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Could you tell me what blood test they did to determine your Lupus? My doctor suspects I have it, but I haven't had any tests done just yes... I seem to have the same problems as you do along with the major organs being affected and the joints throughout my body... I have suffered migraines ever since I was 18 and have 2 TIAs
Hello AnAnglesMother,

The diagnosis of Lupus can be a tricky one. The blood tests that they use as a guide (with symptoms of course) are:

ANA- Anti-Nuclear Antibodies

Anti-DNA- VERY specific for Lupus

ANCA- shows in some Lupus patients

Rheumatoid Factor- Positive in 15-30% of Lupus patients

Anti-Ro (SSA)- Also used for Sjogren's Syndrome

Anti-SSB-

ENA- extractable antibodies

C3C4- often lower in Lupus patients

Urine tests- can show protein which can mean kidney inflammation

ESR- Can be elevated to indicate inflammation in Lupus (although it is pretty non-specific)

Anti-SM antibodies-

Immunoglobins-

False-positive Syphillis test- In Lupus patients, some will show a false positive to this, which is odd!!

And on top of those, some Rheumatologists will test the anticardiolipins and the Lupus anticoagulant to see if [B]Antiphospholipid Syndrome[/B] is part of the problems with a patient.

I think that it would be a good thing for you to be tested for APS too AnAnglesMother, because of your history of migraines and TIA's! Please read "Possible Lupus and Neurological symptoms?" Check that out, I think that you may fit into APS too! Take care and hope this helps :)

~Angelic
[QUOTE=AngelicBrat]Hello AnAnglesMother,

The diagnosis of Lupus can be a tricky one. The blood tests that they use as a guide (with symptoms of course) are:

ANA- Anti-Nuclear Antibodies

Anti-DNA- VERY specific for Lupus

ANCA- shows in some Lupus patients

Rheumatoid Factor- Positive in 15-30% of Lupus patients

Anti-Ro (SSA)- Also used for Sjogren's Syndrome

Anti-SSB-

ENA- extractable antibodies

C3C4- often lower in Lupus patients

Urine tests- can show protein which can mean kidney inflammation

ESR- Can be elevated to indicate inflammation in Lupus (although it is pretty non-specific)

Anti-SM antibodies-

Immunoglobins-

False-positive Syphillis test- In Lupus patients, some will show a false positive to this, which is odd!!

And on top of those, some Rheumatologists will test the anticardiolipins and the Lupus anticoagulant to see if [B]Antiphospholipid Syndrome[/B] is part of the problems with a patient.

I think that it would be a good thing for you to be tested for APS too AnAnglesMother, because of your history of migraines and TIA's! Please read "Possible Lupus and Neurological symptoms?" Check that out, I think that you may fit into APS too! Take care and hope this helps :)

~Angelic[/QUOTE]

Thank you very much for all of the information. I wish the best to all of you suffering with this. It gets hard at times, but it's even worse when there is the unknown. This is a wonderful place to talk and get information. It's my first time here and I already have learned so much. I hope everything works out Lulu. I would like to hear more about your process as you go through all the drs and testing. Have a great day, I will keep you all in my prayers.

AnAnglesMother :wave:





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