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Immune Disorders Board Index
Pages: 1 Showing 1 - 20 of 26 for do you get sick after ivig. (0.017 seconds)

... I too get sick after infusion. I get IVIg 3 days per month for Polymyositis. They never infuse at a rate higher than 190 and I still get severe migrains hours after the final infusion. ... (91 replies)
... I have immunoglobulin anemia as well as ITP, so I have had IVIG several times and I think it depends on the brand of IVIG you are getting and how your body reacts to it. The last time I had IVIG, it was pretty easy, and they pretreated me with Benedryl and Tylenol. ... (91 replies)
... Hello, looking for some advice on whether to pursue IVIG treatment or not. ... (4 replies)

... HI,I have IviG treatments every 4 wks. Unlike you however, they do make me feel so much better after I have them. Could you possibly be getting too much or too little. I am 5'1" and weigh 120 lbs. ... (91 replies)
... n medication during the fusion. But last time the bad side affects didnt happen until many hours after, by then I'll be home and not still in the hospital. If I do get real ill again she said she will send me back and admit me to the hospital. Any advice on what else I can do to prepare for it and the side affects? ... (6 replies)
... Hi there!!! Thank you for responding. ... (91 replies)
... I was on IVIG for a little over 2 years and have now moved to SubQ. I went through 4 different brands of the stuff before I found one that I had NO side effects with. ... (4 replies)
... My advise is to get kaiser to allow you to see an experienced physician who treats a large population of PIDD patients or to pay for an appointment your self. ... (91 replies)
... Hi, I came across your message while searching for a doctor to treat my CVID in Houston. You mentioned that you like your doctor. Does she have lots of experience with CVID? ... (91 replies)
... Your schedule is REALLY heavy. Anyone would be tired on it. I don't know a lot about CVID yet but enough. If you can cut your schedule down, you'd be better off. ... (91 replies)
... hypothyroidism, myasthenia gravis, and vitiligo. These have all been dx'ed in the last 10 months, despite my having been fairly sick for at least 10 years. ... (51 replies)
... do you have underlying conditions? ... (91 replies)
... I had H1N1 last year and have been sick ever since. ... (5 replies)
... Oh, I am so happy!! Not that you are still sick, but that you are still "there"! ... (91 replies)
... I hope my story will show you that you're not alone in what you've been experiencing with IVIG, and - more important - that there is a far less toxic alternative!! So here it is: After being diagnosed with PI more than a decade ago, I, too, started IVIG, first every 28 days, then every 21 - and I, too, had horrific reactions: fever, severe flulike symptoms, hallucinations,... (91 replies)
... This sounds like a very normal side effect of IVIG. Most people are usually told they will get flu like symptoms. There are some things you can do to mitigate the side effects though. Hydrate well before and after. I used to drink smart water the whole day before and Gatorade the day after. ... (1 replies)
... blood disorders. When I get any type of infection it triggers my blood disorder. I also have bone marrow damage with a low white count so I get infections very easily. ... (8 replies)
... Yes!! the rate of the infusion makes a difference. First of all allow me to encourage you to do your homework on what ever you are being given. I am very well informed on what I am given and the side effects. ... (10 replies)
... h the suffering the body goes through. I'm not depressed or anything and am at peace with my DNR and what that means. I did promise though my doctor I'd try this IVIG one more time. ... (6 replies)
... There aren't any other docs. I've taken the advice of some other posters on here and reached out to my Primary doc to get a referral to see an immunologist out of town, with no luck, he actually completely ignored my email. ... (91 replies)

Associated Tags: fevers, infusion speed, intravenous immune globulin (ivig), ivig, migraine, privigen

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