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Hello and welcome. I'm sorry you're struggling so much, but we get that here! But before I move on, no worries about your English, please---it's great!

Could you clarify that last ANA result you described as "1:100"? I only ask because if it was done by the titer method, 1:100 isn't valid. (1:40, 1:80, 1:160, 1:320, 1:640, etc. are valid.) But if it's a single number (the IU method), anything over 6 (or so) is considered strongly elevated---in which case 100 would be huge, I would think.

I think you're right, that barring specific "ANA subtypes" being found, they aren't thinking lupus. Can you get the actual lab results, to check for all the subtypes run? Also look for names like antiphospholipid, anticardiolipin, and tests for syphilis*, which would mean that you've been tested for APS, the blood clotting disorder seen mostly in people who have lupus. (*I only mention this because syphilis test can be positive in people with APS!)

Was urinalysis done? It's essential, and not just vis--vis lupus. Then if anything is off, a 24-hour urine collection is typically the next step. (But I think BUN/Creatinine ratio in blood labs can go a bit off due to dehydration, for one thing...)

Were thyroid levels normal? Thyroid disorders can cause many of the same symptoms as milder lupus. So can adrenal disorders (and those are notoriously hard to diagnose).

Re GI problems, did your gastroenterologist look for Crohn's, Ulcerative Colitis, Celiac, etc.?

Even though your symptoms worsened after the progesterone shot, I don't think it was *necessarily* the trigger, in that you already had something amiss = your periods stopping. Have you looped back to your GYN, to discuss further what medical conditions can cause periods to cease, in light of all the appointments and tests you've had since then?

Re lupus band test, I had 3 that showed vivid, dramatic linear bands, like your doctors described how a "positive " will look.

I guess the sum of what I'm wondering is whether enough AI's were considered, such as the AI's seen in gastroenterology, endocrinology, etc. This year, I had two friends dx'ed with rare AI's. They both started with lung issues and ANA's of 1:1280 and greater, yet AB's associated with lupus never showed up... because neither has lupus. (Final dx'es were antisynthetase syndrome and microscopic polyangiitis.)

I'll stop here for now & hope that others chip in, too. We'll look forward to hearing more. Meanwhile, sending all my best to you, V





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