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Knee & Hip Problems Message Board

Knee & Hip Problems Board Index

Hi Jenn-
My first surgery was a frontal arthroscopy only. They did the biopsy then for the initial dx. We thought going in it was PVNS but he said the minute he was in he knew it was SC with all the glistening little pieces. Unfortunately for me most of the disease was behind the knee. Then a month later he did the open posterior. Just a few months later my knee was full again so he sent me to an OO. I had a team do this next surgery. One OS did the front arthroscopic and the OO did the open posterior all in the same operation. It was easy to bounce back from the frontal part but that open took the wind out of my sails. It took a couple of months to return to work. I started out part time for a couple of weeks and then moved into full time work. I do have a desk job. The hard part was bending the knee. It was sore on the edge of the chair.

I get along pretty well but my leg continues to give me problems. I still have several pieces behind the knee. One in particulare has given me problems but is in the worse place. The OO doesn't want to do any more surgery because it is so close to the nerves and blood vessels. I walk kind of stiff legged sometimes. And my knee is always still swollen even after my TKR. I am know having problems with my back and piriformis muscle. So I have had many PT appts and know am trying my luck with a chiropractor. I have neuropathy in my leg and am not sure if it is caused by the larger lesion behind my knee or my back. I have had two EMG's saying different things. One points to the knee and the other to the back. Even the doctors don't agree. I think it is probably a little bit of both to be true.

I don't know what might have contributed to this disease. I'm 61 now and have been pretty active most of my life. Did a lot of skiing when I was younger. Broke my ankle and twisted my knee several times years ago. So I can't really link anything to this. Part of the charm of SC! I does seem to have stopped at least for now. I don't know if the pieces left behind are going to grow. The OO said it was a possiblity but they have not grown much in the past few years.

It has been life changing for me though. I was pretty healthy until this and now it seems I am going to the doctor all the time. I'm always trying to feel better but I think I need to learn to live with it. I'm always searching for an answer to get my leg back to normal.

I have know of another lady who had SC in the hip and has had good results with her treatment. She did end up getting a hip replacement though.
Please feel free to PM me if you'd like.

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