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Re: Hep C and Me
Oct 20, 2006
Hi Michelle! My genotype is 1a and I'm in stage 3. My LFT's, HCV-RNA , AST, ALT's aren't really bad, Next week though I will get my blood work back and see what my liver biopsy showed. Sometimes I forget that I'm sick, I am tired all the time but I get up and motivated. I usually take a nap in the afternoon for a couple of hours. Besides being tired all the time oh, and sometimes my right side up by the liver hurts but nothing major . I keep busy at home, eat right and get my rest. My 1st treatment was the interferon, 3 shots a week, then I did interferon and ribavirin, and the 3rd one I did was the copegus pegasys. After the very 1st treatment the virus was dormant for 8 yrs. The 2nd treatment I was taken off of it for I got a drug resistant staph infection on my head. I had big sores that looked liked boils that had to be cut. My last treatment my hair when it was growing back would grow then the tip of it it would go back in my scalp causing in grown hairs so I had to keep my headed shaved for a year. The treatment made my eye sight worse, I was very depressed, I had mood and behavior problems, , so for me it was one of the worst treatments that I have done so far. Now my doctor wants me to do the infergen treatment and I'm a little scared. I'll will probably start it in Nov. or Dec. because I want to go to Washington to see my daughter and grandson first.How are you doing on your treatment? Are you almost done?
Re: Hep C and Me
Oct 21, 2006
[QUOTE=lilcatwigs]Hi Michelle! My genotype is 1a and I'm in stage 3. My LFT's, HCV-RNA , AST, ALT's aren't really bad, Next week though I will get my blood work back and see what my liver biopsy showed. Sometimes I forget that I'm sick, I am tired all the time but I get up and motivated. I usually take a nap in the afternoon for a couple of hours. Besides being tired all the time oh, and sometimes my right side up by the liver hurts but nothing major . I keep busy at home, eat right and get my rest. My 1st treatment was the interferon, 3 shots a week, then I did interferon and ribavirin, and the 3rd one I did was the copegus pegasys. After the very 1st treatment the virus was dormant for 8 yrs. The 2nd treatment I was taken off of it for I got a drug resistant staph infection on my head. I had big sores that looked liked boils that had to be cut. My last treatment my hair when it was growing back would grow then the tip of it it would go back in my scalp causing in grown hairs so I had to keep my headed shaved for a year. The treatment made my eye sight worse, I was very depressed, I had mood and behavior problems, , so for me it was one of the worst treatments that I have done so far. Now my doctor wants me to do the infergen treatment and I'm a little scared. I'll will probably start it in Nov. or Dec. because I want to go to Washington to see my daughter and grandson first.How are you doing on your treatment? Are you almost done?[/QUOTE]

Hi Arlene, My God you are brave and tenacious and a lot of other things (all wonderful attributes). I don't mean to sound patronizing, but I could and would never go through what you've been through.
It's hard to believe that your SVR lasted 8 years then reversed itself?
I'm just 4 injections into my 48 wks....this is the 1st TX for me being a 1b (only a 42% chance for a SVR), late 1st or early 2nd stage with secondary cyroglobulinemia at age 58. It took me painstaking thoughtfulness to decided to go through with this treatment. Mostly other than where my smptomatology is right now, starting TX was based primarily on my age (not getting any younger), having a great husband, 3 grown kids, and a new grandchild that I wish to enjoy with a reasonable good quality of life. I finally decided to allow myself one and only one chance with this conventional TX. I'm trying to employ a lot of other things along with it - pulling out all the stops...good diet, herbs (lots of milk thistle), meditation creative visualization, yoga, and going to look into acupuncture and I was just reading an article about qigong (a holistic "life force" healing practice). If this peg/rib. TX does not give me a SVR, I consciously choose to keep up with all the other practices and see where it takes me. Right now, I'm having all the typical textbook symptoms and though I feel my doc has all good intentions - he's still sees TX through his Western traditional practices. When I've tried to discuss any of the adjunct therapies, he gently smiles and says, "you just do whatever it is you feel you have to do, but take the TX too". Western docs just aren't schooled in anything, but western medicine...so missing out on a lot of other promising therapies or practices. The immune system is regulated by more than just pharmaceuticals put out by the FDA...toxic ones at that.
I've been through late 2nd stage breast cancer surgery, chemo, radiation, and going on 6 out of 10 yrs of follow-up meds for that. I'm thankful for still being here, but I just have to think that at some point quality vs. quantity; that certainly is a personal decision. Didn't mean to get off on a tangent....just purging some more.
All my prayers for your upcoming lab and BX report and truly peace of heart and mind with your future decisions.
Oh, one more thing.....have you sought a second opinion or reevaluation from maybe a teaching university at this point in your TX phase.
Regards, Michelle :angel:





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