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Knee & Hip Problems Message Board


Knee & Hip Problems Board Index


Hello to all! Thank you so much for replying!
I had my arthroscopy in April, after my knee had basically locked in to place, docs had no idea what the problem was and thought that my cartilage had come lose. I was warned that worse case scenario I would be on crutches for 15 weeks, but as I basically had the stuff cleared out, I was back to work (I have an office job) within 10 days, without crutches. I was in hospital in the morning and out by the afternoon, even though the general aneasthetic didn't agree with me, it was so easy going.
The problems I have found afterwards: it took a while and my knee still does not bend or straighten fully, feels pretty weak on a walk, I have been advised to never do any high impact sport (I unfortunately put on weight because of this) and my biggest issue is the sheer lack of factual information, what I mean by this is that my doctor can not tell me how or why I got this, if it will come back, how they can treat it, etc.
I'm afraid from my limited experience I can't say much about the stuff other than arthroscopy, but that the doc said the synovectomy is invasive, painful and has absolutely no guarantee of being effective, so I hope it never comes back (not sure I am that lucky...!) I am also unable to comment in regards to the costs, as all my treatment has been on the National Health Service in the UK.
Be good for us all to check in and share experiences!
Well, it's over. Turns out I had SC after all. As soon as I woke up I asked "How long was I in there". When he said "About an hour and a half", that's when I knew since a routine scope only takes a half hour or so.

They took out over 100 loose bodies. The largest was 1cm. It looked like a bag of rice had broken inside my knee. Recovery is going fine (although it's only been a little more than 24 hours). I'm hoping for good news when I go back to get the stitches out next week. I'm going to ask for a discount since I'm sure some university med students got to observe the procedure (there were about 15 extras hanging around the OR).

The best part is they miss me at work. When you work in one place for 15 years and have only taken two sick days, they really don't know how hard you work until you're gone for a while. I can't wait until I go back in a week (only to take some vacation time...hehehe).
[QUOTE=Emma1981;3189619]Hello, I was diagnosed with SC in my knee a few months ago, and had a Arthroscopy within 2 days!
There is a fair bit of information on the disease I have found on the internet, but I want to hear from others about their experiences.
I also would like to know if there is anyone who has had the synovial something or other removed?(!)
I look forward to hearing from you![/QUOTE]

Hi Emma

I have had around 8 or so operations on my left knee. No.s 5,6 & 7 were partial synovectomies via keyhole. I just had my 8th and the disease is looking a lot better.

Synovectomies are still the recognised way to go it seems, I think I saw that someone posted that they are very painful and a last resort. That is a matter of opinion that varies between doctors I think. My Synovectomies were recognisably more painful but I was still walking same day after the operation and was back to work after 3 weeks. My advice is not to be too scared about asking your consultant what his or her past experience is in treating this disease... It is your health after all!

BTW - Only my first two were NHS and they were pretty bad - for those in the UK if you have seen the national news over the last few days and look at my location you will know why I went private...

Graham
Glad I found this board and can find some more info SC. I have been dealing with my knee for a good year now. The first doctor thought it was bursitis and stated that I was a little bowlegged. I received two cortisone shots for the pain. First one was great, second one really didn't work as well. I wasn't buying the bowlegged issues since I have never had any knee or leg issues or been told that I was bowlegged to the point where it might cause an issue.

Symptoms started with a very tender spot on the knee. To the point where poking the area would shoot pain thru the leg. This has turned into more pain along with limping. As the limping got worse I started to have hamstring issues and muscle spasms. My knee wouldn't be that bad in the morning but after driving to work I would have to lift myself out of the car and would limp the whole way into the office. Driving started to become an issue because a quick move to the break pedal would be met with a sharp pain in the knee. My foot would jump away from the pedal slightly. Enough of a jump that I really worried about getting into an accident. I was also not able to flatten my leg down on the floor or on a table. No matter how much they worked on it at PT, the leg would tighten right up again.

Due to an injury I was seeing another doctor and decided to get a second opinion on the knee. At first he though it was a meniscus issue. I was at the point where I met with the surgeon, but after reviewing everything he said there was no way he was going in. There wasn't a clear tear showing up to warrant a surgery.
Since then I have gone in for two more MRIs, I saw a neurologist, and a rheumatologist. Everything has come back negative. The doctor believes that my issues is SC. I am waiting for my next follow up to see what I do next. He had mentioned possible surgery but had sent me to two doctors to rule other things out.
Hi, I am very happy to have spent the last couple of hours reading your various stories about SC. Thank you MoLu for setting this all up back in 2006.

