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Other than the dry mouth, was it successful? How much did your hearing improve? Were there any other side effects?

If I had to choose between hearing impairment and dry mouth, I would probably choose dry mouth. If nothing else, it seems that a dry mouth is more easily treatable. On the other hand, I don't know how severe your dry mouth symptoms are, so it may be much more unpleasant than I can imagine.

I don't think this is a common side effect so my guess is that the likelihood of similar outcome is low. So there is that to consider.

I also feel that the longer you let otosclerosis advance, the more difficult it becomes for the surgeon to perform. I feel with more advanced cases there are more side effects and the hearing improvement isn't as good. But thats just a lay person's opinion and its not based on any clinical evidence. A doctor would probably have a more educated opinion.
[QUOTE=mspgh;5222188]Other than the dry mouth, was it successful? How much did your hearing improve? Were there any other side effects?

If I had to choose between hearing impairment and dry mouth, I would probably choose dry mouth. If nothing else, it seems that a dry mouth is more easily treatable. On the other hand, I don't know how severe your dry mouth symptoms are, so it may be much more unpleasant than I can imagine.

I don't think this is a common side effect so my guess is that the likelihood of similar outcome is low. So there is that to consider.

I also feel that the longer you let otosclerosis advance, the more difficult it becomes for the surgeon to perform. I feel with more advanced cases there are more side effects and the hearing improvement isn't as good. But thats just a lay person's opinion and its not based on any clinical evidence. A doctor would probably have a more educated opinion.[/QUOTE]

The left ear stapedectomy was very successful, and I know have normal/borderline hearing in that ear. Don't downplay how bad dry mouth is. If it's severe, you get cavity after cavity after cavity and gum disease to the point where you end up losing all your teeth, but you have trouble with dentures because you need saliva to get dentures to stick to your gums. Dry mouth causes far-ranging health consequences, including digestion issues due to the lack of saliva, that hearing impairment does not. But you're right that damage to the chorda tympani nerves due to stapedectomy is not a common side effect.
Yes, I would definitely recommend Dr Berenholz. The results of my stapedectomies are absolutely amazing. Google "Lippy Group" to find info about the practice (sorry, the forum doesn't allow me to post direct links).

I had the surgery because I was losing my hearing due to otosclerosis and I didn't want to use hearing aids. This was a personal decision for me, but the two main factors in that decision were: (1) I am a musician and an amateur audio engineer. The use of a hearing aid would have probably been the end of my audio engineering work, and (2) I felt that a hearing aid would only treat the symptom not the underlying condition. Furthermore, if left un-corrected by surgery, otosclerosis can eventually cause permanent sensorinearual hearing loss, and I was at a point were bone conduction tests still showed good auditory nerve function and sensitivity. So surgery had a big potential upside for me and although I knew there was some risk, I was willing to accept it.

Warren is near Youngstown, so its a couple hours from you in Columbus. I don't know of any surgeons in your area, but I felt Dr Lippy and Dr Berenholz were better options than any other surgeons I found in Pittsburgh. We do have world class medical care with UPMC right here in town, but for this particular condition and this particular procedure, I felt Dr Lippy and Dr Berenholz were the best choice for me.

Yes, I strongly agree, as do many others, that you should find an experienced surgeon to perform this procedure. Find the most experienced surgeon you can. I think it increases the chances of favorable results and reduces your chances of complications and side effects. I chose the Lippy Clinic because otosclerosis is one of their specialties and between Dr Berenholz and Dr Lippy, they have performed over 10,000 stapedectomies. I was very confident in their abilities. ...Just a personal anecdote on this topic: An acquaintance of mine from Chicago also had stapedectomies on both ears. The first procedure was performed by (in his words) "a general ENT guy" who had maybe done a few hundred stapedectomies and the second was performed by a specialized surgeon who had done several thousand. The results of the second were much much better, and the last time I talked to him about it, he was considering a revision procedure of the first stapedectomy that had less than stellar results.

I have a titanium Robinson prosthesis in both ears, which are MRI safe. Titanium is a strong lightweight metal that is used in many medical/surgical applications (implants, surgical instruments, etc...). I think there are several types of prostheses in use (different materials, different shapes), in fact I believe Dr Lippy has even developed his own prosthesis. Your surgeon should be able to answer more detailed questions about the types of prosthesis that they use.

By the way, don't feel bad if you don't get too many responses to a thread. The board doesn't have alot of regular posters. People tend to come here looking for info and move on when they are done. Hoever, the forum archives are full of info, so I would suggest that you read through them.





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