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Well was following someone I forget the name that just had the new cell altering treatment hope they are doing good and it is working.
Did not realize it was that long since I logged into the cancer forum I should have checked more often I would have helped to save it and I have hosted around 10 different vbulletin forums over the years.

For anyone suffering from Leukemia I am approaching my three year birthday come Feb 22, 2020. I look forward to wringing the bell on the 7th floor at the Hershey Cancer Institute however I will hold off till I have my next blood work on March 16th I believe it is. My Oncologist may discuss trying to take me off the Tasigna Nilotinib then but reading his notes from my last visit he said he may if my body can tolerate going off if it.

Not sure what he ment by that I have read that people who have been on Tasigna long term and stop the drug can suffer worse bone, muscle and body pain not sure why.

My 1st treatment at start was IV chemo treatments for days then had the stem cell transplant Feb 22, 2017. Many,many transfusions then after the stem cell transplant.

I was started on Sprycell 1st for around 5 or 6 months but that then shut my kidneys down was then in the hospital for 10 days and happy to say my kidneys started working again. I was then started on the current Nilotinib.

As of my last visit I asked my doctor if I could try to cut my anti rejection medicine back he said ok so been taking just one pill every evening so far so good.

As we all know with our weekend immune system we get sick easier and last longer I was just sick with some kind of Virus for three weeks almost gone now yes I did go to the DR three times to be checked out.

Hope all those suffering form cancer keep up the fight never give up.

If you are diagnosed with a VA presumptive cancer disease make sure to file a claim ASAP

Take care and God Bless Semper fi





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