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Knee & Hip Problems Message Board


Knee & Hip Problems Board Index


Hi, I am very happy to have spent the last couple of hours reading your various stories about SC. Thank you MoLu for setting this all up back in 2006.

May I suggest that if we are asked to start a new thread, we notify each other to keep in touch.

I am 34 years old. I had open knee surgery when I was 13 to repair a damaged patella after dislocating my knee kicking a ball. I had ACL issues, etc. They put 3 pins through the kneecap to keep it from falling apart.

Through my late teens and through my twenties, I was not soft on my old knee. I played a lot of ball hockey (involves a lot of running and sudden stopping) and a lot of snowboarding. All the time thinking I would pay for it later in life, but was not causing me too much grief, aside from the constant stiffness and swelling. I've never been able to bend my knee more than halfway. I have seen doctors over the years, they said that I need to stretch more, and I should go to PT. That never helped, I knew it wasn't anything to do with stretching.

I had a couple of scopes for ACL tears when I was 16 and 19 on my left knee, but it feels as good as new today.

As mentioned, my right knee has always been problematic, with a constant "swell", larger than my left knee.

About a year ago, I began to feel something a little different with the R knee. It was similar to philip5667 in that I would get out of my car, lifting the R knee and feel a strange "pinch" that would make my knee swell for a couple of days. Again, just like DarkDazzler, I would kneel on my bed, or roll over in bed, and the knee would catch slightly, and swell up for a couple of days.

I went to see a doc, he sent me for an X-ray. Mild arthritis, no issues with the bones. We scheduled an MRI. MRI was taken on a Wednesday.

That Thursday night following, I was sitting on the floor playing with my son, I turned to the side to get up to see him, and my knee just stayed in place, like a "locking" sensation. The leg wanted to go, the knee stodd straight. This was something new! I knew it was something serious, but it did not swell immediately following.

I woke up the next morning, and it was the size of a grapefruit. I went to the clinic and was told I can see a specialilst in maybe a month or two. I went straight to Emerg at the hospital. The MRI results came in while I was there, and it showed "severe arthritis" and "loose bodies" floating around in the knee.

I met with a OS on the Monday. He said "severe arthritis" "You don't understand the damage", "cartilage is gone", "knee replacement in the future", etc. He didn't even look at my knee or ask me what happened or symptome or anything. He booked me for a scope to remove loose bodies, which I was happy about. I spent the good part of a month researching about loose bodies in the knee and was comfortable as the pain was not unbearable before this incident.

I started to see a Chinese Meridian Therapist while waiting for surgery. He said that most of my problems are with how I bend my hips, and the knee pain is residual of this. I started to see him twice a week, moving vertabrae, pushing very sensitive pressure points in the feet, jaw, etc. He spent a lot of time working on the knee, bending it in different ways and stimulating muscles around it (calf, stomach muscles, etc.). He said the loose bodies were there, but were caused because of my patella tracking incorrectly. He wanted me to put off surgery. His claim is that Western doctors only want to solve the symptoms, and not the cause. I couldn't agree more, but thought that removing the loose bodies would help now, and he could help me long-term with the tracking.

The thing is, after about 5 weeks after the incident, I was walking confidently, he had taught the "correct" way to walk which puts weight on the hip and not on the ankle and knee, I have been sleeping with pillows under my knees, and watching my overall posture. I was looking forward to getting the surgery, and continue to see him and thought things would be great.

Then, I had the scope done last Wednesday. I'd heard such great success stories with the removal of the loose bodies, I was confident.

However, I had my post-op follow-up with the OS today. He said that they took a piece and sent it to the lab, it was analyzed under a microscope, and I have SC. This is news to me!

This would explain the constant swelling and the catching in my knee. When I mentioned to the doc about my surgery at 13 and I thought this was the cause of all my knee problems, he said that SC was probably the cause.

He said that removal of the synovial tissue is a last resort, but said that "this wasn't the end of the story" for my knee. They flushed out all of the pieces in there, and to the extent I can bend my knee now, I do not hear any cracking or pieces in the joint itself.

I'm not sure about the timeline here. Reading about the phases, I would think that I should be done growing the "rice bodies" if it's been almost 20 years?

I know a lot of the reports on this site have been about bad experiences, I was wondering what has helped you guys?

- Impact sports are completely out.
- Excessive hiking and stairs are out.
- Lifting weights and heavy lifting are out.
- Generally, this joint will need a great deal more attention than others, and my lifestyle will need to reflect the treatment of this knee.

- Swimming, low impact cycling, and ice skating are good (confirmed with the surgeon, although I don't trust he knows the full extent)
- A low-grade hour-long walk daily. I'm going to continue with the proper walking techniques from the Chinese doc. I've been doing them today, although my knee is still swollen, and it feels painless.
- Ice has been helping in the post-op, I think I'll continue with this practice.

So am I dreaming that I will be back to my pre-op state, where things were feeling better? Do you think the catching I felt was the result of the SC and I have only had this disease for only the past year? Now knowing that all of the small catches (about 6) and one big one I've had in the past year was not due to a loose body, I worry that it will just continue. I hope he flushed out any "rice bodies" that would have caused my mobility issues, if not the pain and swelling itself.

Is there any foods or herbal changes that have worked keep the swelling down? Any techniques that have worked for you?

Again, I appreciate this forum. I hope my story hasn't put you to sleep, but I wanted to put my entire history on here, as I feel there are ups and downs that some of you may have interest in reading about.

Any advice would be greatly appreciated, good, bad or indifferent. I'm hopoing we can learn from each other here and find some formulas that work.
[QUOTE=krcanuck;3810874]Hi, I am very happy to have spent the last couple of hours reading your various stories about SC. Thank you MoLu for setting this all up back in 2006.

