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Hello,
Here is my background in the hope that someone can help with some advice.
I am a male in my late 30ís and I was on a medication that we later found has a leukemia connection.
In March of this year, I had some swollen lymph nodes in my neck. I was given antibiotics which did not help.
Then an Ultrasound confirmed swollen nodes and thyroid nodules. I was diagnosed with Hypothyroidism and put on medication.
In May a CT of neck confirmed a non specific swollen nodes, but none that are too large I guess.
In July noticed I am itching and I have back pain and stomach issues. My WBC came back high at 13.5 and I had a CT of chest/abdomen/pelvic which was normal.
In August after my white blood kept staying elevated and developed other symptoms like bone, muscle, and joint pain and weight loss, I went to hematologist who looked at my blood and said it is normal with only EOS slightly elevated.
In September I went to another hematologist who did a bone marrow biopsy which came back with slightly hypocellular marrow, but no blasts or abnormal cells. Since then my WBC has been in the upper range of normal and HGB, RBC, and HCT in the lower end of the range.
However, the following symptoms still persists: Fatigue, Flushing of skin, rashes, itching, pain in bones, muscles, joints, weakness, swollen behind the knees and some in the ankles. My uric acid is at 6 so may be Gout isdeveloping. I have swollen lymph nodes in neck. My temperature is starting to go up slightly that now it is in high 98 - low 99's. I feel dizzy sometimes and feel shaking in my hands.
I am at a loss of what is going on. Could this be Leukemia? I had the Bone Marrow biopsy back in early Sept. How accurate is the BMB in the case of leukemia? Any ideas on what to do next ?
Any help or advice would be greatly appreciated. I have a family and my symptoms are worrying me considerably.
Thanks
If you had leukemia, it would have been evident to the haematologist so you should stop worrying about that possibility. The fact that the medication you were on had a leukemia connection means nothing. There are several medicines that can be used for different unconnected illnesses. The symptoms you describe are all rather general and can be due to conditions rather than diseases. For instance, itching can be due to fungal infections or to allergies to clothing or washing products. The aches and pains can be caused my mineral deficiencies, cold weather, unusual exercise, etc. The weight loss, unless it is dramatic, can be due to dietary changes, a change in the amount of exercise or simply to worrying about what illnesses you might have. Finally, all of those symptoms can be psychosomatic - if the doctors are telling you there is nothing wrong but you are convinced you are ill, the mind has a habit of creating symptoms to support your suspicions. The dilemma then becomes; who is right?
You have to have faith in your doctors. They have confirmed that you have a thyroid problem so presumably you have seen an endocrinologist. The thyroid is a notoriously difficult gland to control and it may take some time to find the right balance for your degree of hypothyroidism. Even endocrinologists often have difficulty in this field. Meanwhile, you could suffer some side effects so it would be best for you to discuss your symptoms with the endocrinologist to see if he/she can help.





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