May I suggest that if we are asked to start a new thread, we notify each other to keep in touch.

I am 34 years old. I had open knee surgery when I was 13 to repair a damaged patella after dislocating my knee kicking a ball. I had ACL issues, etc. They put 3 pins through the kneecap to keep it from falling apart.

Through my late teens and through my twenties, I was not soft on my old knee. I played a lot of ball hockey (involves a lot of running and sudden stopping) and a lot of snowboarding. All the time thinking I would pay for it later in life, but was not causing me too much grief, aside from the constant stiffness and swelling. I've never been able to bend my knee more than halfway. I have seen doctors over the years, they said that I need to stretch more, and I should go to PT. That never helped, I knew it wasn't anything to do with stretching.

I had a couple of scopes for ACL tears when I was 16 and 19 on my left knee, but it feels as good as new today.

As mentioned, my right knee has always been problematic, with a constant "swell", larger than my left knee.

About a year ago, I began to feel something a little different with the R knee. It was similar to philip5667 in that I would get out of my car, lifting the R knee and feel a strange "pinch" that would make my knee swell for a couple of days. Again, just like DarkDazzler, I would kneel on my bed, or roll over in bed, and the knee would catch slightly, and swell up for a couple of days.

I went to see a doc, he sent me for an X-ray. Mild arthritis, no issues with the bones. We scheduled an MRI. MRI was taken on a Wednesday.

That Thursday night following, I was sitting on the floor playing with my son, I turned to the side to get up to see him, and my knee just stayed in place, like a "locking" sensation. The leg wanted to go, the knee stodd straight. This was something new! I knew it was something serious, but it did not swell immediately following.

I woke up the next morning, and it was the size of a grapefruit. I went to the clinic and was told I can see a specialilst in maybe a month or two. I went straight to Emerg at the hospital. The MRI results came in while I was there, and it showed "severe arthritis" and "loose bodies" floating around in the knee.

I met with a OS on the Monday. He said "severe arthritis" "You don't understand the damage", "cartilage is gone", "knee replacement in the future", etc. He didn't even look at my knee or ask me what happened or symptome or anything. He booked me for a scope to remove loose bodies, which I was happy about. I spent the good part of a month researching about loose bodies in the knee and was comfortable as the pain was not unbearable before this incident.

I started to see a Chinese Meridian Therapist while waiting for surgery. He said that most of my problems are with how I bend my hips, and the knee pain is residual of this. I started to see him twice a week, moving vertabrae, pushing very sensitive pressure points in the feet, jaw, etc. He spent a lot of time working on the knee, bending it in different ways and stimulating muscles around it (calf, stomach muscles, etc.). He said the loose bodies were there, but were caused because of my patella tracking incorrectly. He wanted me to put off surgery. His claim is that Western doctors only want to solve the symptoms, and not the cause. I couldn't agree more, but thought that removing the loose bodies would help now, and he could help me long-term with the tracking.

The thing is, after about 5 weeks after the incident, I was walking confidently, he had taught the "correct" way to walk which puts weight on the hip and not on the ankle and knee, I have been sleeping with pillows under my knees, and watching my overall posture. I was looking forward to getting the surgery, and continue to see him and thought things would be great.

Then, I had the scope done last Wednesday. I'd heard such great success stories with the removal of the loose bodies, I was confident.

However, I had my post-op follow-up with the OS today. He said that they took a piece and sent it to the lab, it was analyzed under a microscope, and I have SC. This is news to me!

This would explain the constant swelling and the catching in my knee. When I mentioned to the doc about my surgery at 13 and I thought this was the cause of all my knee problems, he said that SC was probably the cause.

He said that removal of the synovial tissue is a last resort, but said that "this wasn't the end of the story" for my knee. They flushed out all of the pieces in there, and to the extent I can bend my knee now, I do not hear any cracking or pieces in the joint itself.

I'm not sure about the timeline here. Reading about the phases, I would think that I should be done growing the "rice bodies" if it's been almost 20 years?

I know a lot of the reports on this site have been about bad experiences, I was wondering what has helped you guys?

