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Hi Docs,

Yeah, I agree with your reading of the hiv test--it is an "UNdetected" result. However, I am shocked that your doc and or lab is sending hiv tests around the country, and giving results in any manner except personal communication. This is not correct, not careful, and certianly not polite (especially of the poor s.o.b. whose result is not so happy, and whose mother opens his mail).

I do think this behavior is way off base, no kidding.

Anyway, as to the hcv stuff, your numbers except for viral load are not so terrible, really. The viral load number is among the higher ones we've sen on this board, but it has less significance in hcv than in some other conditions (hiv being the example that springs to mind).

High viral load does have a modest but predicatable negative relationship to achieving sustained response with ifn treatment. A high viral load is not as strong a negative predictor as genotype 1, but it is no help, either.

Some studies, if I read them right, have found less likelihood of complaints of hcv symptoms with very low viral loads (less than l00thousand i u, for example), but none have found much symptom or disease relationship at the higher end--at least as far as I have discovered. And, anyway, so many of us never have what you could call symtoms, not really.

In other words, it seems mildly protective to have a very low viral count--lower than most of us here can report. But it does NOT seem dire to have a very high viral load. It does not mean you are "sicker." Except when it comes to expectations of tx response, and here antyhing above a few million (two million in some studies, four or five million in others) knocks a few points off your probability of sustained response.


As to whether your earlier lab results might have used a test with a "ceiling" of one million, who knows?

If you're really really worried you might be able to talk your doc into checking again in a few months, although insurance might not cover it unless he has a medical purpose he can supply to them.

On balance, though, considering we have Hep, the results you got here are not really out of line. In my opinion, anyway.


sean
[QUOTE=sean]Hi Docs,

Yeah, I agree with your reading of the hiv test--it is an "UNdetected" result. However, I am shocked that your doc and or lab is sending hiv tests around the country, and giving results in any manner except personal communication. This is not correct, not careful, and certianly not polite (especially of the poor s.o.b. whose result is not so happy, and whose mother opens his mail).

I do think this behavior is way off base, no kidding.

Anyway, as to the hcv stuff, your numbers except for viral load are not so terrible, really. The viral load number is among the higher ones we've sen on this board, but it has less significance in hcv than in some other conditions (hiv being the example that springs to mind).

High viral load does have a modest but predicatable negative relationship to achieving sustained response with ifn treatment. A high viral load is not as strong a negative predictor as genotype 1, but it is no help, either.

Some studies, if I read them right, have found less likelihood of complaints of hcv symptoms with very low viral loads (less than l00thousand i u, for example), but none have found much symptom or disease relationship at the higher end--at least as far as I have discovered. And, anyway, so many of us never have what you could call symtoms, not really.

In other words, it seems mildly protective to have a very low viral count--lower than most of us here can report. But it does NOT seem dire to have a very high viral load. It does not mean you are "sicker." Except when it comes to expectations of tx response, and here antyhing above a few million (two million in some studies, four or five million in others) knocks a few points off your probability of sustained response.


As to whether your earlier lab results might have used a test with a "ceiling" of one million, who knows?

If you're really really worried you might be able to talk your doc into checking again in a few months, although insurance might not cover it unless he has a medical purpose he can supply to them.

On balance, though, considering we have Hep, the results you got here are not really out of line. In my opinion, anyway.


sean[/QUOTE]

Thanks Guy I needed some feedback sometimes I feel like it's just me but I know doctors should handle things better & have better bed side manner & I think I will pursue this as far as I can take it legally so as to try & make sure someone else does not have to go through the same thing I did.
For two days I had to wait & still only heard his nurse say he said she said not from him & you are right about the mail. SO XXXXXX inconsiderate!!!!!!!!





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