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Barb, hi & welcome. Yes, mucosal ulcerations are seen in lupus, often enough, in fact, that they're one of the diagnostic criteria. Have you read the "sticky posts" (permanent info posts) located right above the thread list? In them you'll find info on how lupus is diagnosed (criteria), rashes, reading resources, etc. They're brief but offer a decent start to a really complex subject.

A hardcover I keep handy mentions several things that might help oral & nasal sores: for oral ulcerations, buttermilk gargles, hydrogen peroxide diluted in water, and local steroids (like the Kenalog found in Orabase, a drugstore item.) For nasal ulcers: a petroleum jelly like Vaseline.

Kidney stones are just horrible (I've had them). For those, I'd say he could first consult a urologist. (Mine ordered 24-hr. urine collection & ultrasound.) Main goals: identifying stones too big to be passed before you hit crisis point (surgery could be necessary); determining the kind of stones & whether a special diet or med might help (treatment protocol depends on stone type); and determining what's causing the stones (e.g., diet, hyperparathyroidism, anything causing the bladder not to empty properly, which makes urine concentrated & promotes stone formation; and etc.). In the meantime, increasing water intake is *probably* a good idea, but he could of course check with his doctor before changing anything. If the problem proves really complex, then other specialists could be needed, like nephrologist &/or endocrinologist (if some underlying endocrinological problem is suspected).

Now to the main point: has he seen a rheumatologist? If he hasn't, I'd start figuring out how to see one, as they are, by far, the doctors best versed in lupus & its close cousins. (PCP's can know the basics, of course, but you a real expert.) If possible, try for a teaching hospital (they see the widest variety of these complex conditions). Are you near Pittsburgh? In his shoes, I'd try to get my foot in the door, then use the same facility for all specialists (he may need a TEAM to work thru all this).

Another thought: visit your local library and borrow lupus hardcovers. One (the one I keep handy) is great in that it discusses not just lupus but all its "close cousins", plus other autoimmunes that can occur in concert (thyroid AI's, GI AI's, etc.) You don't have to read line-by-line, just the portions that catch your eye.

I'll stop here for now. We'll look forward to hearing more. Sending my best wishes to you both and hope that he can get clarity & better help soon. Bye for now, Vee





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