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Lung & Respiratory Disorders / COPD Message Board

Lung & Respiratory Disorders / COPD Board Index

Kartagener's /PCD
Aug 16, 2011
Hi ... my partner has Kartageners Syndrome since birth, he had a colapsed lung at birth and it all followed from there. He had the sweat tests completed to ensure it wasnt CF but thankfully it wasnt. He is now 33 years old and we are trying to manage this effectly ... anyone out there inthe same situation? Childern are also an issue for us - any stories to share? We assume its IVF for us. Its such a rare illness, which can mean little information available ... would be nice to know we arent alone.

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