May I suggest that if we are asked to start a new thread, we notify each other to keep in touch.

I am 34 years old. I had open knee surgery when I was 13 to repair a damaged patella after dislocating my knee kicking a ball. I had ACL issues, etc. They put 3 pins through the kneecap to keep it from falling apart.

Through my late teens and through my twenties, I was not soft on my old knee. I played a lot of ball hockey (involves a lot of running and sudden stopping) and a lot of snowboarding. All the time thinking I would pay for it later in life, but was not causing me too much grief, aside from the constant stiffness and swelling. I've never been able to bend my knee more than halfway. I have seen doctors over the years, they said that I need to stretch more, and I should go to PT. That never helped, I knew it wasn't anything to do with stretching.

I had a couple of scopes for ACL tears when I was 16 and 19 on my left knee, but it feels as good as new today.

As mentioned, my right knee has always been problematic, with a constant "swell", larger than my left knee.

About a year ago, I began to feel something a little different with the R knee. It was similar to philip5667 in that I would get out of my car, lifting the R knee and feel a strange "pinch" that would make my knee swell for a couple of days. Again, just like DarkDazzler, I would kneel on my bed, or roll over in bed, and the knee would catch slightly, and swell up for a couple of days.

I went to see a doc, he sent me for an X-ray. Mild arthritis, no issues with the bones. We scheduled an MRI. MRI was taken on a Wednesday.

That Thursday night following, I was sitting on the floor playing with my son, I turned to the side to get up to see him, and my knee just stayed in place, like a "locking" sensation. The leg wanted to go, the knee stodd straight. This was something new! I knew it was something serious, but it did not swell immediately following.

I woke up the next morning, and it was the size of a grapefruit. I went to the clinic and was told I can see a specialilst in maybe a month or two. I went straight to Emerg at the hospital. The MRI results came in while I was there, and it showed "severe arthritis" and "loose bodies" floating around in the knee.

I met with a OS on the Monday. He said "severe arthritis" "You don't understand the damage", "cartilage is gone", "knee replacement in the future", etc. He didn't even look at my knee or ask me what happened or symptome or anything. He booked me for a scope to remove loose bodies, which I was happy about. I spent the good part of a month researching about loose bodies in the knee and was comfortable as the pain was not unbearable before this incident.

I started to see a Chinese Meridian Therapist while waiting for surgery. He said that most of my problems are with how I bend my hips, and the knee pain is residual of this. I started to see him twice a week, moving vertabrae, pushing very sensitive pressure points in the feet, jaw, etc. He spent a lot of time working on the knee, bending it in different ways and stimulating muscles around it (calf, stomach muscles, etc.). He said the loose bodies were there, but were caused because of my patella tracking incorrectly. He wanted me to put off surgery. His claim is that Western doctors only want to solve the symptoms, and not the cause. I couldn't agree more, but thought that removing the loose bodies would help now, and he could help me long-term with the tracking.

The thing is, after about 5 weeks after the incident, I was walking confidently, he had taught the "correct" way to walk which puts weight on the hip and not on the ankle and knee, I have been sleeping with pillows under my knees, and watching my overall posture. I was looking forward to getting the surgery, and continue to see him and thought things would be great.

Then, I had the scope done last Wednesday. I'd heard such great success stories with the removal of the loose bodies, I was confident.

However, I had my post-op follow-up with the OS today. He said that they took a piece and sent it to the lab, it was analyzed under a microscope, and I have SC. This is news to me!

This would explain the constant swelling and the catching in my knee. When I mentioned to the doc about my surgery at 13 and I thought this was the cause of all my knee problems, he said that SC was probably the cause.

He said that removal of the synovial tissue is a last resort, but said that "this wasn't the end of the story" for my knee. They flushed out all of the pieces in there, and to the extent I can bend my knee now, I do not hear any cracking or pieces in the joint itself.

I'm not sure about the timeline here. Reading about the phases, I would think that I should be done growing the "rice bodies" if it's been almost 20 years?

I know a lot of the reports on this site have been about bad experiences, I was wondering what has helped you guys?

- Impact sports are completely out.
- Excessive hiking and stairs are out.
- Lifting weights and heavy lifting are out.
- Generally, this joint will need a great deal more attention than others, and my lifestyle will need to reflect the treatment of this knee.

- Swimming, low impact cycling, and ice skating are good (confirmed with the surgeon, although I don't trust he knows the full extent)
- A low-grade hour-long walk daily. I'm going to continue with the proper walking techniques from the Chinese doc. I've been doing them today, although my knee is still swollen, and it feels painless.
- Ice has been helping in the post-op, I think I'll continue with this practice.

So am I dreaming that I will be back to my pre-op state, where things were feeling better? Do you think the catching I felt was the result of the SC and I have only had this disease for only the past year? Now knowing that all of the small catches (about 6) and one big one I've had in the past year was not due to a loose body, I worry that it will just continue. I hope he flushed out any "rice bodies" that would have caused my mobility issues, if not the pain and swelling itself.

Is there any foods or herbal changes that have worked keep the swelling down? Any techniques that have worked for you?

Again, I appreciate this forum. I hope my story hasn't put you to sleep, but I wanted to put my entire history on here, as I feel there are ups and downs that some of you may have interest in reading about.

Any advice would be greatly appreciated, good, bad or indifferent. I'm hopoing we can learn from each other here and find some formulas that work.[/QUOTE]
Hi, I am dealing with SC now and was wondering how you are doing post-op 2 + years later.
I am looking at a second surgery at this point and no one really knows much about this illness.
Thanks
GymGal2156





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