another room, one that the teacher still does know that she is vacating, and will be notified soon, then she will have to pack up, etc. which is making me worried that I cannot move and be settled in before my operation. I have read that most people have lifting restrictions, but for how long / much? This new room will be on the second floor. And what about the up and down movement of unpacking. I am thinking that for maybe up to 6 weeks that would be a no-no, but it seems that everyones doctor has different rules. If I am going throw the pain, trouble, and expense of this operation, I do not want to chance destroying my success.

I plan on going talk to the principal on Tuesday, because of the holiday. I really wish I could stay where my things are in that room. It is awesome!
It's been seven days since my surgery and still no hearing in my ear. In the first few days I would get bubbling and tantalizing bits of super sonic sound but for the last two days no bubbling and no breakthrough sound. I'm very scared this means the surgery has not worked. I confess I also forgot yesterday and blew my nose, not hard but enough to cause a burble. No pain and no change in what sound is making it through, though. Has this happened to anyone else?
Hi Polly,
You are doing great for one week post op!
The hearing changes last quite a while and are always scary. I am at week 5 today and seeing my doctor in a couple hours. This is only my second appointment since surgery. The first was at one week. I am hearing great most of the time, but once in a while I get some fullness or static.
On the hair washing....cotton and a towel works great. At one week, my Dr said that getting a little wet would be fine. Just gently blow dry your ear if it gets a little wet.
Lifting...the dog, kids, ect. is a tough one. I was taking my son (age 3 and 35#) out of his car seat after a few weeks. It did not do any harm. Just watch the pressure in your head.
Good Luck with your continued recovery and keep posting your progress!
Kristin
Hi!

Kendra and Bob....how are you guys doing these days? We seem to have dropped off, hopefully that means that we're all busy enjoying our new hearing! I'm doing really really good. I'm continuing to make peace with the remaining hearing loss I have due to nerve loss. Nothing can change that, and I am light years ahead of where I used to be. There is nothing in the world like not wearing hearing aids at all after wearing them before. I've been a theme park junky, as always, and it's been great getting on water rides not worrying about covering up my hearing aids to keep them dry. I've been in our pool alot more with my son since I can actually hear him now. That was a really scary thing before. For some reason, sleeping on my ears is uncomfortable sometimes. I still occasionally use that foam pillow with the T cutout. I ended up dropping my in-person classes and am only taking an online class until I figure out what direction to go. I'm going to look into open-fit hearing aids out of curiousity, but I truly think I'm going to figure out how to manage with the new natural hearing I have, which despite the nerve loss, I think is really great! So, that's it for me.....check in when you guys have a chance!

To everyone else joining our thread....welcome and I hope we've helped some. I'll catch up one day soon and reply wherever I may be able to. Good luck!

Missy
day 34
My hearing came in this morning with a little burble follwed by raw noise, like someone doubled the volume (Day 9 after surgery) and it's been such an exiting day revisiting with all the noises I had forgotten like the sound of my car engine, the soft padding of my bare feet walking across the floor, the wind in the trees. Best of all was talking with my two little boys and not having to ask them to repeat everything or respond with hand signals. I feel so lucky to hear and have so few adverse symptoms and hope this lasts. The euphoria may be enhanced by all my fears over the weekend that I might have undone my surgery by overextending myself. The only bad part is that my surgeon leaves next month for a year sabatical in Norway so I will have to wait a year to get the other ear done. I was very scared about this operation, especially after signing the permission slip that listed all the possible negatives. But now I wish I had done it seven years ago when my hearing went.
Hey guys. My hearing is great. My ear is pretty much at full hearing. I go for a hearing test on 6/11, but I know it's going to be good. I'm listening to the TV at less than half what I use to. I can hear the tick of the clock on the wall in the living room. And I don't miss a word being said in group conversations.

Bob
Day 35
Missy and Bob

I am so happy for you both!! My hearing is well also. My hearing test isn't until July but like you Bob, I can definately tell the difference. I know it's gotta be normal and at times I call it bionic. I just need to work on getting the other ear done-in due time.

Missy it's good to hear that you are doing all of the things that you want. I love your attitude with your nerve hearing loss. You are really a forward thinker and want to accomplish things in life.

I look forward to updates. I'll keep you all posted as well.

Kendra
Day 39 and hearing great
To all of you posting your day post surgery number, just wanted to say thanks. Today, I printed up the post on several different threads, to include this one, so I can compare start to finish to see about how many had vertigo problems, etc.
I go June 4 to the Dr. and set up my surgery.


Thanks guys and gals for your up dates, and especially the post op amount of days.

Gwyn





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