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Hello IM and welcome to the board!

I am sorry to hear about your mom remaining undiagnosed. It is hard sometimes for Rheumatologists to diagnose Lupus, and some GP's just don't know what to look for! Thank goodness medical science is becoming more accurate and people are becoming more and more aware of Lupus symptoms and blood work.

If you don't have symptoms, you don't really need to be tested, although I suppose it would be a "jumping off" point! Since you have the genetics for Lupus, you may or may not get it. There is no real answer here.. some people find that Lupus runs in their family and that they end up getting it. Other families have one family member with Lupus and that is it! If you do want to be tested without symptoms, I would ask your doctor to run a CBC, Urine (for all sorts of abnormalities seen with Lupus), ANA (anti-nuclear antibody), Anti-DNA, Anti-RO (SSA), Anti-LA (SSB), Anti-JO 1, Anti scl 70 (which goes with Scleroderma) anticardiolipin antibody and an Lupus Anticoagulant. Do you have a history of blood clots? (stroke, DVT which is a leg clot, Mini stroke (TIA), or miscarraiges?) Also, do you have migraines and have circulatory problems.

It is a good idea to be tested for Lupus if you indeed fit the criteria, but if you don't then I wouldn't worry unless you start showing some symptoms for it. I have posted the criteria for Lupus in this forum if you want to have a peek. Sometimes us "Lupies" have to donate a LOT of blood to get checked out. So if your doctor feels that it is something to get done, than that is good.

Lupus can hit whichever family member it wants to as far as I know. I do understand that it CAN skip generations, but I am unsure how conclusive that evidence is. Just watch yourself for symptoms, and if you become symptomatic then perhaps its worth getting checked :) You can develop symptoms later in life, but its not a guarantee. Many children that have parents that have Lupus do not get it. Its a coin toss basically! You take care and please ask as many questions as you want :) Talk to you later!

~Angelic
[QUOTE=AngelicBrat]Hello IM and welcome to the board!

I am sorry to hear about your mom remaining undiagnosed. It is hard sometimes for Rheumatologists to diagnose Lupus, and some GP's just don't know what to look for! Thank goodness medical science is becoming more accurate and people are becoming more and more aware of Lupus symptoms and blood work. [/QUOTE]

It was hard for us to find out after the fact. Just knowing that something could have in fact been done..... she went to all kinds of doctors knowing [I]something[/I] was wrong, but just didn't know what.

[QUOTE=AngelicBrat]If you don't have symptoms, you don't really need to be tested, although I suppose it would be a "jumping off" point! Since you have the genetics for Lupus, you may or may not get it. . Do you have a history of blood clots? (stroke, DVT which is a leg clot, Mini stroke (TIA), or miscarraiges?) Also, do you have migraines and have circulatory problems. [/QUOTE]
I haven't had a history of blood clots, but my Mom ultimately passed away because of a blood clot in the stem of her brain. I have no idea if that puts me in an "at risk" category though. I am also an ex smoker, and am on the bc pill.

So basically I shouldn't be too concerned about it unless I start showing symptoms..... sounds good to me! I'm going to make sure my doctor is aware of all these things as well.

Thanks for your help!

IM :D





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