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Help!! :confused: My daughter is 16 years old. She is very ill only I can't get a single doc to tell me what is really wrong with her. I have had her to SO many specialists...each diagnoses her with something related to their field but they never put the "big picure" together.

Here are her symptoms:

Chronic Fatigue & Chronically feeling "bad" - flu-like symptoms

Mouth Ulcers

Joint Pain

Muscle Aches

Mystery rashes

Urinary frequency & urgency w/o infection

Low white count

Low monocytes

Low palelet count

Migraines

Bowel problems

Sudden onset of low grade fevers & chills...short lived.

Now she has begun to not have her periods

She has been diagnosed with: Fybromyalgia...Irritable Bowel Syndrome, Angioedema. No one can tie it all together but I KNOW something bigger is wrong. Every test for an auto-immune problem (Lupus) is negative.

Does anyone have any ideas about what tests I should ask for next? I think that only me being a tenacious, strong advocate for her is going to yield any answers.
[QUOTE=WhatswrongAsh]Help!! :confused: My daughter is 16 years old. She is very ill only I can't get a single doc to tell me what is really wrong with her. I have had her to SO many specialists...each diagnoses her with something related to their field but they never put the "big picure" together.

Here are her symptoms:

Chronic Fatigue & Chronically feeling "bad" - flu-like symptoms

Mouth Ulcers

Joint Pain

Muscle Aches

Mystery rashes

Urinary frequency & urgency w/o infection

Low white count

Low monocytes

Low palelet count

Migraines

Bowel problems

Sudden onset of low grade fevers & chills...short lived.

Now she has begun to not have her periods

She has been diagnosed with: Fybromyalgia...Irritable Bowel Syndrome, Angioedema. No one can tie it all together but I KNOW something bigger is wrong. Every test for an auto-immune problem (Lupus) is negative.

Does anyone have any ideas about what tests I should ask for next? I think that only me being a tenacious, strong advocate for her is going to yield any answers.[/QUOTE]
hi i'm a 16 year old male i live in indianaplois indiana there is a hospital here that can diagnsose you daughters illness the hospital here is called RILEY CHILDERN'S HOSPITAL i know of this hospital personly because i have been there when i was a baby i spent 69 days there when i was a baby. the best suggestion i can give is to get your daughter to this hospital and they will work as hard as they can to get your daughter to a healthy recovery





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