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I need advice
Jan 17, 2004
Hello everyone. I am new to the boards and I'm coming here with a few questions regarding Lupus. I never thought I'd suspect I'd have Lupus, but I did some research on the internet and have come to realize that I have many of the symptoms and didn't realize it. My daughter's biological aunt (no relation to me otherwise) was diagnosed with Lupus at age 16.

For quite some time now I've had constant aching joints and muscles, but more dominant in my joints. My wrists, knees, ankles, fingers, hips, and toes seem to ache so much that I now take a pain reliever to relieve the discomfort. I am a stay at home mom of 3 children and I'm only 28 years old. I checked off the usual symptoms that go with Lupus, seeing I have most of them, but did not want to assume so until I did futher reading along with the posts in this forum. What really stood out to me is that Sjogren's syndrome has been known to go along with it. I never heard of the syndrome but suddenly a lot of things make sense. I can hardly wear my contact lenses anymore (and I've been wearing them for almost 10 years now), and I remember a couple of years ago my eye doctor telling me I had very dry eyes. My mouth is dry all the time, and my nasal passages are as well. Within the past 2 weeks I developed a sore in my nose, where it wasn't painful, it just came out of nowhere, and now it's sore cause I keep messing with it. (Call me a nose picker! :jester: ) I also want to add that I got a red rashy patch on the back of my scalp that seemed a little sore and is scaly around the same time the nose sore appeared.

I am unsure what to do. I do not want to go to my doctor just diagnosing myself with Lupus or asking that I be given specific tests. All I do know is that I hurt all the time in my bones, muscles and joints, and I'm so tired all the time I can barely function. It seems to come and go, and I always think I'm coming down with the flu but I'm not...make any sense? My biological aunt has Chronic Fatigue syndrome, and I don't know if this is the same thing, Lupus, or something else. When I was 12 years old I underwent a biopsy for painless swollen lymph nodes, consistent low grade fever, and low white blood cell count. The biopsy came back normal, and we were told that my immune system was low. I don't remember much from back then but I do know that I've always gotten sick easily. I had another biopsy when I was 18 on another set of swollen lymph nodes and those came back okay as well, but I still had a low blood count. I was never diagnosed with anything.

Here are my symptoms:
Always tired
Achy and sore joints
Low grade fever
Feeling of being cold
Swollen ankles (I've had this for years since my first pregnancy, don't think it's related too much)
Bruising easily
Dry eyes, nose, mouth (prominately the eyes)
I seem depressed when my body feels at it's worse
Pluresy (I got this once when I was 16, and I've had 3 episodes in the past 6 months)
Red patches on face (but could be associated with skin dryness)

I am coming here now because I feel awful at the moment. I feel like I have the flu but I'm not burning up with a high fever like the flu. This has gone on at least 10 times in the past 2 months and my house is literally falling apart because I have no energy to get up and get things taken care of.

What do I do? How do I approach my doctor?





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