- Impact sports are completely out.
- Excessive hiking and stairs are out.
- Lifting weights and heavy lifting are out.
- Generally, this joint will need a great deal more attention than others, and my lifestyle will need to reflect the treatment of this knee.

- Swimming, low impact cycling, and ice skating are good (confirmed with the surgeon, although I don't trust he knows the full extent)
- A low-grade hour-long walk daily. I'm going to continue with the proper walking techniques from the Chinese doc. I've been doing them today, although my knee is still swollen, and it feels painless.
- Ice has been helping in the post-op, I think I'll continue with this practice.

So am I dreaming that I will be back to my pre-op state, where things were feeling better? Do you think the catching I felt was the result of the SC and I have only had this disease for only the past year? Now knowing that all of the small catches (about 6) and one big one I've had in the past year was not due to a loose body, I worry that it will just continue. I hope he flushed out any "rice bodies" that would have caused my mobility issues, if not the pain and swelling itself.

Is there any foods or herbal changes that have worked keep the swelling down? Any techniques that have worked for you?

Again, I appreciate this forum. I hope my story hasn't put you to sleep, but I wanted to put my entire history on here, as I feel there are ups and downs that some of you may have interest in reading about.

Any advice would be greatly appreciated, good, bad or indifferent. I'm hopoing we can learn from each other here and find some formulas that work.
Hi Newbie-
Glad you found the thread. I'm just under two years out from my TKR. No sign of a recurrence but still hounded by pain but it is minimal. My TKR feels good and I can do most everything I need to do but still have a daily nagging pain around my knee when walking. It does feel solid and strong and I bike 13 miles a day to keep it healthy. My ROM is great but still have tightness around the knee cap and a tendon behind my knee snaps.

Regarding costs there are just too many variables to say what your out of pocket costs might be. Do you have good insurance? I think there are sites where you can compare costs for a hip replacement between hospitals in your area. But your doctor will probably have one he prefers so you might be limited to that. The costs for common procedures like replacements might be able to get just by calling your hospital. That is if you are in the states. I'm sure the doctor has a ball park figure also.

I was back working a desk job by two months. Don't know the difference in recovery between a knee and hip. I bet it is similar. There are probably some good threads on here regarding hip replacements to give you an idea.

Good luck to you and if I can help let me know.
Martha
[QUOTE=krcanuck;3810874]Hi, I am very happy to have spent the last couple of hours reading your various stories about SC. Thank you MoLu for setting this all up back in 2006.

May I suggest that if we are asked to start a new thread, we notify each other to keep in touch.

I am 34 years old. I had open knee surgery when I was 13 to repair a damaged patella after dislocating my knee kicking a ball. I had ACL issues, etc. They put 3 pins through the kneecap to keep it from falling apart.

Through my late teens and through my twenties, I was not soft on my old knee. I played a lot of ball hockey (involves a lot of running and sudden stopping) and a lot of snowboarding. All the time thinking I would pay for it later in life, but was not causing me too much grief, aside from the constant stiffness and swelling. I've never been able to bend my knee more than halfway. I have seen doctors over the years, they said that I need to stretch more, and I should go to PT. That never helped, I knew it wasn't anything to do with stretching.

I had a couple of scopes for ACL tears when I was 16 and 19 on my left knee, but it feels as good as new today.

As mentioned, my right knee has always been problematic, with a constant "swell", larger than my left knee.

About a year ago, I began to feel something a little different with the R knee. It was similar to philip5667 in that I would get out of my car, lifting the R knee and feel a strange "pinch" that would make my knee swell for a couple of days. Again, just like DarkDazzler, I would kneel on my bed, or roll over in bed, and the knee would catch slightly, and swell up for a couple of days.

I went to see a doc, he sent me for an X-ray. Mild arthritis, no issues with the bones. We scheduled an MRI. MRI was taken on a Wednesday.

That Thursday night following, I was sitting on the floor playing with my son, I turned to the side to get up to see him, and my knee just stayed in place, like a "locking" sensation. The leg wanted to go, the knee stodd straight. This was something new! I knew it was something serious, but it did not swell immediately following.

I woke up the next morning, and it was the size of a grapefruit. I went to the clinic and was told I can see a specialilst in maybe a month or two. I went straight to Emerg at the hospital. The MRI results came in while I was there, and it showed "severe arthritis" and "loose bodies" floating around in the knee.

