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Knee & Hip Problems Message Board


Knee & Hip Problems Board Index


Hi Play Hard-
I have a disease called Synovial Chondromatosis which produces benign soft tissue tumors. I have it in the knee. Has your dr said what kind of tumor this is you have? I'm curious if you have a similar disease. Another similar disease is PVNS that causes tumors. Any of these names discussed with you? I too go to an orthopedic oncologist for this and have had several operations. You can read some of my earlier posts under synovial chondromatosis further down this page. I know sometimes the tumor can weaken your knee and the injury is a result of the weakness and not the other way around. Are you scheduled for arthoscopy or open knee surgery? Let me know I'm curious. Good luck to you.
MoLu
[QUOTE=MoLu]Hi Play Hard-
I have a disease called Synovial Chondromatosis which produces benign soft tissue tumors. I have it in the knee. Has your dr said what kind of tumor this is you have? I'm curious if you have a similar disease. Another similar disease is PVNS that causes tumors. Any of these names discussed with you? I too go to an orthopedic oncologist for this and have had several operations. You can read some of my earlier posts under synovial chondromatosis further down this page. I know sometimes the tumor can weaken your knee and the injury is a result of the weakness and not the other way around. Are you scheduled for arthoscopy or open knee surgery? Let me know I'm curious. Good luck to you.
MoLu[/QUOTE]
MoLu-

I had my surgery and the tumor was found in the synovium. The oncologist said that the location of the tumor was rare. I am curious about this Synovial Chrondromatosis. I know that you mentioned that the tumor can weaken the knee and an injury can be the result of the weakend knee. I do know that was not the case with my situation. My injury happened as a result of me falling off of a ski lift (I tore my MCL and did some other damage), which I think anyone would have messed-up their knee in that situation. However, the tumor did not show up until about a year after my accident. I'm thinking that either the injury and tumor are totally separate cases or the injury after time stimulated the growth of a tumor.

I did a little reading about this disease and found it interesting that these tumors can form in areas where there is a synovium membrane (knee, hip, ankle, etc...). I had a tumor on my ankle when I was 9 years old, I'm not sure if this was located in the synovium (my surgery report was not that detailed).

Any more information on this condition would be greatly appreciated.

Thanks!
[QUOTE]Since you have had your surgery what were the findings from your biopsy?[/QUOTE]
My pathology report says:

-Benign reactive
-Some fibroadipose tissue, skeletal muscle, and scant synovium is attached to the cyst
-Benign fibroadipose tissue
-Mass is partially lined by flattened cells, some of which appear to be histiocytes (CD31 positive). Some of the cells may also be fibroblasts or flattened synoviocytes.

The report says a lot more, but it's too much to type here. I tried to pull out what I thought was important. The doctor said that my tumor was rare and that he has only seen about 3 other tumors in the synovium like mine.

[QUOTE]Luckily for me it's not very painful but back of leg, heel, bottom edge of foot and several toes are now numb. I guess the tumors stretched the nerve causing the damage and they think it is now scarred. Now arthritis has set in and I'm looking at a TKR before too long.[/QUOTE]
I have not had any numbness in my foot or anything like that. All I know is that ever since I fell off of that ski lift things have NEVER been the same! I don't have arthritis anywhere else in my body, I am 33 years old so I would hope that I'm too young for that. Since in the past the doctors sort of blew me off regarding this injury, I may have developed arthritis. I noticed this tumor 1.5 years ago and thought it was swelling; I kept icing it then finally went to another doctor because it was becoming very painful.

This is just so frustrating, right before this injury I used to run a distance of 4-6 miles per run, 5-6 days a week. I hate this, I can't do anything!





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