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Re: I need advice
Jan 17, 2004
Hi Serena,

I know what you are going through, Shari is right that it sounds like you have something going on here.. sounds like Lupus and Sjogren's Syndrome to me too! Have you ever had an ANA done? If not, I would suggest mentioning it to your doctor.. to see if he/she can run it. Also, see if they can do an Anti-DNA, Anti-Ro (the test for Sjogrens Syndrome), Anti-JO, Anti-SSB, a CBC, electrolytes, ESR, CRP, cholesterol (which can show high triglycerides in people with Lupus) and urinalysis. Some doctors are able to perform a Shirmers Blot test right in the office for Sjogren's Syndrome. They insert a small piece of special paper into your lower eyelid, and it measures the eye moisture. If it is "bone dry" then you have Sjogren's Syndrome. Many doctors DONT do that test, but even an Optometrist or Opthalmologist can perform it. The antibodies for Sjogrens are sometimes negative even when a person has it, so the Shirmers blot is a quick and reliable symptom based test.

Please check out the symptoms of Lupus in this forum also. Sjogren's can cause joint pain, but the sores, low grade fevers, rash and circulatory problems (cold feeling)that you describe and all of the other symptoms would fit very nicely into the criteria for Lupus. The cold feeling can be from Raynauds Phenomenon which is circulatory related. Sjogren's and Lupus go hand in hand! I must add that you can have Lupus without having the positive test results. 5% of the population actually has Lupus and has NEVER had positive results. Sometimes it can take being on your death bed for the results to be positive, but some Rheumatologists will diagnose using other criteria (symptoms, and oddities in the blood work/urine work). I think its a really good idea to get tested right now, please see your doctor and see if he/she can run those tests for you :) Take care and please keep in touch and let us know how you are doing!


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