I met with a OS on the Monday. He said "severe arthritis" "You don't understand the damage", "cartilage is gone", "knee replacement in the future", etc. He didn't even look at my knee or ask me what happened or symptome or anything. He booked me for a scope to remove loose bodies, which I was happy about. I spent the good part of a month researching about loose bodies in the knee and was comfortable as the pain was not unbearable before this incident.

I started to see a Chinese Meridian Therapist while waiting for surgery. He said that most of my problems are with how I bend my hips, and the knee pain is residual of this. I started to see him twice a week, moving vertabrae, pushing very sensitive pressure points in the feet, jaw, etc. He spent a lot of time working on the knee, bending it in different ways and stimulating muscles around it (calf, stomach muscles, etc.). He said the loose bodies were there, but were caused because of my patella tracking incorrectly. He wanted me to put off surgery. His claim is that Western doctors only want to solve the symptoms, and not the cause. I couldn't agree more, but thought that removing the loose bodies would help now, and he could help me long-term with the tracking.

The thing is, after about 5 weeks after the incident, I was walking confidently, he had taught the "correct" way to walk which puts weight on the hip and not on the ankle and knee, I have been sleeping with pillows under my knees, and watching my overall posture. I was looking forward to getting the surgery, and continue to see him and thought things would be great.

Then, I had the scope done last Wednesday. I'd heard such great success stories with the removal of the loose bodies, I was confident.

However, I had my post-op follow-up with the OS today. He said that they took a piece and sent it to the lab, it was analyzed under a microscope, and I have SC. This is news to me!

This would explain the constant swelling and the catching in my knee. When I mentioned to the doc about my surgery at 13 and I thought this was the cause of all my knee problems, he said that SC was probably the cause.

He said that removal of the synovial tissue is a last resort, but said that "this wasn't the end of the story" for my knee. They flushed out all of the pieces in there, and to the extent I can bend my knee now, I do not hear any cracking or pieces in the joint itself.

I'm not sure about the timeline here. Reading about the phases, I would think that I should be done growing the "rice bodies" if it's been almost 20 years?

I know a lot of the reports on this site have been about bad experiences, I was wondering what has helped you guys?

- Impact sports are completely out.
- Excessive hiking and stairs are out.
- Lifting weights and heavy lifting are out.
- Generally, this joint will need a great deal more attention than others, and my lifestyle will need to reflect the treatment of this knee.

- Swimming, low impact cycling, and ice skating are good (confirmed with the surgeon, although I don't trust he knows the full extent)
- A low-grade hour-long walk daily. I'm going to continue with the proper walking techniques from the Chinese doc. I've been doing them today, although my knee is still swollen, and it feels painless.
- Ice has been helping in the post-op, I think I'll continue with this practice.

So am I dreaming that I will be back to my pre-op state, where things were feeling better? Do you think the catching I felt was the result of the SC and I have only had this disease for only the past year? Now knowing that all of the small catches (about 6) and one big one I've had in the past year was not due to a loose body, I worry that it will just continue. I hope he flushed out any "rice bodies" that would have caused my mobility issues, if not the pain and swelling itself.

Is there any foods or herbal changes that have worked keep the swelling down? Any techniques that have worked for you?

Again, I appreciate this forum. I hope my story hasn't put you to sleep, but I wanted to put my entire history on here, as I feel there are ups and downs that some of you may have interest in reading about.

Any advice would be greatly appreciated, good, bad or indifferent. I'm hopoing we can learn from each other here and find some formulas that work.[/QUOTE]
Hi, I am dealing with SC now and was wondering how you are doing post-op 2 + years later.
I am looking at a second surgery at this point and no one really knows much about this illness.
Thanks
GymGal2156
Hi GymGal-
Sorry to hear you are heading for another surgery. Unfortunately it is all too familiar with this disease. It does come back so often for many of us.

I am about 2 1/2 years out from my TKR. My symptons are slowing getting worse and worse I'm afraid. The prosthesis works good and I feel solid but the soft tissue around my knee is getting more painful. I just had a good talk with my doctor recently and he highly discourages me from any form of surgery. Any surgery now would open me up to a risk of an infection which is disastrous to a knee replacement. He said to use more meds to help deal with the pain and put off any more surgery for as long as I can. I have had some luck using Lidoderm patches so I will use them more now.
Hopefully your surgery will give you some relief and things will be better for you. Keep in touch.
Molu





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