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I don't really know if they can tell how long she's had the disease but they can determine to what degree it has progressed. This is called "Staging" and they are 0 thru 5. CLL affects people differently and often times it progresses so slowly that a patient has no need for treatment for many, many years. They can do some amazing things nowadays to treat CLL with Chemotherapy and even bone marrow transplants if need be. I'm into week 2 after my first Chemo treatment and I honestly feel great with no side affects like nausea etc. Tell your mom to listen to her Dr., read up on the disease, and keep smiling! She'll be fine!
Thank you for your reply, even though it probably was for the original poster. I do have CLL and I was 42 when I first got it. I am extremely tired but the Doc says it is just stress. I am not stressed because life happens and all I can do is keep my faith in God and get the treatment when I should. some of the Doctors says no treatment until the numbers gets into the 100,000. and I have had two that says I may want to start now. I have to have a bone morrow transplant then Chemo. i have been told if I start too soon the the treatment will not work when it is really needed. I have doctors telling me different things and this is driving me crazy. I should not have to guess when I need treatment, I think this is something the doc should tell me. He said we can start when you want to. Does that make since to anyone?
hey...I got diagnosed with CLL 11 years ago an have had chemo twice...I start again in 2 weeks cos its come back an then havin bone marrow transplant in june for a cure so theres lots of help out there! I am 52 years old.
good luck;)
[QUOTE=jhfreybaby;3826435]Thank you for your reply, even though it probably was for the original poster. I do have CLL and I was 42 when I first got it. I am extremely tired but the Doc says it is just stress. I am not stressed because life happens and all I can do is keep my faith in God and get the treatment when I should. some of the Doctors says no treatment until the numbers gets into the 100,000. and I have had two that says I may want to start now. I have to have a bone morrow transplant then Chemo. i have been told if I start too soon the the treatment will not work when it is really needed. I have doctors telling me different things and this is driving me crazy. I should not have to guess when I need treatment, I think this is something the doc should tell me. He said we can start when you want to. Does that make since to anyone?[/QUOTE]
[QUOTE=jhfreybaby;3826435]Thank you for your reply, even though it probably was for the original poster. I do have CLL and I was 42 when I first got it. I am extremely tired but the Doc says it is just stress. I am not stressed because life happens and all I can do is keep my faith in God and get the treatment when I should. some of the Doctors says no treatment until the numbers gets into the 100,000. and I have had two that says I may want to start now. I have to have a bone morrow transplant then Chemo. i have been told if I start too soon the the treatment will not work when it is really needed. I have doctors telling me different things and this is driving me crazy. I should not have to guess when I need treatment, I think this is something the doc should tell me. He said we can start when you want to. Does that make since to anyone?[/QUOTE]
firstly CLL is known as an older persons leukaemia and often affects people around 65..i was diadnoced when i was 40 and remained well for a while.once my white count cells were elevated i went on Fludarabine in 2005 i had 18 months of remission and it came back... in 2006 i did fludarabine and cyclophosphamide which worked well.
last nov it came back again and am due to start the same combination theraphy with a new antibody drug called Rotuximab in june/july i am having a bone marrow transplant.
you have chemo b4 transplant not after!
let me no how u get on
loubie lou x
PS I am a nurse!
My dad was diagnosed when he was 48. He is now 77. He has never been treated. When he was treated by radiation for prostate cancer, his platelets dropped but rebounded after a few months. He finished chemo for bladder cancer, and his numbers really fell. A bone marrow biopsy showed lots of CLL and now we are starting chemo on Monday. Haven't heard yet what therapy the doctor thinks is best. I guess my point is, the disease can just hang out without any problems for years. Dad has felt great. The best thing to do is see your doc as prescribed, and stay away from sick people. If you are in Virginia, I recommend Virginia Oncology. Fantastic docs!!!

Best of luck to you!





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